Oct 20, 2003 - 10:29 pm
Another newbie to this list. I just started reading through this threaded discussion list this evening and this is exactly the type of forum I have been looking for on the web. My mom was diagnosed with colon cancer in the summer of 2002 at age 58. Surgery was performed, part of her colon removed, 18 lymph nodes were sampled and came back clean. NO CHEMO was recommended as the pathology report was good. She proceeded to have her CEA level checked every 3 months. Each time, the CEA level was considered in the "acceptable" range. Last month, just one year after surgery, BAM, she is now in Stage IV - her liver has 6 spots total on both sides; her left lung has several growths in the lower left lobe (1 1/2" is the largest there); her right lung has multiple growths in the upper right lobe; multiple growths were detected in the mediastinum (tissue between/around lungs); and cancer was detected in atleast one or two lymph nodes in the chest. My first and still current reaction is to go and kick her surgeons you know what. Why was chemo not recommended after her surgery last year? Why was testing her CEA level the only tool used to measure whether or not the cancer was spreading? My mom is taking it like a trooper. She says she is not going to go easily, but she has no right to complain as she has led a blessed life. I wish I would have dedicated more time last year to learn the in and outs of this disease. If I had, maybe my family would not have received the shock of their lives this month. We listened to the doctors last year, maybe out of ignorance, maybe out of liking the answer they gave us last year (she was clean). Now we're paying for it. I now spend endless hours reading up of the disease, treatments, anything and everything that I can and then forward to her. More importantly I "screen" through the stuff that I find so she doesn't see all the terrifying things I do on the web - which brings me to writing this message. While I continue to research the web and read postings on this site from you good people, the best thing I can do for my mom is forward her positive success stories from people with Stage IV and particularly those with colon cancer that spread to both the liver and the lung. Whenever I send her an email about a success story I find, she points out that it only spread to the liver or just one other organ-and that's not my situation (she has it in more places). Any supportive/inspirational websites, books, articles, personal stories from anyone in this discussion group would be great. She had her mediport put in today and starts a chemo regiment of 5FU with Camptosar tomorrow at 3 days of treatment every 2 weeks. God bless all of you fighting the good fight right now and having the courage to share your stroies here. I apologize for the long winded message, but when I registered for this group it said I could vent :-) Thank you in advance for your help. BTW, is anyone aware of the article the floated around a month or two ago about SpongeBob Squarepants. SpongeBob was clinically proven to improve depression in patients who participated in the test. No lie. That seems to be true here as well.