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RE: Need info on BMT

tanc3
Posts: 3
Joined: May 2003

Hello! My name is Armand, I am 23, and have been battleing ALL, for the past 2 and a half years. I went remission very fast and then found out after I had finished chemo, that it had relapsed. I have been told that a Bone Marrow Transplant is pretty much the only chance at life. I need someone to talk to. Please Help ASAP.

email ATancrede3@cs.com

mc2001
Posts: 344
Joined: May 2003

Hi Armand,
I too had ALL. Never a BMT. I would get in touch with some doctors who can get the ball rolling. I was treated at an NCI Comprehensive Cancer Center. I recommend emailing the american cancer soc. for information. Good luck and God bless.
-Michael
PS: I have a leukemia websie with BMT info. maybe it can help
www.geocities.com/leukemia_lymphoma

mjolly
Posts: 6
Joined: Mar 2003

Hi Armand,
My name is Melissa, I was diagnosed with ALL in March of 2003. I have met a friend through this site who is getting ready to have a BMT. I know she would love to talk with you. Her name is Kathy, and you can email her at AWKATHY@aol.com. I would love to talk with you as well, regarding your diagnosis, and relapse. I went into remission quickly too, and am getting ready to do round 4 of chemo. I hate the thought of relapsing. Best of luck to you.
Melissa

tiggertoo's picture
tiggertoo
Posts: 31
Joined: Mar 2003

Hi Armand...I am Kathy, who Melissa is refering to above. I was diagnosed with ALL 3/1/02. I can't imagine what all you have been thru...I went thru 8 rounds of hyper-CVAD chemo over 7 months last year, spending 17 weeks in the hospital. I then had 22 days of rad. I went into remission, then started maintenece chemo 1/3/03, but was unable to tolerate it. During that time, my sisters and I were tested and one turned out to match on all 6 antigens, so we are now going thru the whole approval process and I am preparing for a stem cell transplant. There are several people on here who have had transplants. If you look on the discussion lists, you will see one for transplants and all the messages in there by people who have had them. You can email people on this site, thru your CSN start page. dramerth is one of my friends who went thru a transplant Aug 02. I know she would be willing to talk with you. Email if you have any questions! Kathy aka Tiggertoo

michellelee
Posts: 1
Joined: Jul 2003

HI ARMAND. MY NAME IS MICHELLE. I BATTLED ALL ALSO. I WAS DIGANOSED IN 1986... I WAS 4. UNFORCHANTLY, BACK THEN THERE WASN'T AS MANY DISCOVERIES AS THERE ARE TODAY. I RECEIVED CHEMO AND TOTAL BODY RADIATION FOR SOMETIME. IN 1989, I RECEIVED A BONE MARROW TRANSPLANT. BY THE BLESSINGS OF GOD, MY YOUNGER SISTER, CHRISTINE,WAS A PERFECT MATCH FOR ME! IT WAS PAINLESS FOR ME... I HAD A CENTRAL LINE AND I WAS ALSEEP DURING IT ALL. MY SISTER HAD THE PAIN THOUGH. SHE IS THE ONE THAT DONATED HER BONE MARROW TO ME! AFTER THE TRANSPLANT, I WAS AS BIG AS A BLIMP FROM ALL OF THE STERIODS, BUT I WAS ALIVE AND WELL. I WANTED TO LET YOU KNOW THAT IT WILL BE 14 YEARS ON NOVEMBER 3,2003!!!! I WAS TREATED AT SHANDS HOSPITAL IN GAINESVILLE FLORIDA. I ENCORAGE YOU AND YOUR PARENTS TO SEE ADOCTOR ASAP. TIMES LIKE THESE, FAMILIES GROW STRONGER AND STRONGER! MAY GOD BLESS YOU. PLEASE WRITE TO ME IF YOU NEED TO. I'M HERE TO TALK.
GOD BLESS YOU AND YOUR FAMILY

AuthorUnknown
Posts: 1564
Joined: May 2006

Hello, Armand.. I am Gordon, and I am 22 years old.. I am a two-time ALL surivor. First diagnosis was in 1986, and then I relapsed in 1991. I had all chemo the first time, and a mixed chemo/radiation treatment the second time... Last I had heard, bone marrows were pretty risky business.. You should call the ACS or the Leukemia Society, and ask them for more up-to-date info on BMTs....

MzDaniela
Posts: 1
Joined: Mar 2004

Hi Armand, I am Daniela!! I am an AML survivor. I had a BMT 15 years ago and am feeling amazing. If you need any info or are going through them procedure, please let me know :-)

cadmaine
Posts: 2
Joined: May 2004

I had a BMT in 2000 at the Fred Hucthinson Cancer Research Center in Seattle. Did a lot of research and they are one ,if not the best in the world. The whole city is set up for cancer patients. They make the experience the best it can be. If you need more info regarding the BMT or FHCRC email me at cdavis4@verizon.net

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