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Recurrance of NHL
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Jun 19, 2002 - 5:31 pm
Has anyone out there had more than two reappearances of NHL and is there anyone in there late sixtys, early seventies who has survived this and can tell me about your treatment etc. Myron |
Joined: Apr 2002
Myron,
I recently read an article by a Dr. Wendy Harpham, that was about Cancer-related Fatigue. It was in CURE (cancer updates, research & education) magazine, Vol. 1, No. 1 Spring 2002.
In it, she state that she was diagnosed in 1990, and than had it reapepear 6 times. However, she now has been in remission for almost four years! So, don't despair, i guesss. As far as the latter part of your message, sorry. (I'm 19) :D
Joined: Jun 2002
Myron, don't know if this will help but there is a guy at work who gets a recurrence evry 6 years. Seems strange. But he gets chemo only, it disappears then 6 years later returns. He has had it 4 times now.
Joined: Apr 2002
Hi Myron
I'm a member of the Yahoo Non-Hodgkin's lymphoma mail group and they have a huge amount of information available. (There are over 600 members--all with NHL.)
A lot of people think there are two kinds of lymphoma, Hodgkin's and non-Hodgkin's whereas non-Hodgkin's actually encompasses about 40 different kinds of lymphoma. The aggressive kinds are more dangerous at first (some can kill in a matter of months) but when aggressive kinds are successfully treated with chemotherapy, they are much less likely to come back than the indolent varieties.
From what I've learned, indolent non-Hodgkin's lymphoma almost ALWAYS reoccurs and there are a number of people on that list who have had many more than two reappearances of NHL.
It has been very educational for me to be on that list. If anyone wants to join but can't figure out how to get to it on Yahoo!, let me know and I will look up the address for you.
patty
Joined: Apr 2002
Patty,
I'm sorry that I'm just getting around to this but I have had a rather full plate lately. I would most cartainly be interested in knowing the address of the Yahoo, Non-Hodgkins mail group. If you wouldn't mind, please send it to megregg@msn.com. I will be in your debt.
Myron
Joined: Aug 2002
Patty,
I am new to the group and just read your e-mail. I worry a lot about the lymphoma recurring even though I had rituxin and my doctor says I have a 70 percent chance of being cured. Could you send me the address of the Yahoo group. Thanks.
Don
Joined: Aug 2002
Patty,
I am new to the group and just read your e-mail. I worry a lot about the lymphoma recurring even though I had rituxin and my doctor says I have a 70 percent chance of being cured. Could you send me the address of the Yahoo group. Thanks.
Don
Joined: Mar 2003
I would love to join the yahoo group. How do I. sla
Joined: Mar 2004
Patty, I just joined this group but would love to have the address for the Yahoo one as well.
Joined: Mar 2005
Hi Patty
I would love to know how to get onto the yahoo NHL. I am currently taking the Rituxan. I was diagnosed with Indolent NHL. Bone Marrow and spleen. Thank you so much
Joined: Oct 2004
Please send me the address for the yahoo non hodgkins group as I have been searching for this kind of help for about 2 years. I am in my 2nd year of remission for indolent lymphoma. NStephe194@aol.com Bless you, Nancy
Joined: Aug 2002
Help!! I'm scared. My remission period lasted only 3months. Has anyone else had a recurrance so soon after completing chemo. I received Rituxan, Fludara, and Cytoxan for 4and half months, all of my tumors shrank immediately. I have begun another round of Rituxan, but I've noticed that my tumors are not shrinking as quickly this time. Is it possible to grow immune to Rituxan? Anyone who has undergone a similar situation, or just knows more about recurrances and the effects of Rituxan, please let me know thanks. Want2live
Joined: Oct 2001
Dear friend, although my personal experience isn't helpful in replying to your question (my treatment for NHL was very different than yours) I would take encouragement from the things you can read in the preceding responses to Myron's original message, above. You are not alone! Multiple recurrances are not uncommon with some types of NHL and you shouldn't let it get you down! I love your screen name... want2live. This means a lot. Your spirit is strong, and your spirit can support your body's fight. You can do it! I'm a 16 yr. survivor! God bless you with peace and strength!
Joined: Mar 2003
Hi, my name is Jim Atkins, i was diognosed with stage 4 aggressive NHL,when i was 17, i am 43 now and am going through my 6th recurrance.
I was told that as i get older the cancer will turn up in harder to treat places, this time its in my left leg and im trying desperatly to keep them from amputating as the blood supply is getting cut off.I did have 10 yrs of remission and i was told that the chances of a recurrance after that long were remote, just goes to show how much they DONT know.I know one thing for certain though, this thing will not kill me untill i am ready to go. Keep the faith, Jim.