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young adult survivors of childhood leukemia



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kerrie

				          
            Posts: 1

          
          
            Joined: Feb 2002

          
        					
				
		
									

        			    June 27, 2002 - 11:56am			  			

			
			
I am 22 yers old and had all when i was 3 and a half.  I was womdering if there was anyone out there who had the same thing i did and would like to talk.does anyone know of any support groups for young adult survivors? 


please write.


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terato

				      
	        Posts: 246

	      
	      
	        Joined: Apr 2002

	      
	    				
		
			
June 28, 2002 - 9:53pm

			
RE: young adult survivors of childhood leukemia
			
You might try calling your local chapter of the Leukemia and Lymphoma Society of America (formerly Leukemia Society of America) concerning their psycho-social support groups.  There may be one in your area designed for young adults.  Also, contact the social work department of your treatment centers.  Many hospitals offer patient support groups.


Good luck!



			
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frantik

				      
	        Posts: 20

	      
	      
	        Joined: May 2002

	      
	    				
		
			
July 17, 2002 - 8:55pm

			
RE: young adult survivors of childhood leukemia
			
Hi Kerrie:


I am a 32 year old survivor of Wilms and lung mets.  I was 2 when first diagnosed.  I have looked long and hard for a survivor support group.  I have had no luck in my area.  I have been told only about groups for those currently in treatment or shortly thereafter.  Since I had it so long ago and my issues are so different, that doesn't interest me at all.


The best thing I've found is an online group of long-term survivors.  It's a VERY active list. And I think that Elizabeth might be interested as well.  Follow this link to find out more:

http://listserv.acor.org/archives/lt-survivors.html


Not only are there survivors of many types of cancers, but also physicians and other types of specialists knowledgeable about late effects.  I mean no disrespect to this list, but I can't keep this resource to myself.


Also, as I told Elizabeth on another post, if you don't have this book, GET IT:

"Childhood Cancer Survivors-A Practical Guide to your Future" by Nancy Keene, Wendy Hobbie, and Kathy Ruccione.


Best wishes,

Fran 



			
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elizabethe

				      
	        Posts: 2

	      
	      
	        Joined: Jul 2002

	      
	    				
		
			
July 7, 2002 - 10:21pm

			
RE: young adult survivors of childhood leukemia
			
WOW!!! I ALSO was around 3yrs when i was diagnosed with ALL. I received Chemo and radiation. Im now 29. and I'd LOVE to talk. Im in central NY. Email is elizabethmessick@hotmail.com   ID LOVE TO HEAR FROM YOU!!



			
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kerrie

				      
	        Posts: 1

	      
	      
	        Joined: Feb 2002

	      
	    				
		
			
August 23, 2002 - 8:46pm

			
RE: young adult survivors of childhood leukemia
			
It's nice to find someone else that had all when they were little.  It's hard to find people who had it so young.  Do you remember alot about it?  I use to live in ny too.  I lived outside of Rochester.  I had two years of chemo and radiation.  I'd love to talk.  my email is wolffy22@aol.com


Kerrie



			
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sorcharose

				      
	        Posts: 17

	      
	      
	        Joined: Oct 2002

	      
	    				
		
			
October 15, 2002 - 1:38am

			
RE: young adult survivors of childhood leukemia
			
Hi!!!  I am 24 years old and had All when I was 3 and a half.  I too have been wondering if there was someone who may have had my shared experiances.  I have not found any adult support groups yet.  It's been a long time sence my bout with cancer however after effects are lingering.  (long and short term memorie problems, graphs, and map reading skills, and math is just about impossiable for me)  However, I do have an Associates degree and am now working towards a Bachelors.   intrested in hearing from you, Rose



			
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erica10

				      
	        Posts: 14

	      
	      
	        Joined: Jul 2003

	      
	    				
		
			
July 25, 2003 - 3:05am

			
Re: young adult survivors of childhood leukemia
			
Hi!I'm 17 years old and had ALL when I was 9 and a half. It's hard to find people with leukemia in Northern CA.  I would love to talk to you.LREYES530@MSN.com. It would be nice to talk to someone who understands.



			
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tfitz

				      
	        Posts: 4

	      
	      
	        Joined: Sep 2003

	      
	    				
		
			
September 21, 2003 - 10:37pm

			
Re: young adult survivors of childhood leukemia
			
Hi Kerrie, I am 22 as well. I fell out of remission a month ago and am now dealing with non hodgkins lymphoma again after being in remission for 7 years. I was first diagnosed when I was 14. I have never known anyone my age who has gone through this. I am glad to know that you are doing ok. My treatment is going well and the doctors are very optimistic so far. It just really sucks and its really unfair. Nobody should have to go through this once, nevermind twice. My friends and family are being really great about it though. Write back and tell me more about you. (: 



			
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tfitz

				      
	        Posts: 4

	      
	      
	        Joined: Sep 2003

	      
	    				
		
			
September 21, 2003 - 10:41pm

			
Re: young adult survivors of childhood leukemia
			
Hi Kerrie, I am 22 as well. I fell out of remission a month ago and am now dealing with non hodgkins lymphoma again after being in remission for 7 years. I was first diagnosed when I was 14. I have never known anyone my age who has gone through this. I am glad to know that you are doing ok. My treatment is going well and the doctors are very optimistic so far. It just really sucks and its really unfair. Nobody should have to go through this once, nevermind twice. My friends and family are being really great about it though. Write back and tell me more about you. (: 



			
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