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Vipoma

VIPoma
Posts: 1
Joined: Apr 2003

Does anyone have any information on VIPoma. I was diagnosed in 1996 after about six years of misdiagnosis. I had a liver transplant in June of 2001. I would really like to correspond with anyone who has this disease or know someone who does. Thank You very much

jenthefrogg
Posts: 2
Joined: Jul 2003

I am here and willing to talk. I have been misdiagnosed for a long time as well.
jenthefrogg@yahoo.com

Anonymous user (not verified)

I am just diagnosted with Gastrinoma MEN-1 and I have been misdiagnosed for 4 years waiting for addmission to hospital for treatment. Would like to speak with you ASAP and I hope you are still there.

Gulzar's picture
Gulzar
Posts: 10
Joined: Apr 2016

It is slow growing tumour you can live a decade with treatment. I have Gastrinoma misdiagnosed for 10 years.

https://www.smartpatients.com/conversations

 

Gulzar's picture
Gulzar
Posts: 10
Joined: Apr 2016

Have you beenon PPI pills such as Protonix or Pantoprazole for GERD or acide.

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