CSN Login
Members Online: 7

Maintenence Chemo

denuie
Posts: 2
Joined: May 2003

I am looking for information concerning maintence chemo. I was diagnosised with stage 4a ov/ca in Feb. Will finish my 6th round of chemo(carboplatin/taxotere) on the 15th of August and my oncologist is now introducing the possibility of doing monthly maintenence chemo. I am currently in remission (CA125 is 11) and have weathered chemo remarkably well. Can anyone give me any insite on maintenence chemo for ov/ca. Thanks
Denuie

ashuma1
Posts: 12
Joined: Aug 2003

I have Stage IIIC ovarian cancer. My gynecologic oncologist is up on the latest clinical trails/protocols. I also started with 8 doses of carboplatin and taxol every three weeks (two extra doses due to severe bone marrow suppression so they had to lower doses slightly). Now I am starting on taxol-only every four weeks for 12 months. He taught gynecologic oncology at a Washington DC medical center before going into private practice and I know he keeps up with all the latest info. Best of luck and God bless to you.....

denuie
Posts: 2
Joined: May 2003

Thanks for sharing your experience. I'd be interested in knowing how the monthly chemo works out for you. I'm not sure what my "drug of choice" will be as I had a severe allergic reaction to Taxol...so I'm pretty sure it won't be Taxol...LOL...God Bless and keep fighting!

dawnay's picture
dawnay
Posts: 3
Joined: Aug 2003

I was in your exact same situation. When I finished chemo in June, my CA125 was a 8. Since your CA125 is so low, I do not recommand maintenence chemo. My doctor introduced me to the same thing just a precaution. But also, maint. chemo has serious permanent side effects. Permanent bone marrow depression and tingling in your fingers are 2 just to name a few. I'm currently having a CA125 done every 6 months just to make sure I'm ok, without maintenence chemo.

Airwayqueen
Posts: 14
Joined: Apr 2003

Hello!
I'm also in remission, but my doctor didn't suggest maintenance chemo. I have my blood workup done every three months and X-rays.

Gayla

mirtle
Posts: 32
Joined: Mar 2003

I am currently doing maintenance chemo because I was diagnosed with Stage IV Ov/c in 1993 and it recurred in 2002. I had my CA125 checked every three months for 9 years. When it started to elevate, a laproscope and ct scans found nothing. Eventually, two small lesions were seen and I started on Doxil maintenance which had pretty mild side effects. Now that is no longer effective so I am back to Taxol/Carbo cocktails every third week. I am now STABLE (at least that's what they think, ha, ha). They are finding that Ov/C is more of a chronic disease. I don't want you to think that you can't be cured but I don't want to sugar coat anything either. I enjoyed 9 years of life that I probably would not have without the drugs. And right now I believe that maintaining this stability will keep me alive for awhile longer and that is great. Keep a positive attitude and go with what you feel comfortable doing. If maintenance will make you feel more secure -- do it. The side effects of the chemo can be annoying, but consider the alternative. Good luck!!

ConnieM
Posts: 9
Joined: Jan 2004

Dear Denuie:
I am curious to find out what you decided to do?! Are you still in remission? I sure hope so.
I was diagnosed in 1999 with stage IIID ovarian Cancer and have gone through 3 recurrences with surgery and chemos following. In October 2003 my tumormarkers were at 720 and I was staring another round of chemo straight in the eye again. But this time I decided to try something different. Why repeat what had not worked 3 times before??? I went to see Dr. Stephen Edelson in Atlanta and took his treatments. My tumormarkers are now below 20 and I am officially in remission, without any nasty side effects. I will never have regular chemo again.
If you want to talk to the man, please give him a call at 404 841-0088. He has helped many cancer patients!
ConnieM

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network