Oct 29, 2002 - 3:26 pm
I am 23 and a survivor or mucoepidermoid carcinoma (salivary gland cancer). I have had a recurrence as recent as February 2002. They finally decided to follow up my most recent surgery with radiation (I was diagnosed in 1998 and have had four surgeries since). I am hoping this was the key to eliminate the cancer for good. I had facial paralysis for a while, and I'm now experiencing something called a Lhermite Sign (tingling of the neck when I "flex" my neck muscle). The doc says it's nerve damage of some sort from radiation. Has anyone had this? How soon does it go away?
Also, I am wondering if anyone has had surgery and radiation and THEN a recurrence. What is the protocol if it comes back again? What is the prognosis?
God Bless you all and hang in there! :)