Jun 06, 2004 - 10:21 pm
Hi I do not do this much. So forgive me if I am to wordy. Where to begin...
A brief history: I have an inoperable malignant astrocytoma/glioma brain stem tumor. I am currently in remission for going on almost 10 years. :) I received six weeks of radiation, which seems to have slowed the growth. This is monitored yearly via labs and MRI. My last scan revealed a spot on my brain. But it is being watched I may just be scar tissue the has not been seen before because they changed my MRI's to a thin cut scan. I am optimistic(sp) :) I was also recently diagnosed with early avascular necrosis and osteopenia in late 2003 and in 2004 with diverticulitis. I also have cysts like or dermoids on my ovaries. I am 28 years old with two healthy boys and a very supportive husband.
For almost six years that I can remember I have had the following symptoms -shortness of breath, chest pains, sweating, AB pain, bloating, headaches, joint and muscle pain just to name a few. My doctor has done Chest X-rays of my chest and not seen anything so recently I had a Gallium scan with tomography and a CT scan. The CT was without contrast and showed a 4mm non calcified solitary nodule in the inferior left lingula (left lung base). It also showed a 13mm right adrenal nodule with two small lesions in the right lobe of the liver near the dome. The gallium scan showed an accumulation in the mediastinum, within the volume of the myocardium with possible cardiac valvular uptake. This one doctor I have been to says he will watch everything for the next two years via CT and MRI scans w/out contrast. This seems odd to me though it may be a normal process. Some questions: Could asbestos cause any of these problems? I was exposed to it for two years -or- is this most likely something minor? What kind of doctor could best answer these types of questions? One last thing my white blood counts are very low so he does not think any of this is infection. But we are scheduled to recheck it in early July. Thank you all for your time. If anyone is in or has had similiar things happening any advice, experience or direction would be a greatly appreciated during this troubling time. Thanks again and god bless.