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counts still going up

BonnieR's picture
BonnieR
Posts: 1549
Joined: Jan 2004

Hello, I just got my monthly results and another month - actually 3 weeks - and the numbers keep rising. Next month is my Dr appt and I don't have any idea what to expect. I have now let people know for it's been 3 months now and just creeping up every time. I thought we beat this thing, I thought WOW a miracle. I know it isn't the end of the world but now know it wasn't just an increase due to sore muscle or some other little thing. I just kept telling myself it will stop, or could be from something else. Now I don't think so and yes I know there are so many more chemos and so many of you have had lots of recurrences and are doing fine. I thank you all for sharing and showing us all to never give up. Well I've rambled on enough. Thanks for listening and God Bless You All!

BonnieRose

TealRibbon's picture
TealRibbon
Posts: 44
Joined: May 2003

BonnieRose,

Oh boy, I feel fear in your message. I know it well. Mine has been slowly creeping up, still with normal limits but inching up each month. I am still on maintenance therapy (Taxol) and I worry about how fast it will rise when I am no longer taking the treatments.

How high are your numbers? Mine were as low as 11 but have risen to 21 over the past year. The docs are not concerned BUT, it is not them! I think if the shoe was on the other foot they would think differently.

I cant take away your concern but I can pray for you and I will. Please let us know how things go.

Love,
TealRibbon

mopar
Posts: 1950
Joined: May 2003

BonnieRose:
I understand your anxiety and concerns. I have been cancer-free since September March 2000. But the last two CA125's have been going up. Just had a test last week, so I'll have to get those results to see how it's going. As with you, my doc is not concerned. I do know that I've had TONS of stress in my life this past year. And for the last month I've been fighting some kind of virus/infection. Anyway, lots of different factors involved, as you know. You are in my thoughts and prayers. Please keep us informed. Till then, just take care and take one moment at a time.
Monika

groundeffect
Posts: 651
Joined: Mar 2003

Hi BonnieRose, sorry to hear that you're having to go through all this. Has your doctor done a full blood profile on you to see if you might have a liver situation (or anything else) that could be causing the elevation?

I wish you the best of luck, and will send a prayer your way. I'm glad you're being very open with us, and hope it will ease your anxiety a bit.

BonnieR's picture
BonnieR
Posts: 1549
Joined: Jan 2004

Good suggestion to all us. Yes we did a full blood and urine the first time the numbers jumped and everything appears in the normal ranges. We have just done the ca125 now monthly nothing else, and unfortunately it keeps climbing that ladder. Thank you all for your responses and I keep you all in my daily prayers also. This board really does help a person get through as well as the listserv. Do any of you get the ovarian listserv? Hope you all had a good easter. Bonnie

pshnyc's picture
pshnyc
Posts: 45
Joined: Feb 2003

Hi Bonnie,

Yes, I am on the OVCA Listserv. If you need the address to sign up, Email me and I will share it with you. You can Email me here or at pshnyc@rcn.com. Best to you,

Pamela

JanQ's picture
JanQ
Posts: 238
Joined: Jan 2004

I am so sorry,I haven't cryed in a while until now. What you are going through is what we all fear. Keep believing in miracles, God is Faithful. I will keep you in my prayers God Bless You.Jan

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