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Endometrial - stage 3c
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Jul 12, 2003 - 1:41 am
I've had a hysterectomy and will soon start radiation followed by chemotherapy. Is there anyone out there that is in the similiar stage of cancer that I am that would like to talk with me? |
Joined: Jan 2002
hi my name is ronnie and i am a survivor of stage 3 endometrial cancer, diagnosed 12/99 at 47,,,,i also had radiation and 6mos of chemo...and today i am great, healthy and happy to be replying to your note ...let me know how i can help....
Joined: Jul 2003
hi Ronnie...thank you for replying to my message. I don't find alot of people that have been in my shoes before. So tell me what symptoms you had with the radiation? Also I'm having Cisplatin and Doxorubicin for chemo. Did you have similiar medicines and what side effects did you have??? Julie
Joined: Jan 2002
hi julie how have you been? i had no ill effects from the radiation, slight diarrhea after all the treatments were done..the chemo was harder, nausea and a metallic taste in my mouth..i was on taxol and cisplatin...but i got through it and pray that i stay healthy...smile everyday:) let me know how you are doing..my email is bestpupsx2@yahoo.com.....i would love to keep in touch with you..i also did not know alot of gals with endometrial ca....be well ronnie
Joined: Oct 2004
annabel heath
had the same as you . did you have CA 125 taken
my Email is annabel_heath@hotmail.com
Joined: Aug 2005
hojo,
I was recently diagnosed with stage IIIC endometrial cancer (confined to uterus but in the inguinal lymph nodes) and had surgery, radiation with cisplatin, and I am now starting 3 cycles of chemotherapy with carbo/taxol. I am so happy to hear that you are doing well. As I get closer to the completion of my therapy, the more I get scared about those follow-up apppointments. I want to live my life and not be in fear, but I don't know how I will manage the next few years "looking over my shoulder" and tracking CA125 levels and CT scans. How did you do it? What helped you cope when the treatment was all done?
Thanks for your help and take care.
-millie
Joined: Jul 2003
I had only radiation (25 external, 3 brachytherapy). Main side effects are diarrhea, MOOD SWINGS, fatigue and depression. I finished my last treatment on Aug 3rd, and am just now feeling like my 'normal' self again. It is exhausting, but you will get through it. Just remember, all the side effects will disappear after treatment is finished.
Simchah
Joined: Oct 2003
I had a hysterectomy in Aug. of 2002, followed by 6 wks. of external radiation, then 24 hrs. of internal radiation and then 5 cycles of chemo with the same drugs you're getting. I was sick from Day 1 of radiation, but did better with chemo although my blood levels were severely affected. I had to have transfusions several times. I, too, do not know of many people with endometrial cancer and even fewer who had to have treatment beyond surgery. It's nice to talk to others who have been there.
Joined: Dec 2003
My endometrial cancer has recurred after 3 years cancer-free. I had a radical hysterectomy but refused against medical advice chemo and radiation. I realize my mistake and am now preparing to treat it more aggressively.
Joined: Nov 2003
looking for anyone with stage 3c papillary serous type
Joined: Oct 2004
annabel_heath
dear ladyebc
my subject is under uterus cancer:
What chemo Uterus(clear+serous)?
.
In august 2003 I was fainting from loss of blood (long periods) . Had surgery to remove Uterus cancer (clear cell and serous cell type carcinoma)stage 2 or 3(invaded cervix) by full hysterectomy. I had 3 lots of chemo carboplatin/epirubisin, then 6 weeks radiation treatment followed by 3 more lots of carboplatin/epirubisin . CA 125 was 50 after surgery decreased to 30 after first chemo then went up to 58 before radiation treatment. After radiation treatment took it down to 14. However final 3 lots of chemo (chemoscarboplatin/epirubisin) increased to 140. I had to have a second surgery to remove 2cm secondary under left hip bone and removal of omentum in june 2004. My CA 125 a little over 2 months ago was back at 80. I am afraid to have another CA 125 test as I am told by doctors that it will probably go up again and that the cancer although not visible at macro level is still there at the molecular level.Doctors say it is just a matter of time(i.e. months) before it shows up on CT scan when CA 125 increases.
CA 125 (cancer antigen 125) should be less than 30. Doctors do not recommend any further treatment until cancer returns on CT scan. Anyone know what other chemo I should try to lower my CA 125. With ovarian cancer with clear and serous cell type same carboplatin/epirubisin and taxol combination is used and usually the CA 125 goes down from hundreds to less than 10. However no successful scientific studies have shown carboplatin/epirubisin on clear and serous cell Uterus cancer is successful.Doctors say not many or any studies have been done on this type of cancer as very rare(less 5% of women who get uterus cancer have either the clear or serous cell type, both very aggressive cancers). Most common Uterus cancer(different cell types to mine) has a survival of 80% or more over 5 year period. However my cell type (clear + serous) has a survival rate over 5 years of less than 5% as my cancer is very aggressive. Does anyone know of other chemo I can try? Maybe Taxol? I am only 46 years old with three children aged 18, 16 and 15 and a loving husband that need me alive
My Email is: annabel_heath@hotmail.com
I also have a web page under our cancer survivor network.
Ladyebc,
Your chemo seemed to work as I had the same as you carboplatin/epirubisin but it did not work
as cancer returned and my CA 125 increased to 80
2mths ago. Normal level is 30. What is your Ca 125 and did it decrease with chemo. Also I had clear cell in addition to serous cell.
Looking forward to hearing from you. Women with our type of Uterus cancer are rare only 5% of all
women with uterus cancer get the very aggressive clear or serous cell types.
Regards and best wishes,
Annabel Heath Canberra Australia
Joined: Dec 2003
Please learn from my experience. I had a radical hysterectomy 3 years ago but refused against medical advice chemo and radiation and now just learned my cancer returned. Although they found no spread at the time of my hysterectomy, the cancer has returned. Adjuvent therapy is very important to ensure survivorship. Now I am getting the care I should have gotten 3 years ago. I have to stay in the present and move forward.