Mar 01, 2003 - 11:00 am
In Aug. 2002 I was admitted to the hospital with a pumonary embolism caused by deep vein thrombosis, which I now understand was most likely symptomatic of the cancers that were discovered when I had a biopsy at the hospital (uterine Stage 1B) and the ovarian (Stage 1C) that was uncovered in the subsequent hysterectomy. I've had six rounds of taxol/carboplatin chemo (ended 1/21/03), and am finally growing back my hair. The doctor who admininstered my chemo is not my oncologist, due to the logistics of my hometown. My CA-125 level came back (after my last chemo treatment) at 24, which I understood to be acceptable, but after reading a lot of the messages on this board showing women with lower levels, I wonder if I should be concerned. The Johns Hopkins site has info indicating that 35 or lower would be desireable. Can anyone shed some light on this for me? My doctor has not expressed concern at all, but then, I did have to ask if he was going to have a CA-125 test done in the first place.
I have some numbness in my upper left leg because of the removal of lymph nodes for testing during the surgery, and some numbness in my right leg which is probably from the DVT, but otherwise I feel quite fine and did not suffer weight loss from the chemo.
My prognosis is very good because of the low stages of both cancers. I would love to hear from other women who have had the combination, and from any one who can give me a quick description of what I should be looking for in CA-125 levels.