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about to start AC

opam
Posts: 9
Joined: May 2002

had a mastectomy 5/8. will start four rounds of AC on 6/3. any advice? strongly estrogen receptive so will do tamoxifen after that. help!

nocarb1
Posts: 99
Joined: Nov 2001

Hi there,
I am 37 and was dx with BC in sept.2001 I have already taken 6 rounds of AC. My suggestion is to make sure you take your anti nausea meds. Even if you dont feel bad stay ahead of the game and take them. I never got sick, didnt feel great but I was fully functionable driving carpool and field trips ect. I did not lose all my hair, although most do so make sure to have your hats or wig ready for use. I am also taking tamoxifen and I have had no side effects at all to it. The best of luck to you and if you have any questions email me anytime at nocarb1@yahoo.com.
Carlye

nocarb1
Posts: 99
Joined: Nov 2001

Hi there,
I am 37 and was dx with BC in sept.2001 I have already taken 6 rounds of AC. My suggestion is to make sure you take your anti nausea meds. Even if you dont feel bad stay ahead of the game and take them. I never got sick, didnt feel great but I was fully functionable driving carpool and field trips ect. I did not lose all my hair, although most do so make sure to have your hats or wig ready for use. I am also taking tamoxifen and I have had no side effects at all to it. The best of luck to you and if you have any questions email me anytime at nocarb1@yahoo.com.
Carlye

banker
Posts: 321
Joined: May 2002

I had CAF protocol, 1 extra drug. Had several anti nausea medications that did not work. At present I am on chemo CMF, take Zofran 32 mg n the iv before chemo with 10mg decadron, that seems to do it for me. I also take Zofran twice a day 8 mg tablets for 4 days weather I need it or not. Had chemo yesterday, did not get sick, just tired and a little ache. Functional. God luck, keep us posted and make sure you take the ANTI-NAUSEA medicin. Emmi

banker
Posts: 321
Joined: May 2002

forgot to tell you, make sure you drink lots of fluids.Seems to help also.
Emmi

heavenlee's picture
heavenlee
Posts: 113
Joined: Apr 2002

Best of luck to you. I am 30 and had a mastectomy in 2/02, started AC 3/02. I am doing very well with the chemo. I am also pregnant so my doctors are very thrilled. I was still able to get all the anti-nausia meds in the IV before the chemo and I take Zofran for 2 days after, every 8 hours. Be sure to take the meds on schedule and drink...drink..drink.. I had a hard time witht he drinking fluids. When someone tells me I have to..I tend to rebel. But I do my best and have done well. I did lose my hair on my head and my underarms. I still have to shave my legs which stinks. I also have a problem with constipation..not sure if I should blame that soley on the chemo or my pregnancy. I will be thinking of you on the 3rd, that is my anniversary :-). Take care. Keep in touch. ahaney@elp.rr.com
Good luck and God bless.
Angel

bullfrog13's picture
bullfrog13
Posts: 216
Joined: Apr 2002

Dear Help
I think everone is different. Some lose thier hair and some don't. I did. But soon started coming back. I also have problems with stuffy NOse right after treatment. I still am able to work - I do take my chemo days off most of the time but on some days I even return after treatment. Just listen to your body and when it tells you that your need to lay down -do it! Dont try to be superwoman. I think that was one of the hardest parts for me - was admitting that I could no longer ''do it all'' and have since learned that not only asking for help around the house BUT to EXPECT it.. has been a eye opening experience for me..!! and I LOVE IT>>
Just remember to take your Zofran BEFORE you get sick to tummy........Good Luck and God Bless
Jerilyn

jmears
Posts: 270
Joined: Jul 2001

I read your story. I too had a very supportive husband. We are lucky. My problem with AC was the hair loss. I did not handle it well ... but now that it's all grown back and curly and hard to manage ... I miss the good old wig days! I took another chemo called Taxotere after the AC which put weight on me. Then ... the Tamoxifen ... it's been really tough to manage my weight. Try to keep moving! Best wishes. Jamie

24242
Posts: 1417
Joined: Mar 2001

The support of your husband is something that you can count on. I am so proud of husbands when they really get it and can actually be there for the one they love. Cancer does have away of bringing families closer together, in most cases.
I know that eating food is a very difficult thing for us cancer patients to do since we feel like **** all the time we are taking the chemo. I think very few feel good during this time, but some do very well. I just want to remind you and others going through chemo that if you can't eat your nutrition then you must consider drinking it. The best thing I think I ever did for myself was to continue to cook for my family and force feed myself. No matter what our bodies need something to fight off other problems and good nutrition can help to keep us strong and better able to get through the chemo. Water is also very important as others have mentioned. One has to drink the water to help flush the chemo through our systems. It also helps to keep our organs functioning better. I can't stress enough about the nutrition we must supply our bodies with and that isn't easy when one is feeling sick. I became the best force feeder ever, ended up doing it for years and agian this past year with all the problems I have been having.
Take good care of each other,
Be good to yourself,
Tara24242

vjc5199
Posts: 104
Joined: Apr 2002

hiya!! i've had 4 AC treatments, a lumpectomy, PET scan that revealed 2 more places (one in my stomach and one on my spine), and am currently resuming AC. so far the only thing i have to deal with (besides hair loss) is nausea. don't forget to take nausea meds because if you don't remember your body will probably remind you!! :) i'm still working on the fluids. i'm not a big water drinker but it does help when i make myself drink it. if you're like most of us, you will probably find yourself MAKING yourself do things. hope all goes well for you. God bless!!! vicki

karbear
Posts: 166
Joined: Aug 2001

Hello, I had four rounds of AC also and the best advice I can give is to STAY STRONG !! chemo is really rough on our bodies, I had very bad reactions to the naseua medicines and had wicked migranes.I dreaded each chemo but I just hung in there for my family.. Karin

pjsnana
Posts: 8
Joined: Apr 2002

I am currently taking AC - I must admit I do hate it - but here is what helped me: first, take the anti-nausea meds, like everyone says. If you have any problem with them (like, they don't work) call your doctor right away so they can try something else. I started with Zofran, which did not work for me, and tried Kytril, compazine and Decadron, which did. Coming off Decadron can give you a headache, so be prepared. Zofran can cause dizziness, so if they give it to you IV before the chemo, ask them to drip it in over 30 minutes rather than 15. This seems to help. Any anti-nausea meds can cause constipation, so you will probably need to medicate yourself for that. Ask your doctor what to use. Make sure you take ice pops or a slurpee or something very cold with you to chemo, and eat it while they administer the Adriamycin (the red stuff). It really helps prevent mouth sores. Make a mixture of 1/2 tsp baking soda plus 1/2 tsp salt to a cup of water to swish your mouth with 4 times a day if you do get any sores. Plus, ask your doctor for "magic mouthwash," which numbs things up so you can eat. For me, eating and drinking are difficult. Nothing tastes right, and I still have off and on nausea. So experiment. I currently eat a lot of tomatoes - go figure. I have also found that I felt differently after each chemo. Got body aches after 2nd round, but not after the first, for example. I did lose my hair beginning 14 days after round 1. Still have eyebrows and eyelaches so far. I would count on hair loss - I don't like it, but I keep repeating to myself that it's not forever. Post another message if you have more questions! These ladies are really great, and are the true experts!

Judy

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