CSN Login
Members Online: 12

Osteosarcoma

BradsMom
Posts: 1
Joined: Nov 2003

Hi! My 10 yr. old son Brad was diagnosed with osteosarcoma in October 2003 and has recently found out that his leg will have to be amputated. Has anyone been through what we are going through? We would love to hear from you. Wally1@mchsi.com

Hickster
Posts: 3
Joined: Jan 2004

Hi Brads mom! Yes, I have been through what your are going through right now but I was the child. I was diagnosed with osteosarcoma 20 years ago when I was a teenager and lost my leg because of it. I have written down your e-mail and will send you off a note.

TPerigen
Posts: 4
Joined: Jan 2004

Hi. My son is 15 years old and was diagnosed with Osteosarcoma in September 2003. He just had a limb salvage operation which looks to be successful. I would love to talk to you. TPerigen@hotmail.com

Survivor2001
Posts: 5
Joined: Jan 2004

Hello..I am a survivor of bone cancer. I had a tumor above me knee. I'm 25 now and this happened when I was 21. I feel for you! I pray everything goes well! MaryMc1979@yahoo.com

Victor69
Posts: 2
Joined: Jan 2004

Hi, my name is Victor and I diagnosed with Osteogenic Sarcoma in 1983, this was 20 years ago. I am now 36, married and have a wonderful life. At the time of my diagnoses I was 13yrs old. The hospital that I was admitted to also said that my leg had to be amputated, but my parents decided to get a second opinion from another hospital. A friend of the family recommended to us Memorial Sloan Kettering in NYC. They gave me a 50-50 chance to come out of the operation with my leg. Which was the best chance I was given. The Doctor was Joseph Lane, he said that this operation was done on one of the Kennedy's son and he lost his leg 3 yrs before I was operated. Thank God mine was a success. I became the first successful tibia transplant receipent. My leg has plenty of scares by I didn't lose my leg. So I believe you should get a second and even a third opinion before making this decision. I hope and pray that your son comes out ok from this ordeal

Hickster
Posts: 3
Joined: Jan 2004

This is interesting. I was also diagnosed in 1983 with osteogenic sarcoma in my tibia. We were basically told that any type of bone transplant up to that point had been unsuccesful. I'm glad to hear yours went well. I had the amputation but luckily it has worked out fine for me. No problems whatsoever. I'd be interested to hear more about the type of operation you had.

nikkirae
Posts: 1
Joined: Feb 2004

To Bradsmom-my 11 yr old son was diagnosed in Sept 2003-he had a total knee replacement and 1/2 of his shin bone removed on Dec. 23. Now we are doing physical therapy and going back in for the rest of the chemo treatments-all 38 weeks. I hope your son is alright-we are trying to keep our attitude positive but sometimes it is hard! I would love to talk to you-I will email you.

TPerigen
Posts: 4
Joined: Jan 2004

nikkirae - My son who is now 15 (was 14 at the time of diagnosis) was also diagnosed in Sept. 2003. On Dec. 29th he had 7 inches of his thigh bone and a total knee replacement done. We are also doing physical therapy and have continued with chemo - all 38 weeks, too. Would love to talk to you - my e-mail address is TPerigen@hotmail.com

bmarcello
Posts: 2
Joined: Feb 2004

Hello BradsMom,
I'm Jacob's Mom from Louisiana. Jacob was diagnosed with osteosarcoma of the hip January 2003. We went through half of the chemo protocal and then surgery was on May 12th. His right hip(iliac)and leg was amputated. He was a very sick 15 year old at the time and we were afraid for his life. We prayed without ceasing and by the Grace of God his life was spared. He is learning to walk with a prosthesis and we feel extremely blessed to have a healthy 16 year old still with us. Yes, it was the most difficult experience ever in our lives, however we are better because of this amount of suffering. I am writing a book and would love to help you. I have become an advocate for terminally ill cancer in children and Jacob has a web site. Please visit. www.eschoolk8.com/Jacob.html
Advice:
Pray for the doctors and caregivers of your son, especially for the right decisions. A leg lost is not as critical as a life. God will get you through. Give it all to Him as we are not in control.
God Bless,
Jacob's Mom

soxx
Posts: 1
Joined: Mar 2004

Hi. I'm Sarah's mom. Sarah was diagnosed with osteo in Sept.2001 when she was 12 yrs. old. She had a tumor on her femur which shattered her bone. The Dr.removed aprox. 7 inches of her femur and replaced it with a cadavor bone. She is doing fine. Where was brad's tumor? There are several alternatives to amputation.(although every case is different) Please ask for another opinion. Sarah was admitted to Syracuse University Hospital in upstate NY. They are wonderful there. Please let me know how Brad is doing and I will pray for all of you.

colpownj
Posts: 3
Joined: Mar 2004

My daughter was diagnosed in June 2003. She refused amputation and found doctors at Sloan Kettering who agreed that it was possible to cure her with chemo and limb salvage surgery. She finished treatment last month and is walking on her own leg after a bone transplant. She expects to be back to her teaching job next fall. Good luck and don't give up. During her treatment we met lots of families who have come through this

o2cute4u
Posts: 1
Joined: Jun 2004

Hi. My 9 year old sister was diagnosed with osteosarcoma in late May of 2002. She was "cured" in March of 2003. She relapsed in July of that same year. This morning, on June 3rd of 2004, she had her leg amputated. It was her whole leg. I haven't seen her yet, but I will be going to the hospital later on. I think that you should try alternative medicine. It was actually working on my sister, but a number of reasons pressured us to amputate the leg. Best of luck!

osteosarcoma
Posts: 3
Joined: Sep 2003

Sorry to hear about your sister. But the same exact thing happened to my son. He relapsed and will have his leg amputated next month.He is sixteen years old and we live in Mexico. He was diagnosed in Nov. of 2002, and relapsed in May of this year.He is in chemo right know..

colpownj
Posts: 3
Joined: Mar 2004

My daughter was diagnosed at 23 with a 14 cm tumor in her tibia. She had chemo and limb salvage surgery starting in July 2003 and ending late January 2004 at Sloan Kettering. She has been cancer free for six months. She is checked every month since her high grade small cell os is aggressive. So far so good.

mdog
Posts: 1
Joined: Jul 2009

Hi!!! you just need to stay positive. I was 16 when I was diagnosed and I just got the news that I am in remission. I have never been so happy! But tell him to keep his chin up, I was faced with losing my arm but with the support of my family I made it. Keep a positive surrounding and offer emotional care when needed. It is hard to stay positive but if the envireoment is there it gets easier. just never give up! I am 19 years old and cancer FREE!!!! He is srtong, he can win.

jester1803
Posts: 2
Joined: Sep 2009

hi my name is james i had it in my shoulder when i was 12 i was playing football for my middle school plus i was playing little league so my doctor shrugged it off he said i just pulled the muscle badly and after 2 monthes i knew it was cancer from the beggining somehow i just knew then he did tests and they came back positive i lost my shoulder blade to it and they never put anything in its place so now i am embarrsed of my scars cuz that isnt the only type i have had i have been dealing with cancer all my life but i am still in remission from the age 14 and am now 24 but i still hate my scara i dont take my shirt off if i can help it and when i see them it makes me sick knowing that im deformed and all my mother says is get over it but its kinda hard to go over something as big as cancer none of my friends understand what its like cuz they havent had it so i turned here for surport

zachsdad
Posts: 1
Joined: Sep 2009

I had a large in my pelvis when I was 32 yrs old. It was the size of a football and a half. I had surgery in oct of that year.The cancer came back in about a year at that point I went though radition treatments. The cancer returned a couplemore times the last time it had growen around the main blood vessel to my leg so they had to remove my leg, hip kidney and everything on left side. I was 40 yrs old at that time. I'm now 52 yrs old and have been cancer free ever since. I'm sure things have improved since than as far as treatments are concerned. I made it with the love and support from my family and friends. I wish your son and your family well you will be in my prayers.
Bill Smith

Alexmom
Posts: 2
Joined: Sep 2009

my son was dx'd in October 01 and had a surgery called the van ness where they remove the tumor and most of the surrounding bone (right knee) most of his right leg below the knee rotate the remainder of the leg including the foot and reattach it to the rest of the existing femur. When you look at him his foot is on backwards but now continues to work as his new knee. It is simply amazing what they have done for him. He was diagnosed stage 4 at the age of 7 remission for 5 years, went for a routine xray where they found a ping pong ball size tumor in his lower right lobe. They removed most of the lobe in 2007 and now we are clear again 2 1/2 years. We currently are in for scans every 4 months but it certainly is worth it. He is now 15 and is an avid skateboarder and snowboarder. Thank goodness for people like Terry Fox who ran across Canada (with the same cancer) to help fund research for this deadly disease.

Hou6591
Posts: 3
Joined: Oct 2009

Hi BradsMom! My 14 year old daughter was diagnosed with osteosarcoma in her right tibia this past March, she did chemo until July and then she had limb salvage surgery. Now she's going through more chemo. Her tumor was located about 5 inches below her right knee and we ultimately agreed to proceed with an allograft, although she seriously considered amputation because of her previous sports involvement. I cannot emphasize enough the need to be as fully informed of all of your options as possible, of course you may have already asked all of the questions but we examined titanium prosthetics, allografts, and amputation at length and discussed them with my daughter's surgeon in great detail. Good luck to you, your son, and your family!

Victor 69
Posts: 3
Joined: Apr 2012

Hi, Im Victor69 who has had the first sucessful tibia transplant. I was operated in Memorial Slone Kettering in New York. I recomed that if anyone needs treatment for any type of cancer to go there. My grandmother had colon cancer and she was also saved their in 1991, she has passed since but she didnt die from it. She was cured for 7 years before her death. I believe anyone can be saved their, God willing...

Victor 69
Posts: 3
Joined: Apr 2012

Hi, Im Victor69 who has had the first sucessful tibia transplant. I was operated in Memorial Slone Kettering in New York. I recomed that if anyone needs treatment for any type of cancer to go there. My grandmother had colon cancer and she was also saved their in 1991, she has passed since but she didnt die from it. She was cured for 7 years before her death. I believe anyone can be saved their, God willing...

Victor 69
Posts: 3
Joined: Apr 2012

Hi, Im Victor69 who has had the first sucessful tibia transplant. I was operated in Memorial Slone Kettering in New York. I recomed that if anyone needs treatment for any type of cancer to go there. My grandmother had colon cancer and she was also saved their in 1991, she has passed since but she didnt die from it. She was cured for 7 years before her death. I believe anyone can be saved their, God willing...

Roxanne_20
Posts: 1
Joined: Apr 2012

First off, i am new to this site.i do not have cancer.but here's my story and i hope maybe someone can respond to my question.i am a healthy 20 year old female.a few months ago, i nocticed a strange lump on my right leg just on the side of my tibia bone.i didnt pay much attention to it because it didn't hurt.but recently, it has gotten painful especially at night.(right now it is 11:55 p.m and i have not been able to fall asleep because of the pain on my shins).i also discovered another lump on my left shin, but this lump is smaller than the one on my right.i went to the doctor about a month ago and they did an xray on my right leg but the doc said "oh its nothing.everyone gets bumps and lumps."he sent me to go see another doctor but my appt. isn't until May 7th.the pain is getting unbearable at night:(.please give me an opinion.can this be cancer?

chump4040
Posts: 4
Joined: Oct 2012

Hi I am just about 18 and am battling osteosarcoma since I was 16. I was like ur story so far. Had pain in my knee and went to doctor. They said nothin was wrong, they were wrong!! Make sure u get a x ray or MRI and hav a well recommended doctor. Will save u trouble if u hav cancer and found out early. I almost found out to late and am very lucky to be alive. If i found out early I would not hav my leg gone or hav cancer in both lungs( left lung surgery).

virama
Posts: 1
Joined: Feb 2012

Hi chump i went through your story. i'm also osteo sarcoma survivor. The tumor was on right leg and affected bone was removed after 6 chemo and a major operation. Anyways how are you now? you told that your lungs are also get affected, so again went throgh chemo and surgery? how is your lungs now?

levilong
Posts: 1
Joined: May 2013

Hello I was diagnosed when I was 17 I had 6 mo of chemo followed by surgery to remove 3/4 of my femur, knee joint and partial tibia.  I followed my surgery by another 6 months of Chemo.  After a year I was forced to go back into surgery again due to the implant in my hip coming loose.   I was then put into surgery experimental at the time that did not work being on crutches for a year.  I was asked and told multiple times by multiple Doctors that I should just amputate my leg to save my self the trouble.  After 2 specialists 3 more surgeries a better technique and 16 years I still have my leg!  I do know at some point in my life this will not be the case.  How does this apply to your case I’m not sure but maybe it will give you hope..

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2015 © Cancer Survivors Network