Oct 11, 2002 - 9:06 pm
Hi everyone...been gone a long time on a vac that turned to a nightmare. Just got back home last weekend. I got another bad infection in the lumpectomy site and they opened it up and let it heal from the inside out. Didn't have a pain killer one that would stop that pain when they changed the dressing...poor, pittful me, huh? I'm sure a lot of you have been through a lot worse. Sorry about that. Anyway the last operation was in May and I'm still taking hyperbaric treatments (another 20) so it's not healed up yet. I've had a great wound care doctor do his best to "fix" it, infectious diease doctors that tried to help, surgeons for the hyperbaric treatments, infusions twice daily, 7 days a week for 8 weeks...and Nothing has helped get rid of the pains. All the doctors keep telling me it's from radiation damage. No one will listen to me that I'm still having a lot of shooting pains in that breast and not from the site either. They just say they don't know...it must be damage from radiation...over and over again.
Went to new oconologist yesterday and he was very nice but didn't have an answer either. I even asked again about IBC but he didn't think I had that. He's sending me to a female breast surgeon end of this month..maybe she can help.
I'm so frustrated. I have pain the majority of the time. The stabbing pains sometimes put me on my knees. What is left for me to do? I just feel like my hands are tied.
Have any of you experienced this before and if so, did it get better?
Any answers would be greatly appreciated.