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NHL

DANLY1
Posts: 1
Joined: Feb 2004

MY HUSBAND IS 48. WEE FIRT LEANED HE HAD NHL IN JANUARY 2000. IN 2001 HE WENT THROUGH THE CHOPP TREATMENT. NEVER REALLY GOT IN TO REMISSION JUST SLOWED THE CANCER DOWN. THE DOCTOR GANE HIM 2 TO EIGHT YEARS. SINCE HE NEVER GOT IN TO REMISSION WE HAVE NEVER ASK WHAT THE FUTURE HOLDS. HE WORK VERY HARD AND PLAYS JUST AS HARD. TO LOOK AT HIM YOU WOULD NEVER KNOW HE IS SICK. BUT NOW WE WOULD LIKE TO KNOW WHAT MAY HAPPEN...............BUT DO WE REALLY WANT TO KNOW

biojim
Posts: 4
Joined: Jan 2004

Danly1,
I have NHL that was diag. the same time. I was in remission but I start treatment again this week. Don't give up hope, they are comming out with newer and better drugs every day. BAXXAR is a new drug that is supposed to be good for those who do not respond to some of the older (for our time) treatments. Go to www.lymphoma.org and look at all the good stuff they have. Sign up for there "Lymphoma Newsline" it is sent out periodacly. I am 63 and hanging on. Stay positive.
biojim

tkhern
Posts: 2
Joined: Feb 2004

Hi. I was diagnosed with NHL 9 years ago. I, too, was given a "death diagnosis". I was in advanced stage 4 and given six weeks to live. I was too advanced for anything but aggressive chemotherapy - bone marrow would certainly have killed me. I just want to let you know that there is always hope. My doctors are still amazed when I go in for my check ups. I am doing fine - no signs of illness since stopping treatment. Faith and a good sense of humor helped me through the roughest parts.

mkuchma
Posts: 3
Joined: Nov 2002

Sounds like he must be at least mostly NED (no evidence of disease), but hopefully when they wrote him off you guys found some place else to go to and some one else to continue treatment plans -- if not, find someone else and see what they suggest -- I think your husband is doing great, but lets ensure he stays that way, okay!

paul1944
Posts: 2
Joined: Apr 2003

I too was told I would not survive my cancer and that was in 1992. I'm still here! You have to get regular check-ups and keep on top of it. Don't be afraid to ask your doctor a lot of questions. NHL is an agressive cancer and its best to catch it in its early stages. Join a cancer support group and you will find out that you are not the only ones with these concerns. I've had several sessions of chemo and I'm now on a maintenance plan with Rituxin. I have people tell me all the time "you don't look like you have cancer" and I ask them "what am I supposed to look like".

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