May 28, 2004 - 5:58 pm
My husband had been having regular PSA tests since the age of 50 with nothing out of the ordinary until October of 2002. The reading on that test had increased dramatically to 5.0. At that time our doctor suggested we wait and watch and do another PSA test 6 months later. We were told that a 5 reading for someone in my husband's age group was nothing to worry about and especially advised me to not waste any time worrying about it since I can be quite the worrier. We really weren't too concerned after what the doctor had told us but we did return for another test 6-1/2 months later. His PSA was now 26. He was immediately sent for a biopsy that showed that the cancer was a T2 and would soon be a T3, his Gleason reading was 7. The oncologist felt that radiation combined with hormone treatment was the way to go and my husbands name was added to a waiting list for radiation. It took 2 and 1/2 months after having them cancel two oppointments on us to finally get the appointment to begin radiation and again he was given more tests. By now it was the beginning of 2004 and the cancer had spread to outside the prostrate and into 3 or 4 lymphnodes. Any future surgery was now not an option. He did really well with the radiation treatments and even managed to go to work right up until the end of the 37 treatments. Things really took a turn for the worse tho following the last radiation treatment. Urinating became a bitter struggle. He spend the next 9 weeks with a cathater for odvious reasons. He lost weight and was very pale during that time. He fought off three bladder infections and finally two weeks ago they removed the catheter for the 4th time and thankfully it did not have to be reinserted. Things weren't too bad for that day but by the next day he couldn't go again without a real fight. After a few days he started to dribble a bit when he is in a relaxed state and then he started to go the entire time he is sleeping. He is very pale and tires easily and of course can not go to work. He's actually been off now since the treatments ended. We're wondering if anyone else has had radiation with hormone and especially are interested to know how they did afterwards. We're wondering how long the incontenance will go on for. The best answer we can get out of the onc is that everyone is different. We'd just like an idea so we can have a bit of hope that things will get back to normal again someday. We're looking forward to your comments.