CSN Login
Members Online: 13

Hello, new here

mozzer
Posts: 5
Joined: Jul 2004

Hi I am not sure if I am in the right place to post this. I have never used a forum like this really. But here goes anyay...

I have just spent 16 months taking care of my 44 year old husband who was suffering from colorectal carcinoma. As you may have noticed, I wrote ''was'' . Sadly he just passed away and I am really not sure where I go from here.

I am left with three children, one is 18 months. He was 3 months when we found out so you can imagine the shock. My husband was given ''weeks'' to live back in feb 2003, yet defied them all by surviving as long as he did - although that's no real comfort.

He had to live with knowing that he had no chance of surgery whatsoever and that chemotherapy was unlikely to have any significant effect. However, he was put on seven courses of Capecitabine (Xeloda), which I think may have helped although the side effects were very depleting on him and lasted weeks and weeks, even though he was told they would wane after about three weeks.

Anyhow, I guess there is a slight positive here in that yes he did live way longer than expected and that can only be put down to his strong will to live and desire to 'carry on' .

Even a week before he died, he was still driving...

I must also say that aromatherapy seemed to have been hugely beneficial to him - physically, spiritually and mentally and this was the only 'complementary therapy' he considered.

Thanks all for reading this, I just needed to off-load it somewhere.

Good luck to everyone else suffering this atrocious disease, I pray that one day soon we will have it licked once and for all - nobody should suffer like this.

If I can help anyone in any way, I'd be glad to and if anyone can point me in the direction of support for carers, I'd be grateful. Thanks .

jana11
Posts: 708
Joined: May 2004

Hi.. all I can tell you is how incredibly sorry I am for your loss. Take pleasure in your children. Your husband lives through you and your family.

I personally am a cancer victim. I feel horrible for my husband who remains a great strength for me. You husband would be so proud of you for coming here for help!! I live in Houston and know there are several support groups for caregivers locally. Ask a social worker at the hospital if they know of any groups, or other caregivers who have suffered loss and start a group. Talk to your husbands oncologist/nurses and find out if they know of others nearby. I think human touch is so important during times of grief. I also believe there are other discussion boards at this site, but you are welcome here anytime.

My heart goes out to you. Keep us posted. love, jana

Fitlisa
Posts: 99
Joined: May 2004

I am so terribly sorry for your loss. I can only try to understand your grief. Take comfort in the knowledge that you were there for your husband when, I do know this, he would have needed you more than at any other time in his life.

I am a survivor, not a caregiver but I realize more and more each day the profound effect this beast has on those of us surviving it as well as those who care for us.

My thoughts are with you and your family,

Lisa

jsabol's picture
jsabol
Posts: 1156
Joined: Dec 2003

I am also so sorry for your loss. What a journey this disease takes us on. Wishing you comfort and strength in the time ahead. Judy

mopar
Posts: 1948
Joined: May 2003

Welcome to this site. But I am sorry that such a terrible thing brings you here. But you have definitely come to the right place. I am an ovarian cancer survivor but now a caregiver to my mother who has colon cancer which has spread to the liver and lungs. We have a long road ahead of us, but I am hopeful and still have a strong faith. I encourage you to keep in touch for support here. And as Jana recommended, seek out a local support group. Other than that, please check out the Chat Room on this site. It's very informal, but VERY helpful. I will pray for you and your children. Your husband definitely lives on in all of you. Talk about him to your children. Especially the youngest ones so they will never forget. Keep photos around, and don't be afraid to talk about him. They will see your love for him lives on and he will always hold a special place in their hearts. God Bless you and talk to you soon I hope!
Monika

ipetrou
Posts: 33
Joined: May 2004

so sorry. check out the wellness community - i'm not sure where you live but maybe they have something local. http://www.thewellnesscommunity.org/default.asp
you should also see if the hospital through which your husband was treated has social workers for you to speak with and ask his doctor for support groups. best to you and your children.

mozzer
Posts: 5
Joined: Jul 2004

Hi again. Thanks so much for your kind replies. I have only just figured out how to reply! I'm still really stunned and can't grasp the enormity of the situation. But i don't wnt to dwell on it as you guys are in a far worse situation that me.
I hope you all take care, I'll check out the info you have already put to me and keep looking for more :-). If I can help any of you, don't hesitate.
Take care all and god bless x

allsmiles
Posts: 25
Joined: Jun 2004

Dear Mozzer,
I can't tell you how I cried when I read your message. My husband is 47 and has had a recurrence of rectal cancer while on chemo. We went to Duke Univ and were told that we could try the new chemo drugs and he could undergo a total pelvic exeneration. He has opted not to do either as he felt that for his aggressive cancer chemo is not the answer. The surgery would be so major he is not sure he would survive. We have two small boys ages 8 and 10. This has been a year long battle with chemo/radiation, surgery and follow-up chemo. He has not tolerated any of the above treatments very well and has gone from a vibrant 175 pound man to a l24 pound man. The tumor is still contained in the pelvic cavity but causing problems (he just had a colon by-pass because he couldn't eat).
All we want is a chance to try an alternative therapy but everyday I wonder if he will be able to take more. I know you loved your husband and my heart grieves for your loss. I realize every day is a struggle for my love as the pain increases and the energy level decreases.
Thanks for letting me share my situation. I am grateful however that I can take care of him and he is surrounded by his family.
Grace

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network