In October, 2002 my mom was diagnosed with an malignant Asterocytoma. She has been receiving steroid treatment since. The doctors tried to wean her off the steroids once before (in January) which landed her back in the hospital.
Monday she was weaned down to 1 mg per day and she began having terrible weakness in her legs (falling down three times since.)
I am absolutely HORRIFIED that she might land in the hospital again!
I am her only caregiver and I am feeling very desperate to discuss this with someone who has had a brain tumor which was treated with steroids.
I'm not sure whether the falling episodes were due to the weakness and her being on steroids for so long, or if her body is not ready to come off the steroids. Or even what I should expect once she is off the steroids. Will she regain her strength? how much of it? how long it will take? I have so many quiestions and hope that someone who has been through this could PRETTY PLEASE help me to shed some light on this situation.
Your personal experiences with steroids and brain tumors would really help me with both the knowledge and strength to get through this with some of my sanity still in tact.
Any feedback that you can offer would be TRULY appreciated.