CSN Login
Members Online: 9

looking for new friends

sassylady's picture
sassylady
Posts: 6
Joined: Apr 2002

hi this shontell i been looking some new friends i been back and fourth on csn and i do apologize to those who responded to my posts and i didnt get back to them. iam a 4 year cancer survior and iam looking for other suriviors or those who still battling with cancer. also need some support because its time to take a new test for cancer and iam afraid if you would like to email me do so thank you and god bless you:)

rosie43539's picture
rosie43539
Posts: 56
Joined: Mar 2003

Hi Shontell, my name is Rose. I am a 28 month survivor of ovarian cancer. I was diagnosed in Nov of 2000. I went in for surgery thinking I had a fibriod tumour in my uterus, Turns out it was a 4 pound tumour on my left ovary. It was a shock although I was very stupid. I knew the was something inside of me that didn't belong. But I put off going to the doctor. I guess I was in denial. I was 47 years old at the time and figured I was beginning to go through menopause. Boy was I wrong. I went through 5 months of chemotherapy. I finally graduated to 6 month cheskups. My CA125 was 9 this past time. I wish you luck on your next cancer test. I know how stressful it is. I'd like to know your story. I am very new at the computer so I don't know how to operate it very good.

sassylady's picture
sassylady
Posts: 6
Joined: Apr 2002

hi rose i would love to tell you my story but first do you have aol or yahoo im it easier if not its ok ill just tell ya and i how the computer can be confusing and hard to learn its ok

rosie43539's picture
rosie43539
Posts: 56
Joined: Mar 2003

Shontell, I have yahoo but not sure how to use it. This is my daughters computer and I have only been using it for a couple of weeks. But I'll try to get on it. Wish me luck. Rose

rosie43539's picture
rosie43539
Posts: 56
Joined: Mar 2003

Shontell, we are going to have to educate me on this computer. Don't give up on me. I'll get a crash course on yahoo from me daughter. If you have an e-mail adress and don't care to give it to me we can do it that way. They didn't have these things when I went to school. A little personal history: I am 50 years old ,married for almost 30 years. I have two children and two beautiful grandchildren. My husband is currently battling Stage IV Renal Cell Cancer. He has been very ill and is currently going through his third type of treatment. He was diagnosed 10 months ago. Getting ready to start second cycle of chemotherapy. He will be scanned after this cycle. Pray for him, we need all the prayers we can get. Talk to you again soon. Rose

granny1120
Posts: 3
Joined: Mar 2003

Hi Sassy, I just finished chemo Dec. 31st. and levels look good so far. I've had a cough for a week and just don't feel right but nothing i can put my finger on. Scared to death the cancer has moved to another area. Went back to work but keep getting dizzy spells. How long does it take to start feeing right again?

mirtle
Posts: 32
Joined: Mar 2003

Hi Shontell. I am a nine year survivor of ovarian cancer. However, last year they found three small lesions and I have been undergoing chemotherapy treatments ever since. They started treating me with Doxil and when that became ineffective, they gave me Taxol/Carbo. My CA125 has gone down but not far enough yet. I guess they will treat me until they see nothing in the CT scans. I would love to correspond with you and trade stories. Write soon.

june1952
Posts: 1
Joined: Apr 2003

Hi Mirtle. I saw your reply to Shontell, and when I read your story I had to respond to you. First I am new to the csn so please bear with me. I also am a survivor of ovarian cancer for 10 years. I would like to tell you more if its okay. Please let me know I can write you again. Thanks.
Junebaby

mirtle
Posts: 32
Joined: Mar 2003

Junebaby, you can write me at e.harvey1@comcast.net. Would love to correspond with you. Please write.

francesmag
Posts: 2
Joined: Apr 2003

Hi Shantell, I am a 10 year survivor!!! So rare that both of us are here. Glad to be here. Never took treatment. I was given 50% choice if treatment would help or not at my early stage although I had two grapefruit size tumors on my ovaries. I opted to take no treatment having seen the results of my own mother's chemo at a late stage of her own pancreatic cancer. Somehow was only stage one in my own. Initially, at my Doctor's suggestion I went to counseling with other women in later stages of ovarian cancer at the time, (I was 32 years old then, now 41.) Still this cancer and the changes it made to my body have altered relationships with men and friends. I have not spoken much to folks about it, including my "close" family. It seems like they don't want to believe it was or is a worry, like it will hurt them, still. They don't want to worry. They were worried when i was in the post surgery stage but then wanted it to disappear as a worry. So it is lucky I lived through it, then they don't have to have sorrow of me dying.

I used to worry about all my Doctor appointments and checkups. I would get anxious and nervous everytime and had no one to talk to. Now I do not go so often. As time goes on I am distancing myself, though not entirely relieved. I wish you all the very best in your many aspects of recovery. After ten years, I just realized that I really do need ro find friends to share their stories in light of my own history with this understudied cancer, and in order to establish a better network for women in all stages of it.

Hope to hear from you.

bluecrab
Posts: 12
Joined: Apr 2003

Hi Shontell,
I am happy to hear you are a 4 year survivor. I was diagnosed and had surgery in Aug2002, finished chemo Feb 2003. My first 3 mo. checkup is May 5th, I am scared as well. Guess we dread those forever. I was stage 2. Dealing with getting over chemo and steroid side effects now. I am doing very well I am told, but have a few problems remaining. Knowing others understand really helps. I guess I want my old self, energy, etc immediately. Want to get this behind me! Sounds like we will all have this little cloud over us forever. Hope your test go well and your CA125 VERY low!

paddy
Posts: 3
Joined: May 2003

Hi Sassy,I'm Paddy. I am new to this so please bear with me. I've been playing with csn for a week or so just getting up the nerve to talk to someone. I am going to be going thru my 3rd chemo and I hear it gets worse as you go is that true? I have Ovarian Cancer stage IIIC/IV. My doctor says theres such a fine line that it really doesn't matter.I can use all the friends and support I can get so please if anyone wants to e-mail me please feel free. PLYNN73137@aol.com. I have so many questions. God Bless- Paddy

mopar
Posts: 1950
Joined: May 2003

Dear Paddy:
Hope you are doing well by now. My name is Monika, and I am a cancer survivor for 3 years now, God willing, for a lifetime. Yes, the chemo treatments take a real toll on your body. I still have some residual affects (neuropathy, weight gain, never regained my stamina), but my hard work is finally starting to take hold. I gained approximately 40 pounds due to chemo. My neuropathy has lessened somewhat. Having always been a firm believer in good nutrition and exercise, I have intensified my approach with certain things. Now, the weight gain issue is not really a vanity problem. Yes, we all would like to look and feel good, but my goal is overall HEALTH. All the things I am doing are condusive to good health - low carbs, high protein, lots of water and fresh vegetables. I also do resistive training to help boost my testosterone which is KEY for female cancer prevention. Now mind you, I am not a doctor, but it is a proven fact that estrogen is a real boon to cancer, especially gynecological. That is why ovarian cancer patients must NEVER take hormone replacement therapy. There are many other ways to inhibit estrogen production. Sorry I am rambling on, if you would like I could keep in contact with you. Not selling anything, just offering my support in any way I can. I will live with the concern of cancer the rest of my life. But I try to live one day at a time for my three children and husband AND myself. Do take care. Anything I can do to help you or anyone else, please write me. Regards, and prayers, Monika

paddy
Posts: 3
Joined: May 2003

Hi Monika,
Thanks for writing I just had my 3rd chemo and it was not as bad as I really thought it would be. I was fatigued for a few more days than usual but I got thru it. I haven't gained any weight from this so far but I did loose 40lbs from the surgery alone.I now am speed walking for 2 1/2 miles a day on the treadmill and I quit smoking 2 weeks before I found out I even had cancer so I'm doing my best to eat right and exercise as much as possible. I finally got the ok to go back on my vitamines by my dr. so that is helping also. I hope and pray that some day I will also be a 3yr and beyond survivor like a lot of you. This web site has helped me out so much and you wonderful sisters are just a God Send to people like me. Thank you and God Bless, Always Paddy

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network