Jul 03, 2004 - 9:33 am
Hi I am not sure if I am in the right place to post this. I have never used a forum like this really. But here goes anyay...
I have just spent 16 months taking care of my 44 year old husband who was suffering from colorectal carcinoma. As you may have noticed, I wrote ''was'' . Sadly he just passed away and I am really not sure where I go from here.
I am left with three children, one is 18 months. He was 3 months when we found out so you can imagine the shock. My husband was given ''weeks'' to live back in feb 2003, yet defied them all by surviving as long as he did - although that's no real comfort.
He had to live with knowing that he had no chance of surgery whatsoever and that chemotherapy was unlikely to have any significant effect. However, he was put on seven courses of Capecitabine (Xeloda), which I think may have helped although the side effects were very depleting on him and lasted weeks and weeks, even though he was told they would wane after about three weeks.
Anyhow, I guess there is a slight positive here in that yes he did live way longer than expected and that can only be put down to his strong will to live and desire to 'carry on' .
Even a week before he died, he was still driving...
I must also say that aromatherapy seemed to have been hugely beneficial to him - physically, spiritually and mentally and this was the only 'complementary therapy' he considered.
Thanks all for reading this, I just needed to off-load it somewhere.
Good luck to everyone else suffering this atrocious disease, I pray that one day soon we will have it licked once and for all - nobody should suffer like this.
If I can help anyone in any way, I'd be glad to and if anyone can point me in the direction of support for carers, I'd be grateful. Thanks .