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Members Online: 10

New to group and seeking pen pals

lynnk
Posts: 8
Joined: Apr 2002

I am in my first round of chemo and have had
4 out of 6 taxol/carboplatinum sessions. My
next one was scheduled for tomorrow, but my
blood counts are not high enough. I live alone and have no family here so I am in virtual isolation which has caused some lonliness, especially today. If anyone is wanting to chat please contact me at lshaffer@bellsouth.net or reply on this site.

sweiss
Posts: 5
Joined: Apr 2002

HI, MY NAME IS STACIE. I AM 22 YEARS OLD AND HAVE STAGE IIIC OVARIAN CANCER. I'M ALSO NEW TO THIS GROUP. IT MUST BE HARD TO LIVE ALONE AND HAVE NO FAMILY NEAR. ANYTIME YOU WANT TO TALK YOU CAN E-MAIL ME AT ZZSTACIEZZ@AOL.COM OR REPLY ON THIS SITE. MY USER NAME IS SWEISS.

I'VE HAD 7 TREATMENTS OF TAXOL/CARBO AND MY CANCER DID NOT RESPOND. I'M HAVING A SECOND SURGERY AT THE END OF THIS MONTH. IT'S ARISKY SURGERY AND I'M VERY NERVOUS. WELL I HOPE TO HEAR FROM YOU SOON.

necia
Posts: 8
Joined: Jan 2001

Hi, my name is Necia, & am in my 12th month of remission. I had 3rd stage-c ovarian cancer; diad. in 2000. Had total hyster., & 6 rounds of chemo. Got sick a couple of times, lost all my hair ( was thinking about changing hair-style anyway) Wore a wig till it grew out. It's about 3-4 in. long now.
I don't know what stage you're in, but it is important to---
try to be stress-free (I know,easier said than done, but sometimes possible)
be positve, this will take time to recuperate from
be patient
trust in God
you are not alone, there are many women who have lived thru this, I know someone who had stage 4, been clean for over 10 years now.
Take care
Necia

nab219
Posts: 2
Joined: Apr 2002

It is Nancy again. I forgot some vitals...I am stage 11c which I believe is your stage also. I live in South Jersey. Feel free to email anytime. I understand your lonelinesss.
NAncy

asigirl2000
Posts: 3
Joined: Apr 2002

I too am in my first round of chemo. I have had 2 of 8 taxol/carboplatinum sessions and am taking neupogen shots in between to get my white cell count up. I would love to chat or email with you anytime. My email is asigirl2000@hotmail.com

palofkids
Posts: 6
Joined: Apr 2002

i am a survior of ovarian it is almost 6years but i was just diagnose with breast cancer. so if you have ever want to talk i am here for you

sue1
Posts: 31
Joined: Mar 2002

Hi, I sent you an email but it returned back to me as undeliverable to I'll send it this way. I read with interest your story on CSN and my story is very similar. Also, your email address connected with me, as my last name is Shaffer!
I was diagnosed on 2/11, after my repeated visits to the Dr re tenderness in the abdomen. A week later I was undergoing surgery and they removed exactly the same on me as they did on you. My omentum had a tumor the size of a football attached, but luckily there was no other involvement with any organs. I had a ton of fluid as well. The wierd thing was that there seemed to be no involvement with my ovaries. Well, the biopsies revealed that I had Extra Ovarian Primary Periotenal Cancer. When we are developing as embryo's, the ovary starts as one, then splits and creates another. During that splitting process, sometimes little seed cells are left behind and usually they remain dormant. Mine obviously did not! What's interesting is that women who have complete hysterectomies can still get ovarian cancer! This whole process for me has been a REAL LEARNING EXPERIENCE - and I'm sure it will continue to be.
I'm starting my 2nd session of chemo this week, which is Carbo/Taxofere. So far so good, still have some hair but it's thinning quickly! I'm working 36 hours a week and my spirits are up. I'm 48, married and have a son & 3 grandchildren (thru marriage). Typically, I'm a very healthy and active person and not predisposed to this disease. I guess that's why I was in such a state of disbelieve at the beginning!
To try and improve my chances I am following a strict vegan diet and stopped all caffiene drinks, no processed foods, no white flour and only small amounts of honey or molasses. Gets kinda boring but I'd rather give myself every chance I can.
Let me know any tips you may have and I'd love to hear back from you when you have a chance.
Sue Shaffer

mahreeya
Posts: 2
Joined: Apr 2002

Hi. I am new to the group too. It has been 2 years since the end of my chemo, and i have been in remission ever since. Where do you live? I am in New York. I would be more than happy to be your pen pal. My email is mahreeyagwastela@yahoo.com.

barb10
Posts: 2
Joined: Apr 2002

dear lynnk, i want you to know you are never alone. GOD is with you always. please write to me and i will help you. sounds like you are doing what I have done. please contact me barb2@zoominternet.net or here. barb10

mskrissy's picture
mskrissy
Posts: 6
Joined: Apr 2002

Hello, I am a survivor of Ovarian Cancer, I just wanted to let you know to hang in there, things will get better. In September of this year, I will be cancer free for 5 years!

perky58
Posts: 2
Joined: Mar 2003

hi i'm new to the group and im not sure if i'm responding correctly but anyhow..i was happy to see you are a 5 year survivor of ovarian cancer. iwas diagnosed in 10/2000 first doctor thought i have colo-rectal cancer...aftr surgery ...second opinion and second surgery confirmed ovarian...had hyster. and chemo..lately been very very scared about it coming back which is giving me much anxiety...i have 2 children in 2nd and 5th grades...and i worry so much about them and me not being here..how do you shake this "waiting for the other shoe to drop" feeling!! thank you anyone who can relate to this slump i'm in....

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