CSN Login
Members Online: 11

need help!!!!!!!

cbecker
Posts: 89
Joined: Sep 2002

Has anyone been on the new FDA approved drug Iressa? If so did it help and what type of cancer did it respond too. Just wondering. My husband just started it two weeks ago and so far no bad side effects. Just hope it helps. If anyone can let me know anything about it, I would appreciate it. Thanks, cb

CHANG343
Posts: 3
Joined: Sep 2003

Checker
I was DX'd with Adenocarcinoma 10/00.
Chemo,Rad,Chemo and Rad,Chemo.
7/02 Onco, and Pulmonary Spclst sed there was nothing more they could do, snd turned me over to Hospice.

I was admitted into IRESSA expanded compassionate
clinical trial 17 AUG 03.
Out of wheelchair in SEP.
Off 24/7 Oxy in OCT.

NOV 02 CT showed I was "stable".
CT's,MRI's, PET have ALL been "stable" thrue JUN 03.

Next CT is sked for late SEP.

Iressa only works for about 15% of people.
They have no way of predicting which 15%.
MD can usually tell if it's working by 2nd Month.

The median extension of surviorability on Iressa
is 12 Months.
My Doc tells me that, there are people who have been on Iressa for FOUR Years, and are still stable.

My major side effects have been:
rash/itching, Acne, diarrhea and fatigue.
My "quality of life" since I got off Chemo and Rad
has improved by "order of magnitude" I have a life!
There are Prescriptions that they can give you to
alleviate itching, diarrhea, and Acne.

While in "Trials", I received the Iressa from AstraZeneca at NO Cost.
Since FDA approval I have to pay for it.
It is FDA approved for:
"treatment of last resort for lung cancer patients
to improve their quality of life"
My insurance pays for it. I understand that it costs "around $1600 a Month". I am charged a Co-Pay of $9.00.

I am 72, retired US Navy.

Will answer anything you want to talk about by email.
I am trying to get an Iressa "users group" together, so we can share our expeiences and knowledge. Any suggestions?

Bill Gunn
San Diego CA
chang343@aol.com

cbecker
Posts: 89
Joined: Sep 2002

Bill, I did email you and it came back error in address. I was interested in the medicine you took for the rash since my husband has develope it. Do you have a fax number where I can send you my original email. It is quite lengthy and I really do not want to retype it unless I have too. I used chang343@aol.com Is that correct. When I tried emailing you thru the ACS email it did not show you in the system. Or do you have a phone number (if you would like to share) my cell# 785-221-2149 Thanks Candy Becker (cbecker) not checker

cbecker
Posts: 89
Joined: Sep 2002

Bill, I did email you and it came back error in address. I was interested in the medicine you took for the rash since my husband has develope it. Do you have a fax number where I can send you my original email. It is quite lengthy and I really do not want to retype it unless I have too. I used chang343@aol.com Is that correct. When I tried emailing you thru the ACS email it did not show you in the system. Or do you have a phone number (if you would like to share) from cbecker not checker....

luvmydad
Posts: 3
Joined: Oct 2003

Hi,
I am so glad to hear your are doing so great thanks to the Iressa!!!!!!
My dad is a retired Marine and has stage IIIB lung cancer. He finished chemo/rad over two months ago and is still fatigued, depressed and losing weight though he is improving a bit with each passing week.
He is scheduled for a PET Scan this Thursday for any tumors/cells and if so will begin the Iressa.
His Oncologist is a real A$$8#?!! and said he does not think the Iressa will help. His pulmonary doctor who is a God send says otherwise.
Any other info you may have or feedback would be greatly appreciated!
I am trying to get him onto this site as a member!

Schilke
Posts: 1
Joined: Oct 2004

Bill,
I just started taking Iressa and have developed acne from it. Did you have this as a reaction and if so what med did you take and was it effective ?

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network