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Paget's

glapapa
Posts: 10
Joined: Mar 2004

I'm looking for other women out there who have had Paget's Disease. I am 26 with two small children. I am also still nursing on the one side. I had a mastectomy on my right breast three weeks ago. Anyone in a similar situation? I'm looking for some support.
Thanks
Gina

shmurciakova's picture
shmurciakova
Posts: 910
Joined: Dec 2002

Is Pagets disease a form of breast cancer? Please tell us a little more about it. There are a few young moms on here, so hopefully someone can give you some advise. Take care, Susan

glapapa
Posts: 10
Joined: Mar 2004

Yes, Paget's Disease is a rare form of breast cancer. It consists of only 1% of all breast cancers. It usually occurs in older women (50-60 range) Paget's is breast cancer of the nipple, usually also involving the milk ducts underneath. I just saw the oncologist and my case involved DCIS as well as Paget's. I am looking for other women who wanted to continue breastfeeding. Most of the doctors I've seen have not seen someone in this situation. I guess it is very rare to be diagnosed while breastfeeding. Most told me I needed to stop, but could not offer a good reason why. Are there other women who were told the same thing? Thanks!

isletcell's picture
isletcell
Posts: 70
Joined: Mar 2004