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Osteosarcoma

TPerigen
Posts: 4
Joined: Jan 2004

Our son was diagnosed with Osteosarcoma in September 2003. He was 14 years old at the time and is now 15 after spending his birthday in the hospital. He is receiving intensive chemotherapy and has just been through limb salvage a month ago. I would love to talk with other people with this same cancer since we have not yet met anyone. Thank you so much for your response.

sadmommy's picture
sadmommy
Posts: 1
Joined: Feb 2004

Hi there. My 12 yr old daughter was diag. with Osteosarcoma in May 2002. She also had limb salvage surgery in Oct.2002. She is currently in remission. This is Paige's 2nd cancer. She also had rhabdomyosarcoma when she was 3 (also in her leg) Please feel free to contact me at lilgirlie5396@hotmail.com

mulligan06
Posts: 1
Joined: Feb 2004

My daughter-in-law had ewings sarcoma of leg at age 18, has been cancer free until this year age 25. She has had yearly MRI, however, the doctors always did a grid search of the existing area and never did MRI of complete leg. She now has a major mass behind the knee and needs treatment but is also pregnant 26 weeks.

Best wishes to you and your son. Stay on top of the followup. It's easier to treat when small.
dj

mdw67
Posts: 3
Joined: Aug 2003

Hello prayermom, I was diagnosis with Osteosarcoma of the right pelvis in Oct 2001. I have gone through the chemo and the surgery. And it's hard at times. If you ever need to talk to someone, please feel free to contact me. I will be here for you. Feel free to write me at misti0220@netzero.com. You son is in my prayers.

bmarcello
Posts: 2
Joined: Feb 2004

My son had an amputation of his right leg on May 12, 2003. His osteosarcoma was in his right iliac crest. He is learning to walk on a prosthesis. We have been through a great deal of suffering, but by the Grace of God we have our son. He is 16 years old. From Louisiana.
His web site is www.eschoolk8.com/Jacob.html
God Bless,
Mom

jwiering's picture
jwiering
Posts: 1
Joined: Feb 2004

Hi my name is Jessica i am 13 years old and i was diagnosed with osteosarcoma in june it was loacated in my left leg right above my knee. i would love to talk to your son ! my e-mail address is jaws_32@hotmail.com if anyone else wants to talk to an osteosarcoma survivor they can also e-mail me. p.s. i had my leg amputated above the knee in september and i'm doing chemo until the end of febuary

jannahoney
Posts: 2
Joined: Mar 2004

Hi Prayermom. I was 18 when I was diagnosed with osteosarcoma in my left tibia. I went through 6 surgeries on my leg and my doctor was able to save it. It was a very long road but now I've been cancer free for 10 years and you'd never know I had cancer unless you see the huge scars running up and down my shin. I don't even have a limp at all and I've had two healthy wonderful children since. You can email me anytime if you would like to know more about it. Good luck!

LeaLea5162
Posts: 1
Joined: Aug 2004

Dear jannahoney my daughter as just finished Chemo for Osteosarcoma she had most of her left tibia taken away,ans as a brace where we turn the screws each day, she does expereince terrible pain as one of the nerves is damaged, did you have anything like this ?

Survivor313
Posts: 1
Joined: Mar 2004

Hi PrayerMom. I am a 18 year old Osteosarcoma survivor. I was diagnosed when I was 15. The tumor was in my left leg abouve my knee. It had gone undetected for so long that it had spread to both of my lungs. I had 6 surgeries total. The doctors were able to save my leg. I went through 18 months of high dose chemo because I relapsed in my lungs while still on treatment. I would love to talk to your son or you. My email is Survivor31386@hotmail.com. Email me anytime.

barrelchick
Posts: 2
Joined: Jan 2003

Hi i was diagnosed with osteosarcoma in 1997 in my right tibia. I was 11 at the time, i am now 18 years old fixing to turn 19, a freshman in college. I went through intensive chemotherapy, and ended up having my leg amputated. if your son wants to talk to me feel free to email me at gamblerchicks@aol.com...and your son and family arein my prayers!

joshmom
Posts: 1
Joined: Jul 2004

My son Josh had osteosarcoma when he was 8 years old. He had a failed rotationplasty limb salvage procedure and ended up with an above the knee amputation. He is now almost 11 years old and is doing well. He has some learning disabilities and is struggling with catching up in school now. Hope you are doing well also.

wan13
Posts: 7
Joined: Apr 2004

Hi

I live in Jersey,Channel Islands.UK. My 17 yr old son was diagnosed with osteosarcoma 2 months ago and has just started the second chemo cycle out of six lasting 8 months. Each time we have to take him on a plane to a hospital in mainland UK and are there for 5 days. Me and my wife take this in turns. I know how you feel and understand how you life is normal one day and is completely turned upside down the next. It will never be the same for our son or ourselves. I would be interested to hear your experiences as I believe you are in the US.It will be interesting to compare treatments over there and in the UK
My son's tumour is just above his ankle and fortunately has not spread. He will have limb salvage surgery to remove part of the fibula bone and the tumour. The success of the operation depends on how much the chemo shrinks the tumour and it will be a tense time when the surgery happens as there is a scenario when he loses his foot. Since diagnoses I have spent days searching the net for information about this rare cancer and have bought books on the cancer and nutrition
I would be interested what you have found out about it, the causes and the treatment
I have quite a few word files with information which I have collected from various sources
I you give me your email address I can send you all these as attachments

Kind regards

Willy Nieuwburg
Island of Jersey ( UK )
Email: willy@newtelsurf.com

jmalone4kids
Posts: 4
Joined: Jul 2007

Hi, my name is Jennifer. I am an osteosarcoma survivor x's 3. I had a right leg amputation above the knee. I was diagnosed at age 13 again at 15 and AGAIN at 18.I am now 30 and almost 13 years cancer free! I would love to talk with you. I feel like God put me on this earth to help other people going through the same thing. My phone # is 615-216-6326 or my email is jmalone4kids@yahoo.com. I hope to speak with you soon.

Jennifer

monicashood
Posts: 1
Joined: Oct 2007

Hello. My name is Monica. I was diagnosed with osteosarcoma at age 27. It was stage 1. I didn't have to go through chemo or radiation. I had surgery in November 2006. The tumor was removed, I had a full knee replacement, resection of veins, etc.. I also lost the nerves- I cannot lift my right foot up anymore. I have to wear an AFO-brace to help me walk without my foot dragging. I am thankful. I hope everyone is doing well.

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