Re: New to this site, Need a friend

jingle
jingle Member Posts: 7
edited March 2014 in Breast Cancer #1
Hi Venetia,

Am so glad you found this site. I had mastectomy a year ago for stage II breast cancer.

You are so wise in seeking support from others who have "been there, done that". Psychologists and the medical community know that there is no substitute for that kind of support.

I hope you can come often to this discussion board. Reading all the past postings helped me feel supported when i first came here. And eventually i ventured into the chat room and that is very supportive as well. If you choose to try the chat room, it may be helpful to let people know that you are new.

I hear you saying that you put on a happy face for others----that is typical of many of us. I suspect that you are a "giver" and are used to taking care of others on many levels. Is is hard for you to accept help from others?

I wonder if you might practice avoiding the automatic reaction to put the other person at ease, and instead recognize how you are really feeling at that moment. This is about you, and how you are doing. People can only know if we tell them.

At age 28, my first cancer I was much like you. At age 50, second cancer I realized it is easier for me to say how things really are.

I find that people are usually understanding when I say: "Am feeling sad (or mad, or glad, or whatever) today." Followed by "but am too worn out at the moment (if this is appropriate)to talk just now. Catch you later." This in order to save your precious bit of energy to spend with your family.

Your husband sounds like a real sweetie and it likely is harder on him in some ways than it may be on you.

If you can let him know (on a regular basis) that it is his support that is your real cure. Docs know the meds,the frequency,the doses, but it is family and friends who give us the spirit to keep going.

If hubby doubts this, ask him to read any 10 personal web pages on this site. See if each author doesn't credit the support of family & friends and higher power for getting through.

If the medical course is way expensive, the "medicine" your husband offers is absolutely priceless. It cannot be bought at any price---some husbands just walk out. Your husband is a man of strength, his mettle has been tested, tell him he is passing with flying colors!

If people see you as an inspiration, don't let the rest of us box you in----just be yourself, be what you want to be.

However, I must warn you that I also see you as an inspiration. If you can get out of bed tomorrow, then you are an inspiration. If you can continue with treatment #3 after chemo #2, then you are an inspiration. If you can plan on reconstruction after the cancerous destruction of your breast, then you are an inspiration. At least to me.

I saw your original post, printed it off (do you think that may be why it disappeared? lol) because it struck several chords within me. I didn't mean to write a novel--I think i am really writing to myself.

Keep us apprised, Gerry (aka jingle)

Comments

  • Vanetia
    Vanetia Member Posts: 19
    Thank you jingle, we all need to be reminded of things sometime.
    I don't know how are why the original post disapeared. But it don't matter anyway.
    I am very glad that I found this site, it has been a great help. I have made some new friends, and we all know we can't never have too many. Especially friends that are going through or have gone through relatively the same thing we have.

    My husband is one of kind. I can't stress this enough too him. So many marriages don't last these days, that we are the minority in our group of friends. Everybody always tells us they want what we have. Well some of it they can have if you know what I mean. Yes my husband loves me and I love him. But nobody should have to face this.
    Anyway, I am giver, I am a wife and a mother. And yes it is hard for me to have someone wait on me. Although everyone tells me it is my turn. My daughter is 15, she and my husband do just about everything now. I only do what I feel like I can. Which these days isn't very much.
    I had an Aunt who went through this, she has been a big help, but lives so far away.

    So thankyou once again for just being there so I can vent.
  • sharonos
    sharonos Member Posts: 2
    Hi, my name is Sharon and I am new. I don't know how to get around or how to talk to people or get into chat rooms. I have breast cancer and 26 lymph nodes removed, 19 with cancer. I have stage 3 cancer. I am a downwinder from southern Utah. I have had 4 A/C chemo treatments, 25 radiation treatments, and today I had my third taxatere treatment. I only have one taxatere treatment left and I am done. I am scheduled for reconstruction next. I am tired of the whole thing. It started last June and has gone on steady since then. I just need a friend who has gone through the whole process and can relate.
  • Roshawn
    Roshawn Member Posts: 2
    Hello my name is Ro. I just read your message and it really uplifted me and made me feel inspired. I am a 32 year old mother of 2 with a loving and supportive husband. I was dianogoised with stage 3 breast cancer and I had 18 lymph nodes removed and had 3 with cancer. I am new to the site and I am so glad I ran into your message. I have completed my 3rd A/C treatment and then I have one more A/C and then I move on to taxotere. I think what keeps me going is my 2 year old daughter and my 6 year old son, their smiling faces keep me uplifted and keep me fighting. When all my hair came out and my aunt brought me some wigs by to wear I was a little sad at first but I knew it was only hair. But then one day my kids and I decided to have a wig party one day and we got all the wigs and each of my kids put on one and we danced around the room to the radio wearing the wigs, my husband walked in and started to take some pictures and we thought we were so silly but he knew if it keeps me from crying it made him happy to. I know sometimes I get tired and fearful of what the future will hold ahead for me but then I stop and think that GOD did not give me the spirit of FEAR, but of HOPE, LOVE and most of all FAITH. I will continue to fight what ever this so called DEVIL of cancer has to dish out because I know I have GOD on my side, great family and friends and support like your encouraging stories. I to am looking forward to breast reconstructive surgery but my doctor suggest that I wait at least a year after my last radiation treatment. I am hoping and prayer that my taxotere treatment will be less painful than the A/C treatment and I know GOD is going to bring me through this just like he has brought me this far. So thank you so much for your encouraging letter it truly helps when your home along and your mind starts to wonder.