Sep 04, 2002 - 3:36 pm
I am so sorry that it has been so long since I last communicated with the group. I have been going to medical appoinments at least 4 days a week and the drive is 11/2 - 2 hours each way. So I just haven't had the time to be a good correspondent. In fact I don't think that my mind is working very well, because it wasn't until today that I thought to ask the following question.
I am having a horrible time with incontinence (sp?). Whenever, I have a hot flash I have an urge to urinate. The greater the flash/sweat the worse the problem is. It has gotten to the point that even when I am in the house I can't always make it to the restroom. The worst part is that the hot flashes are now about 45 minutes apart. I have spoken with the nurses and my doctors and none of their other patients have ever complained about this. It happened last time that I was on this particular round of drugs, but not until I was halfway through the treatment. However, one nurse did say that perhaps since there were already levels of the drugs in my system prior to the treatment beginning that might have caused the problem to occur more quickly this time. So last week the doctor gave me samples of Urelle to try. Urelle is usually given for UTI. HOwever, it contains hyoscyamine which is suppose to help with bladder contractions. Unfortunately, the Urelle didn't help. So yesterday, I called the office back to let them know that it hadn't helped.
Unfortunately, I missed the doctor's call yesterday. Today when I called back her nurse told me that she wanted to give me estrogen to help alliviate the severity of the flashes. I almost had cardiac arrest. I told her that I couldn't believe that it was being suggested in my situation. She said that it was the smallest dosage .3 and shouldn't hurt if we just tried it for a month. I made her call the doctor at home to confirm and she really wanted me to try the estrogen. When the nurse called back she was a little perturbed and said "well maybe you won't have to have another treatment". I hung up and told my husband that there is NO WAY THAT I am going to take the estrogen. I also told him that I am not going to back out of the protocal due to incontinence. I can deal with the incontinence. I really wish that I had never mentioned the situation to anyone. I was just trying to find out if the incontinence was a common side effect.
Just wondering if anyone else out there has experienced a similar problem during treatment or during menopause.
Also please keep my husband and me in your thoughts as I will be having more extensive colon/digestive system surgery the end of next week. I am actually more nervous about this surgery than the bilateral or any of the breast and pelvic surgeries that I have had. I guess the real problem is that in addition to the colon they surgeons are going to be working on my esophogus and stomach. I just keep thinking about my vital organs (heart and lungs). Not to mention that I am not looking forward to the two week liquid diet to be followed by a six week soft diet. It is just the unknown that once again has me a bit nervous. It is going to be a bit rough next week - my husband's birthday is September 11 and we don't really know what to do on that day and then at the end of the week I have the surgery. However, I know that God will help my husband and me to get through the next adventure in life.
Sorry that this turned out to be such a long email. Thank you all for your continued thoughts and prayers. I can't believe that the one year anniversary of my bilateral is just a few months away. Finding you all at that time has really made a difference in my life this year.
Love, prayers and hugs,