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Cancer of small intestine

vanessaevans
Posts: 1
Joined: Mar 2004

Cannot find anyone in the UK who has this type of cancer, sometimes called small bowel or cancer of duodenum, can anyone help, my brother has this type of cancer .

isletcell's picture
isletcell
Posts: 70
Joined: Mar 2004

Could it be colorectal cancer?? or carcinoid cancer??? Look under colorectal cancers on this site. I hope this helps!
Jen

rosier
Posts: 1
Joined: Sep 2004

My husband has this cancer. Very hard to find any info on the web. I just kept serching and serching finally found a little article. rosier

Reini
Posts: 22
Joined: Jun 2005

Hi Vanessa,
How is your brother going? My hisband has this cancer and is just finishing his 6 months of chemo?

egina
Posts: 1
Joined: Jun 2005

Hello
Please can someone help me. I found out today that my Gran has cancer of the intestine, I will find out more of her condition tonight as i am in South Africa and she is in Romania. To be quite honest I see her more as my mom then my gran, she raised my brother & I and cant see my life with out her. Please can someone let me know more about this kind of cancer. I'm not sure if it's malignant or not and what stage it's at.

I would apriciate any advice anyone can give me on this.

Egina

Reini
Posts: 22
Joined: Jun 2005

Hello egina,
im sorry to hear about your gran , you need to find all you can abiut the cacner it is most prob large intestine or they also call it colon in us bowel in Aus .
If it is the large intestine then there is an entire sectionin the disc board called colorectal cancer that has loads of positive survivors
good luck god bless

bekki
Posts: 2
Joined: Jun 2005

hi im bekki, i live just outside london and i had pnet of the duodenum, i to have searched for someone who knows what i had, went through. i was 21 when i was diagnosed that was 5 years ago now...i found it so hard going through the chemo raising two small children ect...all i want is to know more about what i had and why i had it.

2ndtimer's picture
2ndtimer
Posts: 2
Joined: Apr 2007

I'm recovering from small bowel cancer and have found very little information online. I noticed these posts from 2004. I'd like to hear from anyone who has or had small bowel cancer.
2ndtimer

loves2cook
Posts: 1
Joined: Nov 2007

Hi 2ndtimer. My husband has the same cancer stage 4. I too am having a difficult time comparing notes w/ others, finding info resources. I would love to share stories and possibly learn more about what is ahead for us. Please contact me if you are interested.

MOOSE74
Posts: 6
Joined: Feb 2010

My dad just got diagnosed with Stage 4 adenocarcinoma of small intestine. Please email me back. Love to talk.... Not much as you know on internet about this...Pretty rare...

TwoTimeCancerChick
Posts: 8
Joined: Aug 2010

I hope your dad is doing well with his treatments. I was diagnosed with adenocarcinoma of the small intestine (located in the jejeunum) in August 2009 at age 35. I had an emergency small bowel resection surgery where the doctor removed the tumor and about 7 inches of my small intestines. In October 2009 I started FOLFOX chemotherapy and finished this past March. So far the blood tests and CT scan are showing everything is clear. Unfortunately, I developed peripheral neuropathy because of the chemo.

rhoopes54's picture
rhoopes54
Posts: 6
Joined: Jul 2011

I was diagnosed with small bowel cancer in 2009, did folfiri treatment for six months then matastis to omentum in 2011 with folfox treatment.

How is your peripheral neuropathy? I currently am on 2700 of neuronton per day for neuropathy.

caseyj
Posts: 29
Joined: Nov 2010

Are you still going through chemo I am just starting the chemo and have the same as you let me know would like to talk with you.

casey

caseyj
Posts: 29
Joined: Nov 2010

I have the same cancer if you want to talk let me know

ebaygirl715@yahoo.com

casey

jeffmckean
Posts: 1
Joined: May 2007

Hi. My husband was diagnosed with adenocarcinoma of the small intestine. he underwent a whipple procedure. He also went through 6 months of chemotherapy. His chemo ended in december of 2006. Over a 1 and a half years later and regular ct scans alternating with x-rays, all tests have been coming up clear. It was a rough road, but his quality of life is very good. he just turned 40. He had colon cancer almost 5 years prior to us finding his small intestinal cancer, due to blockage and jaundice, which saved him in essence. he also went through genetic counselling and has the MSH2 gene, that is responsible for these cancers. His grandfather passed away in his early 30's. His mother and sister also have been tested and have the gene. His other brother does not. Simca.

MOOSE74
Posts: 6
Joined: Feb 2010

what was the whipple procedure? resection?? removal of part of small intestine?
How is your husband doing?
My dad just had the "BLOCKAGE REMOVED"....that in essence saved him as well. It was stage 4 adeno of small intestine
Tell me more about the genetic counseling...and MSH2 gene please.....??
any information you can give me will be greatly appreciated. My dad is only 57.

magdawojnar
Posts: 2
Joined: Apr 2010

Hi

I live in UK. My partner was diagnosed with duodenal adenocarcinoma with inoperable tumour (over 10cm). The cancer is stage IV because of the size and distant lymph nodes involved. He had a bypass done and is waiting for chemotherapy. I am not very convinced about chemo... I am devastated and loosing my power to do anything. He is in pain one day and the next one is better. And I am feeling exactly the same what he is feeling... Can anybody tell me how bad or full of side effects chemo was for you or your relatives? I really need as much information as possible to cope and help him. He is all my life, I have nobody else...

Magda

Mrandl
Posts: 3
Joined: Apr 2010

I'm having my second round of chemo right now. Last time was 3and a half weeks ago. I did not have nausia at all. I was very tired for about 4days and very sensitive to cold. Be sure your partner gets an anti-nausea drug infused before the chemo and has time to rest. My first round was just 6 weeks after my whipple (removal of about 8 inches of the small intestine) so Im curious to see if this is better or worse.

Haylez
Posts: 6
Joined: Mar 2010

My Mum was diagnosed with duodenal cancer in Feb 2010, underwent a whipple in March 2010 and has just had her 3rd cycle of FOLFOX chemo, and is doing pretty good so far. She goes in once a fortnight for 3 hours, and then brings one drug home with her in a bottle connected to her picc line for two days, then goes back in and has it disconnected. She is very sensitive to the cold the two days following, and a little off her food. Then she has a couple of bad days on the 3rd and 4th day. Just really tired, a bit of it, slightly nauseas and no appetite. But then she comes pretty good, and has a good week before she goes back in again.

They are calling her chemo "insurance" treatment, as they cannot find anymore cancer on scans, or throughout the surgery, however since they found a tiny spot (4mm) on her liver, combined the rareity of the cancer, and therefore the lack of solid research, mum decided to do it anyway. Mum waited 7 weeks before starting chemo, althugh because of her difficulty putting on weight (Mum was only 48 kgs when she first saw the dr, and got down to 43) she ended up having a month in hospital, and then built up some strength to be able to handle the chemo.

I'd be really interested to see how everyone is going now?

Haylez

magdawojnar
Posts: 2
Joined: Apr 2010

Thank you for any replies. My fiance is having his 6 chemo o EOX regimen. It is pailative one but we are hoping it is still working and shrinking lymph nodes and the tumour. We should know CTscan results tomorrow I hope they will be good... If you are looking for any information about small intestine cancer or duodenal cancer go to duodenal cancer yahoo group. This is a great source of information about this such a rare cancer.
I hope you are all doing well. My partner did not have a Whipple but we are hoping that chemo will help enough to become operable...
Magda

rhoopes54's picture
rhoopes54
Posts: 6
Joined: Jul 2011

I was diagnosed with small bowel cancer in 2009 and then it spread to the omentum in 2011.

How are you doing? Any insight would be appreciated.

Robert Hoopes
rhoopes54@gmail.com

caseyj
Posts: 29
Joined: Nov 2010

Hello my name is Casey I have small intestine cancer I have had this for a year now and am on chemo. I had to give up my whole life because of this cancer and move out of state. they said that it won't gte any better I am 49 years old female. I have a hard time no one to talk to about it.

caseyj
Posts: 29
Joined: Nov 2010

Do you still have small intestine cancer I just started chemo with it getting ready to start the 2nd round of chemo.

casey

caseyj
Posts: 29
Joined: Nov 2010

Do you still have small intestine cancer I just started chemo with it getting ready to start the 2nd round of chemo.

casey

caseyj
Posts: 29
Joined: Nov 2010

Do you still have small intestine cancer I just started chemo with it getting ready to start the 2nd round of chemo.

casey

caseyj
Posts: 29
Joined: Nov 2010

Do you still have small intestine cancer I just started chemo with it getting ready to start the 2nd round of chemo.

casey

anneyauster's picture
anneyauster
Posts: 3
Joined: Jan 2013

Hi,

   Colon cancer is one of the type of cancer which day to day get increased. Colon comprised some part of the large intestine,some symptoms are modification in bowel movements,abdominal pain,blood in stool,excessive weight loss or weight gain,anxiety,etc.

Thanks,

 

carl17's picture
carl17
Posts: 15
Joined: Jul 2012

Can I suggest the yahoo group

 

http://health.groups.yahoo.com/group/duodenalcancer/

 

It has someactive participation and a database put together by one of the members

 

Also if you type in Yahoo scholar alert + duodenum cancer or whatever your specific interest and you can get all the articles from medical periodicals (much of it is in medical speak) but I found it reassuring that research is being done.

 

carl

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