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Extensive SCLC

delligatti
Posts: 21
Joined: Jul 2002

I am searching for survivors of extensive SCLC. My husband was diagnosed 4 months ago, taking carboplatin & etoposide, and radiation. Thank you.

gelc
Posts: 29
Joined: May 2001

I left this for you on an earlier post. Not sure if you saw it.

There are three other websites I check often
www.lungcancersurviors.org
www.alcase.org
www.ecap-online.org

I am a NSCLC but those sites have SCLC people too.

God Bless

delligatti
Posts: 21
Joined: Jul 2002

Thank you for your help. These sites are very informative. We are sorry that you have NSCLC - I have heard that Gemzar has had success in this area. However, you're are likely more knowledgeable. I knew nothing about cancer until 4 months ago. At which stage are you, and how is your treatment going? With kind regards, Ann & Joe

gelc
Posts: 29
Joined: May 2001

I was diagnosed 4/21, stage 1A BAC. According to my onc, stage 1A is rarely found. Go figure.

I had a lobectomy, and no further treatment was warrented. Prior to that I had also had breast cancer 2x, and had radiation and chemo.

I am glad you are getting answers to your postings. If you haven't read any Bernie Siegel's books, I highly recommend them. Start with Love, Medicine and Miracles.

alwaysbeleive
Posts: 3
Joined: Jul 2002

I have small cell lung cancer..I was first diagnosed 11/00. I went into remission for 1 year..In January of 2002 I had a reacurrence in the other lung.
I would like to chat with others that understand my feelings.

delligatti
Posts: 21
Joined: Jul 2002

Hello
I'm so sorry to hear that you had a reoccurrence of small cell. However, as the tumor isn't sizeable, I would say that this is positive. My husband had 4 rounds of chemo with Carboplatin/VP-16, then 15 radiation treatments for the largest tumor. The last scan showed 3 out of 5 tumors gone, leaving 2 in the hilum, chest area. He is having radiation in that area, and will then have to follow up with chemo. I don't understand why the doctors say you'll be on chemo forever, but am I only a "learner" - as before my husband was diagnosed in April, I knew nothing about cancer, let alone small cell lung cancer. Were you a heavy smoker? My husband was. He is very weak and depressed from the treatment but is battling on.
Kind regards,
Ann & Joe

bobz1
Posts: 50
Joined: Apr 2002

Ive been there. two months after I had the top one threrd of my right lungand 4 ribs removev,I found out I had two small tombers in my left lung.I thought here we go again.I had them taken out 2 weeks later.cemo all over again///an you know what,that was 10 years ago.Im still here. an ill be here for you If I can help let me know/////Bobz1

delligatti
Posts: 21
Joined: Jul 2002

Dear Bobz1
May I communicate with you about SCLC. Feeling desperate. My husband Joe has Extensive Stage and has been in the fight for 4 months. Not doing well. Chemo and radiation. Surgery wasn't possible as it had spread widely. I'm wondering if your stage was Limited Stage as you had surgery?
I am very grateful for your attention.

Ann

bill040445
Posts: 1
Joined: Nov 2003

Bill here . Just received news of small cell lung cancer. My first message to anyone. Hopefully you can send along some type of experience. Going in Mon. 11/17 for fullscan. Thanks,Bill Harris

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