Mar 08, 2004 - 12:10 pm
Hello, anyone out there with this disease? I recently have started the journey with this disease. Diagnosed with MM in July due to abnormal protein in blood IGA. Compression fracture on spine found on bone scan and few spots elsewhere were noted in July 03. Hospitalized in August03 with severe back pain, two days later went paralyzed from waist down. Doctors found tumor on spine coming from comprsession fracture. Radiation for couple weeks didn't reduce the tumor. Surgery was only option. First one done Sept. 10th after six hours in I started to hemmorhage and had small heart attack, collapesed lung and woke in Intensive care to be told they had to finish the surgery in two weeks. Second surgery was successful and removed the tumor and vertebrae. Movement began to return and doctors were hopeful that I would walk in six to eight months. Prognosis was good for me as far as the cancer because I am 43 years old and healthy. Treatment started with the Thalidomide and Decadron. My counts were going down and I was almost in remission last month 400-500 range (3000-4000 in Aug). Two weeks ago they were 1100, so doctor said the drugs stopped working. He stared me on Velcade IV twice a week for two weeks and one week off. I have a blood test scheduled with week and will find out more when I see him next week. Stem cell transplant in the future will be discussed when I see him also. I am starting to walk with a walker and doing real good. Would like to hear from others with this disease.