Mar 20, 2004 - 10:34 am
i was diagnosed 03/08/04 with h.d.nodular sclerosing. ive had a bunch of tests to find out what stage im in-i go for my bone marrow biopsy & pet scan 03/22 and start chemo 03/23. so far my symptoms have just intensified with time-tired most of the time, but sometimes i have pretty good days. biggest problem is:itchy dry skin, and very tired no matter how much i sleep,but i also have trouble staying asleep even with meds. i have a tumor bout the size of a softball around my throat that makes me feel like i have something stuck in my throat all the time.im just wondering what to expect,i know everyone reacts differently..im just scared that im not mentally ready to start tx,can anyone tell me-are you ever Ready to start??also, i have 2 children, my teenage daughters taking it the hardest-any ideas on where i can get age appropriate info for her?