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Metastatic Prostate Cancer

henryev
Posts: 8
Joined: Jun 2002

I had a radical prostatectomy in March 1996. Metastases in bones were founnd 2 years later. Last April I could not stand on my feet because of spinal cord compression. I receivrd radiation therapy to my lower spine, and I am confined to a wheel chair. My wife has become my caregiver.

sammy
Posts: 9
Joined: Jun 2002

Henry,
I am very sorry to hear about your situation. I'm glad you have a wife who is there for you and will take good care of you. Your doctor never suggested hormone shots to keep your cancer from spreading? May God be with you during this difficult time.

wmott1122
Posts: 14
Joined: Jun 2002

Dear henryev,
I'm very sorry to hear about your bone metastases......my Dad is in alot of pain right now in his right hip and down his right leg. He has a very difficult time getting up and down......very shakey and weak! We celebrated his 60th birthday today, and I'm so very scared he will not be here for his 61st birthday! He seems very depressed right now! I know you must be going through some tough times yourself and my prayers are with you! My Dad goes to the doctors this coming Friday and I'm really dreading that appointment! We will get the results of his recent bone scans, x-rays and PSA test! I'm SCARED! Did the radiation help you at all? What did it do for you if anything? Were you having bone pain anywhere? With spinal cord compression, did your legs go numb? My Dad is taking Tylenol with codeine for pain, but it's just like eating candy...it does not help! I know it is probably very difficult for you to talk about your personal situation, but anything you'd be willing to share, I'd very much appreciate! Best wishes to you and your wife! God Bless!

moonlitnight
Posts: 54
Joined: May 2013

Hello wmott. So very sorry to hear about your dad. I can understand the fear as my guy's PSA just went up and he has bone mets. Try to breathe deeply. Tylenol, imo, is not a good medication to be taking. Did his doctor recommend this? Are you in Canada? Acetaminophen is just awful for the liver. Has your dad discussed alpharadin (targeted radiation by injection). That might be good as it has reduced pain for many men with mets.  Hugs to you...MLN

jmmdad
Posts: 6
Joined: Jun 2002

henryev, I can't tell you how much I appreciate your reply to my concerns in the above(jmmdad); knowing someone else understands is so comforting. Thanks! I only wish I could say something to give you comfort; the only thing I can say is I am thinking about you and you are in my prayers.

nutt
Posts: 140
Joined: Sep 2001

Henry, can you provide me with what your symptoms were after your surgery? My legs, feet and in particuliar lower back have become such a pain/discomfort 24/7 and I am wondering how you were able to detect the spread of cancer and what were your symptoms?
Thanks and hope you are doing fine. Believe all of us have learned to take one day at a time and cherish those around us more.
Joe

lindachampagne60's picture
lindachampagne60
Posts: 16
Joined: Sep 2011

Jusy an update on my husband who chose not to have treatment. We now have hospice. New symtoms are, swollen hard legs and feet, swollen testicles, can barely walk, pain and a lump on his spine the size of a large marble, breathing problems,, tired but cant seem to get any sleep. Meds are oxeycodone, methadone, nurse gave him lasix, and an atibiotic for his legs that are all red, she said it was cellulitis. Swelling went down, and two days later, they are all swollen again. I dont knw whats happening at this point. He never wanted to go back for any treatment, and is just waiting to die. im exhausted taking care of him with all his needs. I never go out, and he doesnt want any one in. Does this sound like its spreading, and if so, will someone give me as much info as possible as to what to expect, and please dont spare me any details. i NEED to know, and all im getting is wonderful people trying to spare me the hurt. bless them, but I need info, and soon. Please help, as i want to hear from anyone who has gone through this, and even the ones who have passed and how long did they have the disease before they passed. thankyou so much. Tired 62 year old wife Linda

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

Linda, I'm so sorry you're continuing to live with this. I am sure it is very emotionally trying for you. You may want check out this or other similar links that discuss the dying process from prostate cancer.

http://en.allexperts.com/q/Life-Support-Issues-2065/expect-stage-IV-prostate.htm

My deepest sympathies.

K

walt bock's picture
walt bock
Posts: 3
Joined: Apr 2013

Linda,

My bone cancer now treated with Zytiga and a bone shot. Now I'm going to get a shot which goes to my bloodstream and to the cancer in my bones directly to knock out the cancer. Would this help your husband?

moonlitnight
Posts: 54
Joined: May 2013

Linda, I just want to send you my very best wishes. This is a terribly sad time and you must be so very tired (hug).

sphassl
Posts: 5
Joined: Aug 2003

I hope that you are having good quality of life. My dad is now in your same condition. Radical surgery in 1996, recently found out that it was in his spine - had spinal cord compression and lost the use of his legs. He had surgery and is now in physical therapy, but it just wears him slap out. This has all happened in the last couple of weeks. I would love to hear that you are doing okay now, realizing of course that you have been confined to a wheel chair. My dad is struggling to use a walker, but it takes all he has to stand up and use it. He has to use the wheelchair a lot. I am so worried about him - this has all been so sudden...his PSA is now over 300. Beginning this Thursday I will be his caregiver. I feel concerned that I can do a good enough job.

hunter49
Posts: 200
Joined: Oct 2011

Sorry to hear of your dad's condition. Curious what was his gleason and outcome after surgery?

VascodaGama's picture
VascodaGama
Posts: 1528
Joined: Nov 2010

Linda

I am sorry for the news regarding your husband’s decision.
You have done the upmost to help him and now you need to understand and accept his wishes. This must be difficult for you to accept.

I have spoken before with some advanced PCa patients and I realized that the majority surfer with pain. Some very advanced cases presented symptoms in lacking recognition, of the people around them or about what was happening to them.
I read that the cancer takes the lead when spreading to other organs causing inflammation and the subsequent collapse at the host places. Bone marrow seems to be the most affected area inducing failure of the immunologic system. At the hospices they keep the patients on drugs to alleviate the pain symptoms without any intent of cure or prolonging life.

Caring for these patients is a hard job because they become dependent totally. In your husband’s case you may try to get his understanding of accepting the visit of a helper to share the work with you.

The period on such conditions depends on the advanced status. I saw a colleague of mine, a man of 64 y/o, quite fit in looks but with metastases very advanced. Suddenly he stop coming to the office or going out with us for a drink, as it used to be common, because of perverse pains, intensifying every day it passed. He explained to me that he couldn't sleep or move without drugs. He died in just two months.
In another experience I met a patient who has suffered similar symptoms for two years before dying. This guy never had problems in explaining what was happening to him. He enjoyed some laughs when we meet, but the pain was excruciating, as he put it.

My thoughts are with you. I hope you can withstand this difficult period.

VGama

walt bock's picture
walt bock
Posts: 3
Joined: Apr 2013

Henry,

Was the radiation a detriment to your bone health or an asset?

moonlitnight
Posts: 54
Joined: May 2013

Henry, so sorry to hear about this. My husband has mets too. What drugs, if any, have you taken/are you on? Are you on a nutrition/supplement program as well?

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