Feb 02, 2004 - 6:40 pm
Back in early October, we learned that our 63 year-old Mom has a grade IV Glioblastoma Multiforme in her frontal lobe. The first (and only) symptoms she presented were impaired memory and cognitive skills.
She immediately underwent surgical de-bulking of the tumor, and a couple of weeks later, started three weeks of radiation therapy. When she finished her RT on December 1st, she seemed in good health, and good spirits. She was like 90% herself again! Her follow-up wasn't scheduled until early January, so we concentrated on pulling together a great Christmas for Mom (believing this may be her last since we were given the standard "year").
Around Christmas, we started to notice slight behavioral changes, but very minor and thought it was the side effects of RT. Then, about two weeks ago, she took an alarming turn for the worse, and has since been hospitalized. She is actually worse than she was before she was diagnosed; when she talks, she makes very little sense; almost as if she is in some dream world. It has been unbelievably frustrating, as I would gladly do anything to help her, but she is often unable to formulate a request.
Her MRI has come back clear so far, which has caused much head scratching amongst the MDs. One initial theory was around her medications, but has since been scrubbed as the reason for her rapid decline. The MDs believe the tumor has come back already, but in some form that is evading detection at the moment.
So, why am I here? I guess mostly to find others who have or are currently going through this. There have been many occasions that I have felt completely alone and isolated. For me, life ground to a halt in October. I'm 28, and never expected to become the primary care giver of my Mom so soon.
I also hope I can offer some advice. Spend as much time with your loved ones as you possibly can. You just never know. We had plans to take an art course together and maybe even go on a nice warm vacation together, but it seems that may be cut short. We just thought we had more time. Family support is so important when dealing with something like this, and I feel this is a great opportunity to mend any broken fences there is power and strength in numbers. Don't lose out on this chance to say, "I'm sorry" or "I love you", as again, you just never know...