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20/F bone cancer survivor

leslie82
Posts: 3
Joined: Nov 2002

Hi, I'm new to this. I've never actually discussed my illness before. But I do think that I would benefit in learning about others stories, in comparison to mine. i'm just interested in how others feel about their experiences. Well if you need to talk i'm here. e-mail me @ TheMetalGirl@hotmail.com thanx
Leslie

lanni's picture
lanni
Posts: 4
Joined: Mar 2003

Hi Leslie! I'm Leeann, and also a 20/f survivor of bone cancer. I'm always interested in hearing about other's treatment. What kind of bone cancer did you have and where? I had Osteosarcoma in my left knee, and was giving a total knee replacement. Right now, even though I'm nearly 9 years cancer-free, I still deal with lots of knee problems and chronic pain, and I am curious as to how other's have been treated. I'd love to hear back from you, and feel free to email me if you fell more comfortable that way. leeann@triton.nu

Leeann

bkirk
Posts: 3
Joined: Mar 2003

Hi lanni, my name is Billy. I'm a bone cancer survivor of 24 years. I had Ewings Sarcoma in my chest on the right side. What is 20/F? My e-mail is billykirk6566@earthlink.net if you would like to chat with me.

lizhetaraka
Posts: 1
Joined: May 2003

hey billy,my son is 17yrs and has had ewing sarcoma in the left pelvis and the hip joint which he got removed last year with also abit of lung take out on the left as well but now it's come back in the right side now and also in both lungs.my question is what to do for him now i don't want to lose my son threw this cancer but everyday looks like i am.when did you get diagnose and how did you live that long? please anything would be nice.please get to me asap my son looks like it mighten be that far to go i'm now depressed.

EwingsMom
Posts: 1
Joined: May 2003

My daughter is fighting Ewing's Sarcoma as well... www.caringbridge.org/oh/teamdelaney... feel free to visit her website.

Also, if you go to www.acor.org and search for Ewing's Sarcoma, you will find a support group for Ewing's patients (children AND adults,) parents, family and friends... some are survivors, some are fighting for their lives as your son, some are in treatment... all are kind and caring and willing to discuss with you treatment options they have found that have worked, those who haven't, as well as referring doctors and hospitals who have helped them through this.

God bless you and your son!

Renee

CaItLiNaNn
Posts: 1
Joined: Nov 2003

Hey everyone my name is caitlin and i was diagnosed with ewings sarcoma march of 2003 i just got done with chemotherapy a month ago my cancer was in my back but i caught it before it got to any of my bones i send a lot of love a pray for everyone who has cancer and i know you can get through it just listen to the doctors eat well and stay healthy if you have any questions please ask and i will try to answer them i am really sorry about you son billy he sounds like a great kid as long as he is still here now he is very tough cancer is a hard things to go through and it is scary but if billy does leave you god must have needed him for a reason my mother past away from cancer and i know god must have needed her
much love
caitlin ann

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