CSN Login
Members Online: 10

Nasopharyngeal

inafoxhole88
Posts: 2
Joined: May 2003

Hi! I am fifteen years out of stage 3 Lymphoepithelioma of nasopharynx. Ca is cured but late effects of aggressive therapy (chemo and r.t.) are tough. Anybody relate?

JohnG
Posts: 12
Joined: Apr 2003

I had nasopharyngeal cancer, finished chemo in December, and finished radiation in March so I can relate, but I hate to hear someone 15 years out is still bothered by the effects of treatment (I was hoping the effects would be lessening in me any month now). Other than the dry mouth, what effects are still tough 15 years down the road?

John

emddebipa
Posts: 2
Joined: Jun 2003

hello my name is debi from pa i recently had surgery to remove cancer from my septum, i am now waiting to start all the reconstruction of my nose, my first step begins july 11th, i'd love to chat to you, my cancer was diagnosed as squimous cell

tomalexander
Posts: 16
Joined: Mar 2003

Hi! Can I ever relate to your message. Was diagnosed in Dec of 2001 with stage III nasopharangeal cancer. Began chemo and radiation in Feb 2002 and treatments stopped in June 2002.

I am nowhere near your fifteen year survival, but my last two pet scans have shown no trace of cancer! My longest lasting effects are peripheral neuropathy(pronounced tingling and numbness in both feet), and having to drink a lot more liquid to help swallowing when eating. Chemo doc said the neuropathy may or may not go away, but guess I should nnot gripe too much since I am still here.

Messages from long term survivors llike yourself are reassuring to the rest of us. Glad to see you are doing so well, and I hope and pray you continue to improve.

mercedes280sl's picture
mercedes280sl
Posts: 1
Joined: Apr 2003

Keep the faith. It's not easy and it certainly isn't fair, but it can be beaten. I was diagnosed with lymphoepithelioma in Apr 1986 after being misdiagnosed for more than two years. The sinus cancer was so progressed that I was not expected to survive, but here I am, 18 years later. At 34 years old, I'm cancer free. The agressive treatment needed to eradicate the cancer has left me with some issues, but I'm here to ***** about them. I certainly don't understand life, but I subscribe to the theory that everything must happen for a reason. Of course that doesn't keep the random chaos of life from pissing me off. But alas...I'm here. If anyone wants to chat, feel free to send me an email.

We're all in this together.

barrysad
Posts: 2
Joined: Mar 2004

ARE YOU A BETTER OR WORSE PERSON FOR HAVING GONE TO HELL AND BACK? DO YOU APPRECIATE YOUR LIFE AND THOSE AROUND YOU MORE OR LESS THAN BEFORE? NOW THAT YOU KNOW THAT YOU ARE VULNERABLE TO "C", HAVE YOU CHANGED YOUR LIFESTYLE?

barrysad
Posts: 2
Joined: Mar 2004

AFTER READING YOUR BRIEF HISTORY, I WANTED TO SHARE MINE. I HAD A RARE NASOPHRYNGEAL CANCER 24 YEARS AGO. SIX WEEKS OF INTENSE RADIATION "CURED" IT,BUT WHAT HAS FOLLOWED HAS BEEN INTENSE: TINNITUS, NO SALIVA AFFECTING MY DENTITION AND STARTING 5 YEARS AGO NEUROPATHY IN BOTH FEET WHICH HAS AFFECTED MY MOBILITY. AM CURIOUS HOW THE MD KNEW OF CONNECTION BETWEEN TREATMENT AND NEUROPATHY.

robin58
Posts: 2
Joined: Jul 2004

my husband is going through it now

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network