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Pain & appetite after lung removal

jalexander
Posts: 31
Joined: Nov 2003

I'm 42, stage 3b, had right lung removed 01/15/03. Looks like 90 percent chance of cure! I am so thankful since I have young kids. Anyone out there with info about the pain after surgery. It's been 10 months and I still have pain that feels like it's muscular or bone related within the chest cavity. The doctors tell me it's nerve endings along the ribs since they had to pry them apart during surgery. I can live with it, no problem, just wondered if anyone else had similar pain. Also, I can't seem to eat as much as I did before surgery. That's probably a good thing since I'm a little overweight (5'11" 210 lbs), but I just wondered if anyone else out there felt the same way? Thanks.

bobmc's picture
bobmc
Posts: 49
Joined: Nov 2002

Hello Jalexander;

I'm a bit over 2 and 1/2 years post op and it's the same for me. The pain is actually a bit worse now than after the first year and seems to be more bone or nerve than muscle. It's also more to the back and shoulders. My left lung was removed and the pain in that area is'nt too bad(seems to be more from overuse), the more troublesome is more in the right center of the back along the spine. I'm having a bone scan done this Fri. to rule out met's. I really think that things are just shifting a bit and my good lung is enlarging to compensate. I'm told this is what happins and it does makes sense. I also take celebrex for arthritus which works well. You may want to ask your doc. about it. I know quite a few others that have had surgery and many take it or vioxx for this pain.
My appitite like yours has also changed. I eat smaller meals and must eat slower. I have no idea why but many of us have that in common. Also, you forgot about the excessive gas and ability to belch like a beer drinking truck driver. No offense to anyone, but this is also pretty common.
hope this helps and my best to ya, you can PM me here on ACS or reach me at lungcancersurvivors.org( boards) if ya need to.
God bless and be well
Bobmc- NSCLC- stageIIB, left pneumonectomy 5/2/01; " absolutely insist on enjoying life today!"

jalexander
Posts: 31
Joined: Nov 2003

I saw in one of your later postings that they have found two brain tumors. My prayers are with you. Are they operable? How did your bone scan turn out? Thanks.

EllenG
Posts: 2
Joined: Dec 2003

I had my lung and lung lining removed 5 years ago and after 2 years of being in so much pain, I was diagnosed with permanent nerve damage. I'm on daily regime of neurotin. I was stage 3b too, it has since metastasized to the liver (4 times).
I continue on chemo.
Wishing you continued health.

eab
Posts: 2
Joined: Nov 2003

I am 43 and had my lobectomy (lower left lobe)5 wks ago. I had a terrible post-op w/ nausea and vomiting, consistent dry cough, and all kinds of GI problems. What I am experiencing now is cough, acid reflux, and sometimes diarhia. All of which are better than before but, I too am curious when it will go away. I did not have these problems prior to surgery. As fas as the pain, well I still have them in different locations, but that has gotten better too. I am curious too if any of it will completely go away. The pain that I mostly experience occur when I cough. Also,I occasionally get this shooting pain in the middle of my spine. I also have occasional tightning on my upper left chest and below the left breast. I supposed I haven't been too worried about it because it is better that 5 weeks ago, but I would be concerned if it continues.

pacisan's picture
pacisan
Posts: 21
Joined: Jan 2002

Hi...I had my left lung removed in June of 2001. I still have pain over the entire left side. I find relief with massage and a hot tub..but nothing is permanent. I also have steroidal epidurals, they are supposedly for my neck (digenerative joint disease), but they also help my back.I don't belive that you can have surgery over an area as massive as it is when they remove a lung and not have some kind of permanent damage to nerves, muscle and tissue. Do what you can to relieve the symptoms, but don't let it prevent you from being a survivor...you can beat the pain..keep in touch..let me know how the tests go..I'll be thinking of you..Sandra

KSGRL66's picture
KSGRL66
Posts: 5
Joined: Apr 2011

Sandra,

 

Thank you for posting this. I have been dealing with this pain for so long and was starting to get really depressed. I see now there are others having the same problem.

 

Tammy

 

casinotomm
Posts: 6
Joined: Jan 2004

I was diagnosed with large cell carcinoma cancer in july of 2000 when i had an accident at sixflags over kentucky theme park when i hit my chest on the saftey bar and went to the hospital for the pain and they saw a tumer as big as an orange in my left lung.So they took half of my left lung and said a little got into my chest so i had lots of rad and chemo.The dr told me the same as my chest and side would be numb or hurt for awhile and yes it still hurts today almost 3 yrs later .I dont think it will ever stop hurting not to mention I now have a hard time breathing and am now on disabilty because of it.I have a 3 yr old born just before my surgery and he is hard to chase in my condition.Well my side hurts alot to answer your question so I hope yours gets better as I to am 43 yrs old.

sivy
Posts: 1
Joined: Jan 2004

Last April I had a thoracotomy which showed no cancer initially. After contracting a DVT from the surgery I was hospitalized and informed that the later biopsy did show non-small-cell bronchioalveolar cancer. I've never smoked. The only treatment was more surgery to remove the right lobe. I've recovered from the surgery and feel very lucky not to have had chemotherapy or radiation. But I do have a residual pain across my diaphragm. It gets worse after activity or lifting, but it never disappears. It's an uncomfortably claustrophobic feeling like having a rubber band around my midriff all the time. Has anyone else experienced similar discomfort? Thank you.

Alloyd
Posts: 9
Joined: Jan 2004

I have a lot of back & rib pain. 16 months ago I had my left lung removed stage 3a. I now have a slight curve to my spine from the lung gone. I also have nerve problems from radiation to my spine my Dr. says. Still it's great to be alive.

KSGRL66's picture
KSGRL66
Posts: 5
Joined: Apr 2011

I have also been having pain in my side since they removed my right lung. Sometimes when I lean to the right I have this feeling like something is being twisted and I can stand up. I have to lay down and rub it out. My doctor did an MRI and said they didn't see anything abnormal. He did put me on Flexirill to help relax the muscle and I have also tried rubbing the area and heating pad. When I eat to much it hurts even worse. 

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