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Long lasting ALL symptoms
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May 06, 2003 - 2:19 pm
Hi, I'm fairly new to this. But I was diagnosed with ALL when I turned 21. Was treated very aggressively and had very aggressive side effects. I am 29 years old now, but I still have some memory and fatigue problems which still warrant disability. Am I an odd ball, or is there someone else with chronic symptoms? I get the impression that people think I'm just pretending. I would really like to hear from anyone. Thanks a bunch. my web site: www.geocities.com/leukemia_lymphoma |
Joined: Jan 2002
mc2001,
You are not pretending, they are called late effects. My son had a BMT for AML in 1996 at age 7. He has great memory problems and chronic fatigue among many long term effects of heavy chemo. You can take neuropsych tests that will show memory and neurological effects. There is a great book by Wende Hobbe from Children's Hospital of Philadelhia about specific treatments and the specific late effects they cause .I think the book is called " Surviving Childhood Cancer". You can get it from Amazon.com
Feel free to e-mail me here if there's anything I can help with. I check this site regularly.
dickl
Joined: May 2003
I am a 30 year-old male from Florida. I was dx with ALL 2 months from my 21st birthday. I also suffer from some memory problems, fatigue and peripheral neuropathy.
I think people have the misunderstanding that because you maybe on remission that means (to them) that you should have no symptoms whatsoever. Chemo side effects can last a lifetime. I have learned to deal with the pain in my shoulders, hands and legs as well as the memory problem; sometimes I just break the routines to try to keep my brain active thinking instead of just reacting. The fatigue is the worst because I am tired all the time and sometimes I just want to lay down for a nap and feel so guilty about it.
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