Mar 10, 2003 - 1:58 am
I just stumbled upon this page through a tv commercial, it's a good thing I was paying attention. Well let me quickly introduce myself. My name is Leeann, I'm 20 years old, and I'm also a survivor of osteosarcoma. I was diagnosed when I was 11 and recieved chemo and underwent a limb salvage surgery. I feel extremely lucky that I have had no reaccurance of cancer, and have now been cancer-free for almost 9 years now!
However I have had numerous "mechanical" problems and a couple surgeries on my knee after the limb salvage. From the time that I was about 14-16 I was very active and not really held back by any physical limitations. However for the last 3-4 years my knee has gotten progressively worse (which really is no suprise since I've had it nearly 10 years). I had a couple surgeries to lengthen my knee, since I was only 11 at the time of diagnosis. And the last time I saw my doctor I discovered that the lengthing had actually colapsed, so for the last year+ I've been dealing with a significant difference in length between my legs and a lot of chronic pain. Right surgery is inevitable (no matter how much I ignore it, I know it will come sooner or later). I'm just curious as to talk to someone with a similar condition. I would love to hear how other limb salvages have lasted and what maintainace surgeries have been done? I really fear having another surgery because I'm afraid of getting an infection (and whenever I talk to my doctor, he is never really optimistic- must be a requirement of doctors!). I seem to be in the process of slowly accepting that chance that I may become an amputee, to prepare myself for the worse. I almost wonder if all I really need is just a second opinion.
Please contact me if you have any input on this dillema. Feel free to email me: firstname.lastname@example.org