Hi all, I know this is going to be a major whining post, but I need to get some of this stuff off my chest, and you guys are the only folks I know who are going through this...so forgive me...
Just finished round 2 of 5FU/Leuco, and despite the first 11 treatments going well, I feel like #12 treatment sent me into a whole terrible new world.
Except for increasing fatigue in the past, I felt truely lucky to have only minimal, annoying symptoms, part when I read what others have endured. Since my last treatment, however, (over a week now) I have just about completely lost my appetite and sense of taste. Only salty and sweet seem to get through. Most stuff tastes like applesauce/sawdust with no flavor. On top of that, my stomach reacts by going into hyperdrive with any meat, butter, milk products and fresh fruit and veggies. Immodium seems to control the diarrhea for now. Sure is limiting what I attempt to eat, and since it's all tasteless now, it's hard to force it down. I've lost weight this past week, which is also new. The fatigue and lack of initiative are also much greater; I find it hard to concentrate on reading, which has always been my great escape. Despite all this, my hematocrit actually was up 3 days ago (unfortunatly, so is my blood pressure.)
Soooo...I'm taking the next week off; postponed anniversary dinner with hubby (23 yrs) and eat rice with boiled carrots and ginger.
Any recommendations about supplements, part since I can't do much dairy? Have others had these symptoms come and go during chemo, or is this it for the next 12 weeks?
BUT, just to add SOMETHING positive, the swelling and redness in my fingertips is starting to subside; I'm no longer dropping every small thing I pick up.
I start round 3 on Friday, and for the first time, it's feeling like a long haul.
Thanks for the opportunity to vent. Judy, who is hoping to find another reservoir of inner strength