Any one that has had a autologus stem cell transplant that did not work and is now going to have a allogeneic transplant
Hi Tazy..I am in the same boat as you..LDBcell .Had a Sct in April 03 and Ct In July said nodes were still present in lower abdo,nothing was done as DR said it was prob scar tissue,not happy with the reply so had Pet scan in Dec03, confirmed nodes positive,,Feb 04 nodes are now 13mm,still to small to do a biopsy?!so was put in the position of let's just wait and see!not happy with this also ,so email my Dr yesterday and explained my worries to him,as he has left me so mucked up, got a reply today and I am booked to see him this thursday (late aftrnoon) Oh I am in Australia, so things are done different here,I was told no more could be done ?and was given no reason why! as I have never had MabThera (Rituxan?)have had chop 1st treatment, then sct and high dose chemo with dacc and beam..Not sure if I have done my quota of chemo? this might be the reason I was told no more,although I still have stem cells in reserve?what for I ask!I also wondered why I can't have and Allogeneic transplant..Please keep in contact with me as I would love to know your out come with the second transplant,gosh they sure did not muck around with you..Only wish I could help you more with your answers..hugs and all the best am keeping my fingers crossed for you.ps how many lot's of chemo have you had?and are you m or f and age group? thanks.
Hi OZ2,Sorry you are dealing with many of the problems I have. I am a female, 52 and I had 6 months of Chop, Rituxan and 2 weeks of DICE and a stem cell transplant in april of 03. All was good till I found a lump in my groin in Jan.04 I had it bioed and found out that my cancer was back. not good news.I came back in stage 3 this time last time it was stage 4 and my spleen was very large.I am now waiting for another transplant this time doner.My sippling are all being tested to find a match.I still have left over cells but they said my best option was doner replacement. My doc was real suprised it came back so fast all my work and scans were good until the one in jan.
My marrow is clear this time last time it wasn't.My blood work is good if it was not for the lump and bio i would have never known it came back I feel real good this time not like last time.I had no enegry and was real tired .I quess it is a good thing I feel ok . That is what keeps me going.I have a doc's app on the 22nd of this month. I hope he has some news for me about the transplant.Waiting is the hardest thing to do.I am not haveing any treatment now so all is good in that sence. SO you are from the land of down under are you male or female? I was beginning to think I was the only one this has happened to .It is nice to have someone that is going throught the same thing to compare notes to. Well Iwill be thinking of you and what you are going through and let me know any updates and I will do the same Good luck and be positive and I will talk to you soon. Thanks for replying it was good to chat. Tazy
Hi. I'm new to this. My husband has NHL diffuse large B cell. Diagnosed in July 2002. Had CHOP plus Rituxin, then 20 radiation treatments and then was in remission. Remission only lasted 8 months, and now he has to get a stem cell transplant. He had chemo 1 month ago to get ready for the SCT, but we were told last week, it didn't work. He's in the hospital again for three more days of high dose chemo, then we wait another 3 weeks for another CT to see if it has shrunk any. Has anyone had this problem? If all goes well this time, by the end of April he will be at Indiana University Medical Center in Indianapolis for the SCT. Jeff is only 51, his lymphoma is wrapped around his bowel, the duodenum, and can't be removed. We're both just scared to death, yesterday he was so stressed his blood pressure went up to 176/107 and they wouldn't start the chemo. Thanks for letting me vent. Kathy
HiTaz and Kathy..feel free to vent any time,,will do you good,Lol.Taz I posted a simular title as this on 26/2/04 think i gave my age away then lol am 53 and f,seem's like we had the transplant around the same time,me the 15 april 03 and u are the first person that I have come accross that has also had a relapse after a sct,glad we are not alone.Yes am in Australia in WA a place called Rockingham..lovely right on the ocean..Yes let's do keep in contact as that would be lovely ,Kathy ,keep positive he can do it ,I have been down this road for nearly 8yrs,first with Breast Cancer ,then three yrs later Dx with dlbcells,am nearly 5 yrs with this,I also had three lots of chemo and the high dose chemo and then sct, might add my nodes did get smaller but never went completely,and the ct in July last yr showed they were still there, the pet scan in dec confirmed it,Ct in Feb ,said they were nearly backto were I started last yr,so many question ,I need the answers.My lymphoma is mainly around the lower abdo's all horrid areas to try and get to..so I wait..SO i will be saying a prayer for both you and hubby and tazy why you all undergo the treatment,will say by for now as it is very late here andI need sleep ! think it is all I do these days!lol.many hugs to you both hang in there.Marion.