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Living With Hodgkin's

tootybell
Posts: 1
Joined: Apr 2002

Hi, my name is Trisha and I currently have Hodgkin's Disease. I have had about 5 rounds of chemo, a bone marrow transplant, and some radiation, but to no avail the treatments did not work even though Hodgkin's is one of the most curable cancers there is. I have got to the point that the doctors have no more solutions or treatments for me. It is now completely left in the hands of God. I would really like to hear from any of you that is currently coping with this disease or anyone who has had Hodgkin's. Your reply would really be appreciated! Thanks.

dpomroy's picture
dpomroy
Posts: 137
Joined: Dec 2000

Trisha,
When my family found out I had Hodgkins, my nurse mother and sister-in-law about jumped up and down they were so glad that it was Hodgkins. I, like you, expected that I would fall into the "good side" of the statistics and be cured by now. I went through 16 ABVD treatments and 5 weeks of radiation but my Hodgkins never really went away. I have just had my first ICE treatment and am hoping that this cocktail is the ticket to a cord stem cell transplant soon. I keep wondering how I could be so "unlucky" with regards to the statistics. If we hang in there long enough, will they be able to find a cure? If it helps to have someone to talk to, I'm here!
Deb

cathyward
Posts: 1
Joined: Jul 2002

hi trisha,my names cathrine and im 19 yrs old.when i first found a lump in my neck the doctors was treating me for swollen gland...5 months after they transfered me to a throat specialist,i had a biopsy and on the 10/10/01 i found out i had hodgkins disease, the next step was tho see if the cancer had spread else where.luckily it had only spread to my chest, after a few operation i began treatment(ABVD)...6 months down the line i had a scan and the doctors told me i had the all clear,me and my family was over the moon,my next appointment was to have my groshong line took out.That was when i found out the doctors had made a mistake the cancer was still there, i felt so angry and cheated, i thought i couldnt take any more chemotherepy but another 4 was required... i kept my chin up and told my self i was going to win this battle. 2 months on and im free of cancer and now in remission...i surpose the moral of my story is keep on fighting and never ever give up. i really wish you the best of look luv from cathy....if u ever want to chat to me just email me on cathrine.ward@talk21.com take care.x x x

mommy1st
Posts: 2
Joined: Mar 2003

Hi, I was just wondering if you thought about or looked into legal matters concerning the delay of treatment by your original physicians. I had a similar experience with my primary doctor and then ENT (Throat DR). It wasn't until an outside Dr. came into the picture that my 1st X-ray was done. The rest happened quickly after that( diagnosis, treatment, etc.) Anyway, the reason I ask about the legal matter, is because my friends and family want me to bring legal issues against my 1st Dr.s for delaying treatment for approx. 5 months,,, and advise?

peepa
Posts: 4
Joined: Apr 2002

I am sorry that you can't find anything to treat your cancer. Have you thought about trying visualization? I'm reading this book called " Love, Medicine, and Miracles" by Bernie Siegel. He discusses cases in which patients have healed themselves of cancer by imagining that their bodies are fighting the cancer.
I also have Hodgkin's, so I imagine that my cancer is being eaten up by thousands of little Pacmen. My doctor thinks that I am helping the chemo along. I hope everything works out for you, and I will pray for you...

adcox
Posts: 3
Joined: Apr 2002

Trisha,

Most important is to stay positive. I had Hodgkins also but they only gave me a 20% survival rate. And now I have been cancer free for 7 years. I never gave up. Keep the faith Trisha.

j_mia
Posts: 3
Joined: Apr 2002

don't ever let it get you down. a strong will and good attitude will get you through. I know it is hard sometimes but there is hope. I am in my second year of remission. someday you will be too.

dawnmpm's picture
dawnmpm
Posts: 3
Joined: Jul 2002

Hi Trisha, my name is Dawn. I have been dealing with this since 1995. Had ABVD, MOPP, ICE, Gemzar, radiation, my own stem cell transplant and most recently a donor BMT. I am semi stable, but everyday there is more and more research all around the country. I hope you are in a support group, they really help me. Just never give up, you are very strong to have come this far.
Keep your chin up. :-)

trouter68
Posts: 1
Joined: Mar 2003

Hi Trisha responding to your post in away makes me feel like I may have counted. I was diagnosed level 3b sept 19 of last year. I have not utilized these sites due to various reasons. But I am very fortunate. I took the stafford 5 program. And thus so far have made it. In the beginning I always said "in spite of myself I will live". I have a cat scan the 17th of this month. The program was experimental, but I try an stay ignorant as much as possible. That allows me to stay positive, malignancy is not an option. I didn't know that word 120 days ago. But I do know courage, determination, strong will, amongst a list that could go on and on. I am 34, father of a 15 yr old daughter. I guess what I am saying is you count. Keep your chin up, be stubborn and thank the doctors an nurses for doing their job.

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