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AML Leukemia

ballen3
Posts: 2
Joined: Oct 2001

Would like to talk to some one with aml, especially if in the San antonio, TX area. I was diagnosed with aml 1 Dec 00 and had 3 chemo treatments. Presently am in remission.
Bobby Sllen

Cancerfather
Posts: 4
Joined: Jul 2011

My daughter just was told her first induction failed. How is your brother doing. I am totally down

xuelan
Posts: 23
Joined: Jul 2012

My first induction failed and I had to be reinduced. That was successful. Now it has been 10 months since my bone marrow transplant and I am getting better every day. Your daughter must be positive about things. That is how I got through all of this.

xuelan
Posts: 23
Joined: Jul 2012

Lolly. I am curious about your brother's experience. I got chills when I saw his diagnosis date. That was the same as mine. March 28, 2011 and my parents' 63 anniversary. And your name is my sister's nickname.

I would love to tell you what happened with me (very similar to my story). In fact, if I didn't know better, I would think you ARE my sister. Is that you Leeg?

AML_Survivor
Posts: 2
Joined: Nov 2013

I was diagnosed with AML in February 2012, I was told three different times I wouldnt make it. After five rounds of induction chemo and two stem cell transplants I've been in remission for fifteen months. I always thank God, the medical staff and all my supporters.  And my will to live.

naome1104
Posts: 1
Joined: Jun 2012

Hi Everyone,

I was just recently diagnosed with AML and had gone through 3 chemo cycles already. I'm currently in remission right n ow and my doctors advised is to have a BMT. But, it is very expensive. My doctor says it cost 4Million :( (I'm in the Philippines by the way). There is no way in this world we can find that money becuase I'm one of the people who work for a leaving type. So, I'm wondering if anyone o you here survived AML without going through BMT?

Your thought is very much appreaciated.

Thank you,
Naome

xuelan
Posts: 23
Joined: Jul 2012

I had a BMT. Would like to talk to you about it.

overland_traveler
Posts: 3
Joined: Jul 2012

Hi there,

I would love to talk to you about the BMT. I would not have survived if I had not had a BMT, as my AML was quite advanced and my cytogenetics were not good. It is an expensive and painful process, and may or may not be for everyone. I will not do any other procedures, and if the AML comes back (I am in remission), then that's it. Hospice and leaving this earth. Between the chemo and the bmt, I have had too much trauma to my body.

Please let me know if there is anything I can do to help.

AMLBMTSURVIVORSWIFE
Posts: 9
Joined: Jul 2012

my husband 55 had bmt allogenic from his sister after being detected with AML M2 in august 2009. after almost a failure he managed to survive by the grace of GOD. he just had his re-immunisation . he is now doing good.touch wood.

xuelan
Posts: 23
Joined: Jul 2012

And he will continue to do well. I am approaching my first year anniversary, so he is ahead of me. The process is horrible, but the further one gets away from it, the more normal one feels. I am grateful.

xuelan
Posts: 23
Joined: Jul 2012

And he will continue to do well. I am approaching my first year anniversary, so he is ahead of me. The process is horrible, but the further one gets away from it, the more normal one feels. I am grateful.

AMLBMTSURVIVORSWIFE
Posts: 9
Joined: Jul 2012

hi xuelan
thanx and god bless you all will go well hubby is doing good he is now taking vaccines

bananaport12
Posts: 2
Joined: Feb 2013

I am doing a reasearch paper, and was wondering if i could interview you. I wont ask anything too personal, but i do need some help.

if you can please email me back at bananaport12@hotmail.com

DJ Moniere
Posts: 1
Joined: Mar 2013

Ive never Done anything like this But I would like to talk to someone about AML . I dont know what type I have . But I was diagnosed in September 2012 and am currently still going through the treatment process . Im just need someone to talk to . Its been really straining on the family , The only family who has stuck by me through this is My kids and wife but I dont want them to get in a tizzy worrying like I am about some questions I have about it .. Mabe someone could help me out and guide me through the rest of this process !! thank you my email address is bad4good13662@hotmail.com or you can reply here I think !! Thank you for your time as always god bless all you survivors !

savanna
Posts: 2
Joined: Apr 2013

Hi All

My Mum was diagnosed 3 weeks ago and went straight into intensive Chemo.  She has neutropenia so is in a solitary room.  She has finished her week of chemo and now we wait out the 3 weeks following which I believe are the most difficult?

 

She has had ulcers in her mouth, a really bad throat, pains in her chest and now suspected gall bladder problems.  Through all of this I feel we fumble along as we are not sure what each of these complications means and the medical staff do not give you a basic understanding...  maybe this is all normal, but we may be experiencing fear and apprehension needlessly.

 

My Mum is 71 and does not have the option of a bone marrow transplant.  Initially she was given 3-6 months to live but offered chemo should she wish to try for remission.

 

I guess I want someone who can just be straight up with me and anyone who has been over 70 who has met this challenge without the option of a BMT and if chemo, blood transfusions and platelets were enough to get them into remission?

 

Each day we continue blindly...

 

Thank you.

 

ckwaml
Posts: 4
Joined: May 2013

I was diagnosed with AML Jan 2013.  I am going thru what your mum is and have suffered tru most of what you mentioned.  Most of the things are just routine and expected with the chemo.  I have had no counts, low counts, neutropenia, high fever, even sudden allergy (to shell fish)  resulting in antaflatic shock and barely made it.  The support staff (drs and nurses) are use to this and sometimes don't realize how scarry it is for us patients and their caregivers (you,  my husband etc.)  I don't know how many times I thought "this is IT".  I am now on my third consolidation chemo.  I seem to get weaker each time, but now am confident I'm going to make it.  Some of these symptoms or side effects really blow me away though.   Write back on this collum.

savanna
Posts: 2
Joined: Apr 2013

Hi All

My Mum was diagnosed 3 weeks ago and went straight into intensive Chemo.  She has neutropenia so is in a solitary room.  She has finished her week of chemo and now we wait out the 3 weeks following which I believe are the most difficult?

 

She has had ulcers in her mouth, a really bad throat, pains in her chest and now suspected gall bladder problems.  Through all of this I feel we fumble along as we are not sure what each of these complications means and the medical staff do not give you a basic understanding...  maybe this is all normal, but we may be experiencing fear and apprehension needlessly.

 

My Mum is 71 and does not have the option of a bone marrow transplant.  Initially she was given 3-6 months to live but offered chemo should she wish to try for remission.

 

I guess I want someone who can just be straight up with me and anyone who has been over 70 who has met this challenge without the option of a BMT and if chemo, blood transfusions and platelets were enough to get them into remission?

 

Each day we continue blindly...

 

Thank you.

 

mdking
Posts: 2
Joined: Apr 2013

I am with you savanna my father was just diagnosed 1 month ago with AML he was admitted to the hospital ASAP and they started doing an aggressive chemo right away.  He is 70 so a BMT is not an option.  He is receiving treatment at penn medicine in philadelphia.  no blasts in the first bone marrow test After the treatment He does have pneumonia and heart racing.  I am unsure if all of this is normal.  he is very weak . i am scared and the nurses are kind but not full of information

 

 

mdking
Posts: 2
Joined: Apr 2013

I am with you savanna my father was just diagnosed 1 month ago with AML he was admitted to the hospital ASAP and they started doing an aggressive chemo right away.  He is 70 so a BMT is not an option.  He is receiving treatment at penn medicine in philadelphia.  no blasts in the first bone marrow test After the treatment He does have pneumonia and heart racing.  I am unsure if all of this is normal.  he is very weak . i am scared and the nurses are kind but not full of information

 

 

ckwaml
Posts: 4
Joined: May 2013

I am 66 and have had chemo for AML since Jan 1,2013.  The nurses help with all cancer patients, and even caancer patients with the same diagnosis don't always react the same way to the chemo, isolation, complications, etc.  The only source for info should be your oncologist.  I have had some complicaations, too.  One,as you may notice is hand and body tremors (it's not just poor typing ability). The thing I have learned most, an especiallly when my daughter of 8 had ALL and died when she was just 12 years old 25 years ago was the meaning of "one day at a time".  Anticipation of things to come (wwhat if I get pnemonia, strep, etc) leads to nothing but dread....a lot of wasted energy.  Also, dwelling on the mysrable day in the hospital is just negative energy.  I try to avoid both and live one minute, hour, or day at a time.   Can't always get it but I try.  My husband, who is my caregiver, can usually help me out with a smile, and I try to do the same for him.   Lots of luck to you. 

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