I was diagnosed 6 months ago with nondifferentiated high-grade neuroendocrine carincoma of unknown origin. In lungs, liver, and on rib. 41 - year old male. Have been through 2 rounds of chemo (cisplatin & CPT11). First round was about 50% effective. Found out this week that tumors have become resistant to chemo during 2nd round, tumors have started growing again. Dr. has ordered change to new chemo, Taxal and Epitisode. Starting in 1 week. Looking for any information from survivors of this type of cancer, alternative treatments, etc. Please reply.
Thank you in advance for any and all replies.