Dec 10, 2003 - 1:07 pm
in May 2002 my husband had surgery for colorectal cancer. It has spread to the lymph nodes so had radiation and chemo for 6 weeks. Then in October he had chemo again for 4 months. In May of 2003 he found the cancer had metastasis to the brain, a large tumor in the cerebellum and a smaller one in the thalamus.
He immediately went through 12 full head radiation treatments. The tumors were too larger to operate on. He started getting worse in August and the dr. said the tumors had reduced enough to have gamma knife surgery. He did great for 4 weeks but it has been down hill since. At one point he was on 36 mg. of Decadron. He is now down to 16 mg. of Decadron a day. The problem is he has to use a wheel chair all the time now. Sleeps a lot and has more bad days than good days. His neurologist has him on DIlantin and is just watching him now. The MRI looks good and no new tumors. The oncologist wants to start a series of chemo treatments as soon as he is strong enough. At this rate that may be never. We don't understand why he is so weak, no energy, blurred vision, passes out easily when he stands over 3/4 min. at a time? Does any one have any ideas or have you been through this. It.s going on 5 months since the gamma surgery. It seems he should be improving.