My husband Ron, who is 45, has a high grade oligodendroglioma. He was diagnosed in May 92 and has done extremely well considering. He has had 6 operations, radiotherapy and chemotherapy - PCV, gliadel wafers and Temozolomide.
However our doctors say there is nothing more that they can do. He is now on morphine and 16mg of dexamethasone daily and is doing better than the doctors thought he would.
Surgery is no longer viable and he is seemingly not eligible for any clinical trials because of all the other treatments he has had. They have advised us that it is too dangerous for him to fly and we live in Scotland in the UK.
We are both determined not to give up on him, we have 2 young children.
If anyone has any advice on anything that may help I would be really grateful.