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Mucoepidermoid Carcinoma

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jaylene19
Posts: 9
Joined: Oct 2002
Oct 29, 2002 - 3:26 pm

I am 23 and a survivor or mucoepidermoid carcinoma (salivary gland cancer). I have had a recurrence as recent as February 2002. They finally decided to follow up my most recent surgery with radiation (I was diagnosed in 1998 and have had four surgeries since). I am hoping this was the key to eliminate the cancer for good. I had facial paralysis for a while, and I'm now experiencing something called a Lhermite Sign (tingling of the neck when I "flex" my neck muscle). The doc says it's nerve damage of some sort from radiation. Has anyone had this? How soon does it go away?

Also, I am wondering if anyone has had surgery and radiation and THEN a recurrence. What is the protocol if it comes back again? What is the prognosis?

God Bless you all and hang in there! :)
rrman
Posts: 12
 Joined: Apr 2002
Oct 30, 2002 - 1:13 pm
RE: Mucoepidermoid Carcinoma

Hi Jaylene, What you're experiencing (LHermitte's Syndrome) is a common side effect of radiation. Believe it or not it's somehow related to the spinal cord. Have no fear, it usually takes about 6 to 8 months after radiation for it to disapate...I've been there and I know. Hang in there, it'll only get better. God Bless...Peter
blitzbob`
Posts: 17
 Joined: Jan 2003
May 31, 2003 - 1:11 pm
RE: Mucoepidermoid Carcinoma

Hi Just to say what awfukl things you have all been through and some of you so young there mut be something in the food it was never like this 50 years ago
Rhinonixx
Posts: 6
 Joined: Apr 2004
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