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Astrocytoma Grade 2

mge007
Posts: 2
Joined: Apr 2003

I was recently biopsied and diagnosed with an astrocytoma grade 2 tumor. With the exception of the symptoms that led me to my Doctor I've only dealt with the side effects of being on Decadron and more harshly of trying to be OFF Decadron. My first set of Doctors said there is no cure and to enjoy the 3 to 5 year expectancy of this type of cancer. My second opinion Doctors say that radiation is an option, but have not yet started any treatments. Does anyone who also has this diagnosis have any actual experience with having this cured or slowed? Doctors are people too, and I would hate to think that I'm just helping someone make a boat payment...

jen8675309ren
Posts: 2
Joined: Apr 2003

I am a survivor of an astrocytoma (WHO11) they removed mine completly and I am now cancer free. I also believe that I had the best surgeon and I would be happy to tell you who he is My e-mail address is Jen8675309ren@AOL.com He does 100's of surgeries like this every year. Where is your tumor? I was also on decadron and I hated it. I felt like I was drunk all the time. Please be sure to get a second opinion if you haven't already. I know what you are going through and if you need someone to talk to just e-mail me. Good Luck

itsallgood
Posts: 5
Joined: Jan 2005

Hi I am a fighter of astrocytomas I now have my 3rd I am 29 I had my first removed at 19 my 2nd at 18 and I had a biopsy on ny 3rd at 26. I am doing well and i figure and always have hey I'm alive I can hear see, walk have thhe sensation of touch and can speak I am lucky. So if u look at life like this you'll be fine and doctors only hurt to make u better. This seems a pretty cool site look forward to chatting

Javier
Posts: 1
Joined: Apr 2013

Hello, Jen! I'm so happy to learn so good news. I wonder if the tumor you suffered was interior or peripheric. Till now, I assume that extraction of inner head tumor is not possible, though there is stereotactic radiosurgery as a fine alternative for many cases. Thank you and congratulations, again. Take good care of yourself, thank so much (this is for a friend suffering from astrocytoma grade 2).

hoods1's picture
hoods1
Posts: 3
Joined: Apr 2003

I have a mixed case which is a combination of astrocytoma and dendroglioma, grade II. Which makes our cases very similar. I'm not sure of the severity of your case but, I was diagnosed in November of 02, had a biopsy in Dec. 02, another surgery in march to get the bulk of the tumor out, and I'm now starting my third week of radiation. I feel your pain on the Decadron. I was never addicted but I didn't like the way it made me feel. Things just weren't right. But luckily I didn't have to take that very long. What I want to tell you is yes, you can at least slow down but in some cases, completey rid yourself of cancer. People have done it in the past. When you need to decide whether or not to accept treatment, Think about your age. If you're young, do it definately. You have a big life ahead of you. If you are old-aged, the decision is a little more complicated.

Keep your chin up..

God Bless..

Earthmap1
Posts: 2
Joined: Mar 2003

I was diagnosed with a Grade II astrocytoma as well. I had surgery to remove to majority of the tumor and 6 weeks later I started a 6 week round of radiation. I am celebrating my 3rd birthday this June and I have yet to have any reoccurance of the tumor. The best advise I can give is be proactive. The sooner you act the better chances you have. Radiation therapy wasnt a bad experience and I didnt have many side effects other than hair loss. If you would like to discuss or need support please feel free to e-mail me at earthmap1@yahoo.com ~Cari

nikibmama
Posts: 2
Joined: Dec 2010

I know you posted this several years ago, but how are you doing? My husband was diagnosed in November with a grade 2 astrocytoma in the left frontal.

lfrey911's picture
lfrey911
Posts: 6
Joined: Mar 2003

HEY !! HANG IN THERE!! I was diagnosted in 1991. Doctors have not given up on me yet. They are all kinds of options, the GAMA KNIFE at WAKE Forest Uniververisty is the leading Cancer Treatment Center for this type of treament. I did not do well on Decadron either and there are many other drugs that are MUCH better. GET a SECOND opinion. Call the Wake Forest Baptist Univerisity Hospital in Wake Forest North Carolina. You CAN live a LONG and HEALTHY life. reach me at lfrey@triad.rr.com

lfrey911's picture
lfrey911
Posts: 6
Joined: Mar 2003

HEY !! HANG IN THERE!! I was diagnosted in 1991. Doctors have not given up on me yet. They are all kinds of options, the GAMA KNIFE at WAKE Forest Uniververisty is the leading Cancer Treatment Center for this type of treament. I did not do well on Decadron either and there are many other drugs that are MUCH better. GET a SECOND opinion. Call the Wake Forest Baptist Univerisity Hospital in Wake Forest North Carolina. You CAN live a LONG and HEALTHY life. reach me at lfrey@triad.rr.com

DCovington
Posts: 6
Joined: Feb 2004

I also had Astrocytoma and have been through surgery,radiation, and chemo. I am now a 5 year survivor and am looking forward to walking my oldest daughter down the isle this summer to get married. If I can do that just think of what we all can do with God's help. David

miguelagon
Posts: 4
Joined: Apr 2004

Dont loose faith i had astrocytoma grade 2 i had surgery 4 years ago and now im going thru radiation.Change doctors,by the way mine was a brain tumor what could be more delicate than that.Email me and ill give u my doctors number and u can call him miguelagon305@hotmail.com

JN123
Posts: 2
Joined: Jul 2010

can u give me the doctors info please anyone who can help witha astrocytoma grade 2 feel free nicholenye@yahoo.com

stayingcalm's picture
stayingcalm
Posts: 656
Joined: Feb 2007

JN123,
These posts are nearly 6 years old, it would be better if you started a separate thread ;)
stayingcalm

i4heynow
Posts: 1
Joined: Aug 2010

September 9th will be 10 years since I had the tumors removed.It was around the left temparol lobe- hippocampus.I talked to 2 surgeons that wouldn't do the surgery, because of where it was. Then I found Dr Fullagar and he went in and saved me.
I had to relearn things, so now I know it can be done. I went back to school and became a lead teacher in an after school program. I have to be on seizure meds for the rest of my life. Last grand mal was 3 years ago. before that I went 6 years seizure free. I still have to have MRI's and EEG's. I think about it everyday. I get scared if I have any weird aura feeling. I just lost medicaid because my daughter turned 18. I half to find a way to get these things that are keeping me alive.
I hope you are still alive and in no pain. I love to here stories about others who are going through this.It helps to talk about it.

scia65
Posts: 5
Joined: Sep 2010

I went thru a few drs. I have a astrocytoma glioma grade 2 right temporal lobe. I had a biopsy and two weeks later back to back surgeries to resections 2 of them, and to find out I still have the tumor. I then did 32 treatments of radiation, temadar for 9 months. At this point tumor is still there I chose to take a break from temadar as i was on 7 days a week no breaks I was sick all the time. Lost way too much weight and continue to lose. So I go for my scans every 2 months and wait for the worst. I still take my seizure meds and my antidepressents. So I take it a day at a time

scia65
Posts: 5
Joined: Sep 2010

I have been on chemo, and have had to resections also radiation, my drs say it could be a few years or 20 no one knows. I have met people that have had one and its 10 years later and they are doing great..Just stay strong. I am one year into it

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