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Skin Lymphoma

hzeckel's picture
hzeckel
Posts: 9
Joined: Jun 2002

I am interested in talking to people who have what I have, which is Cutaneous Anaplastic Large Cell Lymphoma. It is not Mycosis Fungoides and it is closely related to Lymphomatoid Papulosis. It is rare enough so I realize I may not get any replies.

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hzeckel's picture
hzeckel
Posts: 9
Joined: Jun 2002

Thanks. Will do.

dbrown296
Posts: 1
Joined: Oct 2003

In June of 2002 I was diagnosed with primary cutaneous lymphoma (B Cell). I recieved 6 cycles of CHOP/Rituxan and 25 radiation treatments. I am currently in remission and have a nice scar on my back as a reminder. I would be glad to answer any questions I can, I realize we didn't have exactly the same type. Good Luck!

brianjw
Posts: 9
Joined: Aug 2005

Hi. Hope you're OK. I have cutaneous large B-cell lymphoma. I'm 59. Started in 2002, had 6 repeat lesions on upper body and head, averaging 1 new one every 6-9 months. All have been treated with ionizing radiation till now. My doctors want me to go to R-CHOP now. Slight consensus. My lead oncologist lost the fight to keep me away from chemo. He's a chemo specialist. What can you tell me about R-CHOP? I'm terrified of what 6 cycles will do to me.

AuthorUnknown
Posts: 1561
Joined: May 2006

Hello,

In case this person is no longer checking this discussion board frequently, you may want to contact them using the CSN internal email system. You can do this by clicking on the envelope icon below their original message.

Best wishes on your treatment.

Take care and be well,

Dana
CSN Dana

brianjw
Posts: 9
Joined: Aug 2005

Thx!