Jul 15, 2003 - 10:10 am
Hi. I only recently found this web site and group. I'm Jim, age 40. I was diagnosed with embryonal cell carcinoma of the right testis in 1996; orchidectomy, lymphanodectomy, and chmotherapy followed.
The chemo pretty much wiped out the Leydig cells of the remaining testis, so they decided on testosterone replacement therapy. The patches didn't do the trick, so my wife gives me 1 ml Delatestryl every two weeks. They started me at once per two weeks with the intent of spacing them out farther once they knew what level it put me at, but at the end of two weeks my levels were barely normal, so they kept me there.
I have a number of symptoms of low testosterone: pot belly, fatigue, depression (although I've had depression all my life), baldness (my family isn't known for losing their hair, even at advanced age). Recently, though, my GP at my health plan tested me and said my testosterone levels were through the roof -- over 1300.
Now, this seems unbelievable to me. I have no symptoms of excess testosterone. Further, she didn't say whether it was free or bound testosterone, and hadn't asked me how long ago my last injection was. As it happens, I was nearly at the end of my two-week cycle. I have a hard time believing that my levels were that high that late in the cycle. However, the GP sticks by the test, refuses to retest, and refuses to refer me to an endocrinologist, although she will refer me to a urologist (because "that's the standard referral for testicular cancer"). (This health plan is notorious for "going by the book".)
What I want to know is, am I off-base? Have I missed something, or is my logic flawed; or does this just not make sense?
Thanks for any advice.