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AML Leukemia
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Oct 06, 2001 - 3:08 pm
Would like to talk to some one with aml, especially if in the San antonio, TX area. I was diagnosed with aml 1 Dec 00 and had 3 chemo treatments. Presently am in remission. |
Joined: Jul 2012
Lolly. I am curious about your brother's experience. I got chills when I saw his diagnosis date. That was the same as mine. March 28, 2011 and my parents' 63 anniversary. And your name is my sister's nickname.
I would love to tell you what happened with me (very similar to my story). In fact, if I didn't know better, I would think you ARE my sister. Is that you Leeg?
Joined: Jun 2012
Hi Everyone,
I was just recently diagnosed with AML and had gone through 3 chemo cycles already. I'm currently in remission right n ow and my doctors advised is to have a BMT. But, it is very expensive. My doctor says it cost 4Million :( (I'm in the Philippines by the way). There is no way in this world we can find that money becuase I'm one of the people who work for a leaving type. So, I'm wondering if anyone o you here survived AML without going through BMT?
Your thought is very much appreaciated.
Thank you,
Naome
Joined: Jul 2012
I had a BMT. Would like to talk to you about it.
Joined: Jul 2012
Hi there,
I would love to talk to you about the BMT. I would not have survived if I had not had a BMT, as my AML was quite advanced and my cytogenetics were not good. It is an expensive and painful process, and may or may not be for everyone. I will not do any other procedures, and if the AML comes back (I am in remission), then that's it. Hospice and leaving this earth. Between the chemo and the bmt, I have had too much trauma to my body.
Please let me know if there is anything I can do to help.
Joined: Jul 2012
my husband 55 had bmt allogenic from his sister after being detected with AML M2 in august 2009. after almost a failure he managed to survive by the grace of GOD. he just had his re-immunisation . he is now doing good.touch wood.
Joined: Jul 2012
And he will continue to do well. I am approaching my first year anniversary, so he is ahead of me. The process is horrible, but the further one gets away from it, the more normal one feels. I am grateful.
Joined: Jul 2012
And he will continue to do well. I am approaching my first year anniversary, so he is ahead of me. The process is horrible, but the further one gets away from it, the more normal one feels. I am grateful.
Joined: Jul 2012
hi xuelan
thanx and god bless you all will go well hubby is doing good he is now taking vaccines
Joined: Feb 2013
I am doing a reasearch paper, and was wondering if i could interview you. I wont ask anything too personal, but i do need some help.
if you can please email me back at bananaport12@hotmail.com
Joined: Mar 2013
Ive never Done anything like this But I would like to talk to someone about AML . I dont know what type I have . But I was diagnosed in September 2012 and am currently still going through the treatment process . Im just need someone to talk to . Its been really straining on the family , The only family who has stuck by me through this is My kids and wife but I dont want them to get in a tizzy worrying like I am about some questions I have about it .. Mabe someone could help me out and guide me through the rest of this process !! thank you my email address is bad4good13662@hotmail.com or you can reply here I think !! Thank you for your time as always god bless all you survivors !
Joined: Apr 2013
Hi All
My Mum was diagnosed 3 weeks ago and went straight into intensive Chemo. She has neutropenia so is in a solitary room. She has finished her week of chemo and now we wait out the 3 weeks following which I believe are the most difficult?
She has had ulcers in her mouth, a really bad throat, pains in her chest and now suspected gall bladder problems. Through all of this I feel we fumble along as we are not sure what each of these complications means and the medical staff do not give you a basic understanding... maybe this is all normal, but we may be experiencing fear and apprehension needlessly.
My Mum is 71 and does not have the option of a bone marrow transplant. Initially she was given 3-6 months to live but offered chemo should she wish to try for remission.
I guess I want someone who can just be straight up with me and anyone who has been over 70 who has met this challenge without the option of a BMT and if chemo, blood transfusions and platelets were enough to get them into remission?
Each day we continue blindly...
Thank you.
Joined: May 2013
I was diagnosed with AML Jan 2013. I am going thru what your mum is and have suffered tru most of what you mentioned. Most of the things are just routine and expected with the chemo. I have had no counts, low counts, neutropenia, high fever, even sudden allergy (to shell fish) resulting in antaflatic shock and barely made it. The support staff (drs and nurses) are use to this and sometimes don't realize how scarry it is for us patients and their caregivers (you, my husband etc.) I don't know how many times I thought "this is IT". I am now on my third consolidation chemo. I seem to get weaker each time, but now am confident I'm going to make it. Some of these symptoms or side effects really blow me away though. Write back on this collum.
Joined: Apr 2013
Hi All
My Mum was diagnosed 3 weeks ago and went straight into intensive Chemo. She has neutropenia so is in a solitary room. She has finished her week of chemo and now we wait out the 3 weeks following which I believe are the most difficult?
She has had ulcers in her mouth, a really bad throat, pains in her chest and now suspected gall bladder problems. Through all of this I feel we fumble along as we are not sure what each of these complications means and the medical staff do not give you a basic understanding... maybe this is all normal, but we may be experiencing fear and apprehension needlessly.
My Mum is 71 and does not have the option of a bone marrow transplant. Initially she was given 3-6 months to live but offered chemo should she wish to try for remission.
I guess I want someone who can just be straight up with me and anyone who has been over 70 who has met this challenge without the option of a BMT and if chemo, blood transfusions and platelets were enough to get them into remission?
Each day we continue blindly...
Thank you.
Joined: Apr 2013