Feb 27, 2003 - 12:07 am
I was recently diagnosed with this type of cancer in October 2002. I have been told that it is a form of ovarian cancer. I can not find much information about this cancer. I am being treated the same way as ovarian cancer is treated. Can anyone tell me more about this cancer? I had a full hysterectomy in October 2002 because my periods were bad, not because I thought I had cancer. Four weeks after my surgery my surgeon came to my house and told my husband and I that the pathologist saw something but was not sure exactly what it was. They sent my pathology to Harvard University. They sent it back and said they thought it was possibly primary peritoneal cancer. My surgeon told me not to be concerned because whatever it was they saw it was minimal and was probably taken care of with the hysterectomy. But, just in case I probably should see an oncologist if I wanted to. He told me not worry about it. He asked me to have a CA-125 test done. I agreed. It came back normal and I also had a cat scan done of the chest,stomach and pelvis. All tests came back normal in November. I felt relieved. I went ahead and saw a surgical oncologist, a friend of our family who took my case to a tumor board. I was shocked when I went to see her because she thought I should have another surgery to take a look and see. Thank god she did. She found more cancer in my abdomen. She could actually see it on my Omentum, which was completely removed and it was also in other areas of my pelvis. Needless to say it was quite a shock to me and to my family. I would like to hear anything, from anyone who is familiar with this diagnosis. I am now undergoing chemotherapy every three weeks, with carboplatin and taxol. I have to have six treatments all together. Let me hear from anyone about this cancer. I have been told that it just recently in the past ten years got it's own name. Let me know what you know. I would really appreciate it. Obviously I am really new to this site so I hope I am doing this right. Thanks so much and I look forward to hearing from you.