my name is bev, my mom aged 62 was a rn nurse was
diagnosed with this horrible disease with no warning signs until emergency surgery was needed on feb 25. thank god she had a great team at ny methodist cornell weill hospital. we also did a second opinion at sloan. she had 60% removed from
surgery. the rest had to be chemoed with pacltamaxl and two types of radiation therapy. we have gone on a emotional roller coaster because of brain swelling due to her falling and the effects of radiation. thank god she did not get sick from the chemo except for hair loss. she is now entering the hospice program because the type she has is usually fatal even with treatment and it always reoccurs. it is very tragic how she is left, incontinent, short term memory loss, vision in left eye questionable at times, equilibrium is sloped to the left. loss of
right hand and leg to move. most of the time she is chair bound or bed bound. it is about five months into her illness and i do not see any improvements. i believe she will slip into another coma. she has survived at least three. the only reason she survived was the decadron to control brain swelling and we know this will not work for long. her husband is useless too old to care for her and no he is not my father. he tried to interefere with the entire family verbally and physically which does not help matters. also mom left her personal affairs in a mess and my only brother is not too good in being there as much as i am. i am burned out by this experience. even though we have hospice and a health aide it is still very overwhelming to me. i would like some suggestions or ideas with coping with this. my mom has figured out she will die of this because she is a nurse and knew about cancer.