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AML Leukemia

ballen3
Posts: 2
Joined: Oct 2001

Would like to talk to some one with aml, especially if in the San antonio, TX area. I was diagnosed with aml 1 Dec 00 and had 3 chemo treatments. Presently am in remission.
Bobby Sllen

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suzykg
Posts: 3
Joined: Feb 2001

Hey Bobby,
My name is Suzy. I don't live in San Antonio, but I was diagnosed with AML back in January of 2000. I also had 3 chemo treatments and am currently in remmission. I hope you are feeling well, and have a positive frame of mind. That's what kept me going....PMA, as I like to call it. Positive Mental Atitude! If you have any questions for me, ask and I'll try to answer. I had M3, Acute Promyelocetic Leukemia. I took ATRA along with the chemos ARA C and Idorubisin. I stayed on the ATRA for 1 year and have been cancer free since March of 2000. I have been volunteering to speak with other AML people at my hospital when they are newly diagnosed, that's what helped me out in the beginning. I hope that we can become e-friends!
Let me know how you're feeling and doing!
God Bless
Suzy

pmtpa
Posts: 3
Joined: Sep 2000

Dear Suzy,
I am glad to hear that you are doing well. Same goes for Bobby. I was diagnosed in Dec 1997 with AML, well actually APL like you. I also had the ATRA pills and was put in remission with those, and then had the three rounds of the same chemo as you. I went into remission in January 1998, and am still in remission! It is good to hear of other people doing well.
Take care.
pmtpa

rita54636
Posts: 1
Joined: Mar 2002

Hello i just read your message to Bobby. My name is Rita and i just found out on Christmas that i had AML. I have M2 i really have no one to talk to and have been looking for people to talk to and help me through the tough times that i am going through. I would really like to hear from you. Thank you

cbertus
Posts: 1
Joined: Oct 2003

Hi Rita,
I just got started on this web cite. My husband was diagnosed with AML M2 in 7/01 and has been in remission since 11/01. His blood counts have never come back up to normal. He has not had a transfusion since 8/02. He now has myelodysplasia. How are you doing?

ive3devils
Posts: 3
Joined: Aug 2011

Hi my daughter was diagnosed with AML she is 24. she had 2 aggressive chemo rounds and the cancer was still in her blood and bone. They did a bone marrow translant and it was just about the 100th day since the transplant and they told her it was back in her blood and bone. They took her off immune meds and are going to "see" if she can fight it if not they will do chemo (outpatient) again. Well she spent 4 months in hospital and her chromosomes were resistent to chemo (im no dr. but that is not good) Can she have another transplant. She is tired and said "it is what it is" they told me less than 50 percent chance of survival. Well I being her mom am not buying it. I say go to Dana Farber with situation for a second opinion. Does anyone know the odds or if second transplant is an option ? Thank you

ive3devils
Posts: 3
Joined: Aug 2011

Hi my daughter was diagnosed with AML she is 24. she had 2 aggressive chemo rounds and the cancer was still in her blood and bone. They did a bone marrow translant and it was just about the 100th day since the transplant and they told her it was back in her blood and bone. They took her off immune meds and are going to "see" if she can fight it if not they will do chemo (outpatient) again. Well she spent 4 months in hospital and her chromosomes were resistent to chemo (im no dr. but that is not good) Can she have another transplant. She is tired and said "it is what it is" they told me less than 50 percent chance of survival. Well I being her mom am not buying it. I say go to Dana Farber with situation for a second opinion. Does anyone know the odds or if second transplant is an option ? Thank you

ive3devils
Posts: 3
Joined: Aug 2011

So my daughters transplant did not work they say her leukemia is progressing and decided to do an outpatient chemo (only inpatient). The first 2 rounds of chemo (aggressive) her chromosomes rejected so why would they give her a lower dose chemo. They said they were trying what they could to give her quality of life. What does that mean? HELP!!!! I am confused and don't understand. They also stated they would not do a 2nd bone marrow. Now she is in for a cat scan for labored breathing?

TanyaC97
Posts: 20
Joined: Aug 2011

Not sure where you are located, but I would recommend getting a second opinion. Dana Farber is top, I am sure there are other places. My prognosis is good, but I still got a second opinion.

tayjokids
Posts: 3
Joined: Nov 2009

i was wondering how many rounds of chemo you had and if you are in remisson my husband was dx the begining of oct he is recieving his 2 nd round of chemo the 1 st one did not put him in remisson the doctors tell me m2 is not that bad

farahi's picture
farahi
Posts: 23
Joined: Oct 2009

I was dx on 7/17/2009 with AML m5 and have induccion therapy 2 because the 1st one didnt work 2nd put me in remission, and my dr said i will recive 4 more rounds of chemo.

I hope your husband get better soon.
Good Luck!

sonja844
Posts: 4
Joined: Jan 2010

I had the induction chemo, and only 1 follow up chemo before I told me Doctor no more. I felt like I couldn't live through any more chemo. It was a great decision because I'm still alive and it has been 1 year.
My doctor told me that if I could stay cancer free for 2 years that I would be concidered cured. Because AML is so fast acting that if it didn't return within 2 years that there was only a 5% chance of a retutrn.
I want you to know I feel for what you are going through. God is with you and He knows everything you and your husband are going through. God Bless You!

mary1977
Posts: 6
Joined: Apr 2010

Hi, my name is Mary and I was diagnosed with AML M5 last Aug. 2009. I went thru extensive chemo, the induction, got all the side affects and then some, and was in the hospital for a month and 1/2. I did go thru consolidation chemo and it was just as bad as the first; if not worse. I developed three infections, one was on my face that turned into a staff infection and spread to my lungs. I had surgery on my face, and was in the hospital for 3 weeks. they almost lost me during that time because the infection spread and my pulse rate went up to 138 and fever was 103. They got me stabalized, not having to send me to ICU.
In my mind, all full doses of chemo give you the "bad" side affects.
I told my doctor that I was going to refuse any more chemo because I didn't want to get so sick anymore, I couldn't go thru that again. I had a 3rd treatment, but only 1/2.
A week ago I had another BMB and this time it came back clear. My doctor said I am now in remission; but I really don't know how long remission lasts. I have heard that a person in remission still has a 50/50% chance to relaps. If this happens to me, I will accept it. Have you heard of the percentages of this disease? Or if anyone out there knows, please inform us.
thanks
mary

mtbikernate
Posts: 31
Joined: Feb 2010

I was diagnosed with AML M2 with an 8:21 translocation in March 2009 and was declared in remission in April 2009. I've been in remission for a full year now.

I got 9mos of full chemo on the FLAG protocol (fludarabine, cytarabine, and mylotarg). I got all but my last treatment as an inpatient and had VERY minimal side-effects during that time. I lost some of my hair, but that was mostly it. I did not have any nausea until my last full treatment as an outpatient. I attribute that to two things. First, fluids. As an inpatient, I had an IV drip 24hrs/day. As an outpatient, I couldn't drink enough. Also, as an inpatient, I received IV Zofran (antinausea drug). I did not receive that as an outpatient.

I did get an infection (sepsis of a staph bacterium when I was in the hospital getting a transfusion...my temp hit 108 and I was hospitalized for 10 days, but received IV antibiotics daily for 3 weeks), but we're fairly sure I actually got it in the hospital because a nurse didn't scrub my central line port well enough with alcohol. My wife and I were EXTREMELY careful and she keeps the house as clean as a hospital (she's a veterinarian, so is well aware of proper cleanliness standards), which has kept me from having other problems.

I did have some trouble with 'rhoids at one point, but they cleared up with some OTC treatments the nurses at the hospital recommended to me.

My only other trouble was a spot under one of my toenails. Right now, I'm not entirely sure what it was. The doctor doing rounds the day I was getting my chemo said it looked like an infection and told me to see a podiatrist. I did that, and the idiot thought I was ingrown and needed to be cut that day (even though my counts were rather low at the moment). I wouldn't let him do that, so he suggested I do soaks in warm, soapy water. That cleared up the "infection" but there was still a spot of blood under the nail that would periodically ooze for awhile. 6 months later, it's no longer oozing, and it looks like it's healing. I have no idea what the spot is, but I'm glad it's getting better so I can wear sandals again.

Now, I'm off the study protocol and my oncologist wants to treat me on a sporadic basis for the next year, pointing out that the longer AML patients get treatment, the longer they are likely to be long-term survivors. The stuff he's giving me now (Phiveracycline? I have no idea how to spell the stuff, but that's what it sounds like when he says it) made me quite sick the last time I got it. He gave me an oral Zofran prescription this time around. I just got my first dose of three today, so we'll see how well it works.

merritt2011
Posts: 2
Joined: Nov 2011

My son was dignosed with AML on sept 2 he spent 28 days in the hospital. He has just had his 1st of 4 chem treatments. He is also back in the hosptial with fever. He has also got these really bad bumps on his face that are infected. Just don't know what to do for him. When he feels good he wants to do things. Really hard for me to try to keep him down.

maria21grnfld
Posts: 1
Joined: Feb 2013

Hi, my name is Maria.  I was diagnosed with AML in Aprill 2011 and had transplant in Aug 2011.  It sounds like you had a rough time.  I cannot say it was fun. Chemo sucks. However, I made it thru that and the 100 days.  I can't believe I was actually able to come back to work after 8 mos.  I have since developed some mild GVHD symptoms, i.e. dry eyes, skin rashes.  However, since October I got some flu virus and was back in the hospital for three months.  Recently, I got another flu (which I had the shot for) and was hospitalized again.  I am on sick leave now and hopefully, will be able to return to work AGAIN in a couple weeks.  I work in health care and my doctor says I should consider early retirement or disability because of the exposure I get.  I have a lot of stuff to think about.  All these meds I am on (hopefully) temporarilly, are effecting my vision and brain (forgive my rattling).  I don't know if they consider me in remission.  All I know is that after 5 yrs and clean biopsy, the likelyhood of the disease returning is much less.  We have to stay positive and embrace the time that we feel healthy.  I have all of you in my thoughts and prayers.

 

ckwaml
Posts: 4
Joined: May 2013

The low blood counts after chemo are what I blame for all the complications I have gotten during the last 4 months of AMl chemo.  Luckily I do not work outside the home so have avoided contact with the public, even grandkids, etc.  I am hoping that this isolation is worth it as I just have 2 months of consolidation to go and then I think I am done as I am still in remission.  I live about 150 miles from the hospital and so stay there during low blood count and just return home during the "rise"

sonja844
Posts: 4
Joined: Jan 2010

I have had no one to talk to either who knows what I'm going through. I'm sure you are scared. I know how I felt when I was told and if you feel like I felt, you are shocked. Shake the shock off and get ready to fight. Girl you are IMPORTANT and LOVED and you need to hear that. So get that fighters spirit in check because you are needed here on earth. I had to fight for my life and when I was unable to fight any longer...loved ones fought for me. I AM praying for you. God is with you, and believe it or not he is will you. He has walked with you through all your life silently, but is the one who is with us when are hospital room is empty and we need someone to cry to. Don't forget to call out to him. I don't want to be preaching to you or anyone, but I'm here on earth this day because of Jesus. If I offend you I apologize but I'm not sorry for believeing in him.
GOD IS WITH YOU DEAR!

clairmccormack
Posts: 9
Joined: May 2010

hi sonja, my mom was diagnosed with AML leukemia in April. She is still in the hospital and had a VRE bacteria from her port and then now has pneumonia and a blood clot in her arm. We are waiting for her white counts and neutrophil count to rise. How long did it take you for your counts to go up after chemo? How old are you as well? I'm just curious and trying to find someone who has a similar situation for some comfort. thanks

AMLBMTSURVIVORSWIFE
Posts: 9
Joined: Jul 2012

HI Rita,
its been many years now for you .hope all is well. my husband went through bmt for aml m2 in 2009. he is now fine after all possible complications including pneumonia and GVHD on skin. he just began his re-immunization. we did the transplant in mumbai tata hospital.the doctor and his crew there is great.

sonja844
Posts: 4
Joined: Jan 2010

My name is Sonja. I'm 34 with 4 kids and have been married for just about 15 years. Last year (12/21/08) I was diagoised with AML. I was pregnant and had to give up the pregnancy, (which I still cry about) to start chemo. I started chemo January the 1, 2009. I have been in remission since the first chemo, but had more. I'm very emotional still and wonder if that will ever go away? I really need people who know what I have gone through to help me heal. I have chronic pain and can't work now, but I'm seriously so greatful I'm here today. I know there is only one who made me well! The Lord Jesus Christ.
Even though he has healed me of the cancer, I still am emotionally in pain.
If anyone knows how I can get healing help for the pain I am left with...please e-mail me at sonjamarie844@aol.com.
It may take me awhile to get back to you. Please be patient. I appreciate it...Thank you!

Keri Black
Posts: 4
Joined: Aug 2010

Hey Sonja,
Have you tried lyrica? My brother has alot of chronic pain as well and the lyrica didn't take all the pain away but did take the edge off. It worth a try...hope it works for you!

Syasharal
Posts: 1
Joined: Mar 2013

Hi my dad was recently diagnosed with AML, after having CLL for nearly 6 years   He went through one roLDL of chemo, which was very tough on his body   After the first trtm, they did a bone marrow biopsy and found that the chemo had no positive effect what so ever.   he is so down and sad about this news and finds it very hard to feel any hope for the future   Is there anyone in the LA area who has been through AML, who can give him a pep talk to boost his morale.   He needs to continue fighting!  We need him around.   We love h so much!  Thank you

mzgyver's picture
mzgyver
Posts: 1
Joined: Mar 2013

Just found this website today. I was diagnosed 12/10/11. I live in central Illinois. I went to Chicago University Hospital three times for chemo. Wasn't on my top 10 favorites list----but I am in remission since March of last year. I don't know how old your dad is but I am now 62. If an old broad like me can do it so can he. Keep a positive attitude. I know how had this can be on the family, I remember how it affected my kids. Together we tackled it. I wish you all well.

moving_on
Posts: 1
Joined: Apr 2013

Hi,

I think your father must find something to believe in, something which will make him want to go on, a strong reason to live, something in the future (could be an event he wants to attend, children, grandchildren to live for).

I have acute myeloid leukemia, I was diagnosed October 2012, when I was 68 years old and I had had the disease for helf a year prior, at least. I was not a candidate for extreme chemo...my age, my cytogenetics, poor chances during treatment, and likely return of the disease within a short while. I was given a 'lesser' chemo out patient treatment which helped for a while but is no longer useful. The hematologists give me no encouragement in regard to this disease, forget their predictions. 

I am putting my hope in my attitude and the changes I have made in my day to day life since diagnosis. I have 'pulled out all the stops'!

I eat healthy foods, lots of greens, brown rice...kind of a macrobiotic diet with just a bit of fish. I read positive books by Dr. Bernie Siegel and others, do positive affirmations on a tape by Louise Hay which a friend loaned me, have also learned auto hypnotism from an MD who specializes in that. I believe all this has kept me feeling well, not a sick day yet. Exercice is important to me...walk at least 1/2 hour a day and get 2 hours of fresh air, sleep with heat off windows open, started into meditation several weeks ago with Oprah and Deepak Chopra free 21 day meditation challenge. You can find info on any of this online.

My last bone marrow extraction showed cancer worse but I feel better all the time! I could only walk up 4 steps when diagnosed, now up 16 without shortness of breath. I have put my faith in my mind as the best fighter of this disease. I wil enjoy every day as long as I can. I feel peaceful regardless of the outcome.

Only your father can do it but hopefully he will be open to suggestions from you which may motivate him to live.

All the very best to you

 

lsundbom
Posts: 6
Joined: Apr 2013

Has your doctor talked to you about clinical trials with killer cells?  The University of MN has a trial on these that are showing good results.

 

momwithquestions's picture
momwithquestions
Posts: 3
Joined: Apr 2013

Let's try that again.

My 29 year old son was first diagnosed at the age of 16. He had a MUD BMT for AML. He has never dealt with his feeling about all he lost in the process. I wish there were counselors that specialized in counseling patients, and survivors. I think there is a huge need. Regardless, I believe that if he would connect with other survivors he could gain the ability to relate to someone who would understand the experience. It may allow him to open up and talk about it.

So any suggestions on how to get him seek out a survivor site, maybe even this one?

Congratulation on your continued remission.

momwithquestions

jerri28
Posts: 1
Joined: Apr 2002

I'm not in San Antonio area but, I'm in Texas (east Texas) and I have or had AML. I', in remission -- I would love to talk to you -- e-mail address is madamejeri@aol.com

cheryl58
Posts: 4
Joined: Apr 2002

I'm a 7 year survivor of AML. I'm interesting in knowing others who survived and what the future holds for us.

Books
Posts: 1
Joined: Apr 2003

Hello Chery158
My son is a AML survivor of 4 years now. He is however, suffering from Avasculian necrosis in the worse form. He is in constant pain and is so angry that his personal life is suffering badly from it. He is in college and trying to function. He feels that he is leading a double life and is going crazy doing it. Can you offer any suggestions or words of wisdom for my son. He was so happy before and now is so angry and sad.
Thanks,
Books

marcdeman
Posts: 1
Joined: Jul 2012

Hi All,

No one could be nearer or dearer to my heart than a fellow AML patient either undergoing treatment or years out in remission. I am not one who is short winded, but I will have to keep this message short because now after four years out and feeling pretty good like nothing ever happened after having received 7 rounds of chemo ( fludurabine,cyterbine, and mylotarg )enough to take you to the edge of death ---- currently I am experiencing pain in the joints of my hand and my feet. So much so lately than I am walking like a very old man and I recently turned 53. I just got back from a visit with my oncologist and he said everything looked ok and he would see me in another year. He said no cancer, but something is very wrong with me, I have been having drenching night sweats for the last three weeks and my joints are really hurting. My toes on my left foot feel as if they were broken. My knee hurts and my hands are swelling and hurting too. Not sure what is going on, but I sure do wish all this joint pain would end. Thank you and God Bless you all.

xuelan
Posts: 23
Joined: Jul 2012

I would like to talk to you about your experience. I am 10 months post bone marrow allograft. I would like to cheer you up.

dysunshine
Posts: 2
Joined: Jan 2013

Hi Xuelan

My daughter was diagnosted with AML M-2  on Oct 12,2012, she went through  induction I and II, righ now she is in  intensification I. She got remission after induction I. Also she is enrolled into a clinical trial with  drug Bortezomib  beside ADE 10+3+5. She and her sister HLA are 6 pair match, right now we need to make a decision  for bone marrow transplant. we know BMT also has a high risk and side effects after transplant, but I heard AML relapse rate are very high.  please share your experience with AML treatment and BMT experince with us and that would be appreciated greatly.

Diane

Musette
Posts: 1
Joined: Nov 2012

Hi,
I am 50 year old female and was diagnosed with AML in end of May of this year. I am on my 3rd round of chemo (consolidation). Will be receiving stem cell transplant of March next year. I am experiencing hot flashes and joint pain as well. But the hot flashes (night sweat) is probably due to menopause (I am guessing as I am going through menopause). As for joint pain, I am unable to find the reason that is causing the sore/pain, the doctors have said maybe that is due to other underlying health problems. Perhaps hereditary artheritis. The doctor is prescribing muscle relaxer and ointment for the soreness and pain.

ckwaml
Posts: 4
Joined: May 2013

Those are some of the same questions I have.  I am definately way past menopause.  I believe the big night sweats are my body working hard creating blood cells and fighting the chemo.   I am AML and on the 3rd consolidation, full remession so far.  The joint pains, now especially the right hip are there, too.  I am going to ask my Onc. dr. about that today.  I dont want to come out  of this and have to have a hip replacement.  Could it just be lack of muscle to hold the hip joint in place?   I would swim laps 45 minutes 3 to 5 times a week before this diagnosis and hike often.  I live out in Moab, Ut and we did alot of activities.  I'm not sure how much exercise I should try during this.  I know I have little stamina and am concerned for organ damage if I tax my body too much with exercise.  What do you think?

byornham
Posts: 4
Joined: Apr 2010

He was diagnosed is Aug. of 05. It is a big mystery because as near as I can tell most journeys are not the same. I would like to hear more from long term survivors it would encourage us to know more people do live a longer life with this disease.

choirgirl120
Posts: 1
Joined: May 2010

My name is Cindie. I am 31 years old. I was diagnosed with AML on June 14, 1988 when I was 9 years old. I received a bonemarrow transplant from my brother who was 17 at the time. I developed graft vs. host disease and still have difficulties to this day.

I had four rounds of chemo and then a full week of full body radiation (three times a day). I have had health issuses that have been assumed to be related to the radiation and chemo: like appendectomy, gall bladder removed, frequant kidney infections and type II DM(with no family history). My doctor today associates it with my body being "zapped" and pretty much killing off all the small body parts. I have a echocardiogram done anually and try to do things to keep my immune system up.

I do have three MIRACLE babies, 10, 5 and 3. I was told at the age of 9 I would never have children due to sterilization, so I prepared my self and then my husband (later) that I would adopt. That would be ok with me. But I am glad they were wrong:)

I am now an OB nurse, love to read and spend time with my family. AML was part of my life, NOT my life. I look forward to many more years ahead!!

I Love discussing my medical history and would try and answer any questions you might have. Or just need to talk. My Email is Choirgirl120@hotmail.com

Crystollina
Posts: 1
Joined: Dec 2010

I am a APL survior. I had a bone marrow transplant from an unknown donor when I was 17yrs old may 31st 2002... One of my many hematology/oncology doctors told me that they fried my ovaries so he doubts I can have any children of my own... Was horrible... I just wanted to cry... I had full body radiation and chemo... I'm not married but engaged and its hard for me to talk about it with my fiance because its to hurtful to talk about... I'm not sure if I can and my doctors aren't either... I guess I just have to pray and wait it out... I'm 25 yrs old now... I just pray that the lord gives me Miracle babies as he did for you! :'o(

16yearsSurvivor
Posts: 4
Joined: Sep 2013

Hi.

im sharing the same story and situation.

i was diagnosed with M3 APL on my 15th birthday. I now am 31 and am facing the two panels of judgements, on fertility. i see your message is from 3years ago. What happened since then? i am concerned since me and my partner really want to have a baby. Thanks

sheena141
Posts: 3
Joined: Dec 2010

WOW!!! A 7 year survivor....I can't wait to be able to say that!!! I believe that after 5 years you are "cured". I am only at 7 months and love to hear success stories.

Did you have a stem cell transplant? How old were you when you were diagnosed?

cola403
Posts: 1
Joined: Mar 2003

My name is Angelica and I was diagnosed with AMLm3 on March 19th, 2002. I spent a total of ten weeks in the hospital but I am doing well!!! I received 4 treatments of Idarubicin and cytaribine and am now currently on maintenance with a combination of ATRA, methotrexate, and mercaptopurine. I hope everyone is doing ok. I have a three year old daughter and I am 24. I am glad to hear such positive attitudes from those on this site!! God Bless You. Angelica

easttexaspines
Posts: 1
Joined: Mar 2003

hang in there. My 4 year old granddaughter was Diagosed with it last year. She could only have 3 treatments due to a fungus that grew in her lungs
while she was neutropenic. I saw her go through some bad times, as I am sure that you did. The sores in the mouth, the pain, the throwing up of blood, and the operation that they did on her lungs, to remove 2 golf ball size funguses.
She is presently doing very well. Her mother is a nurse & is able to give her her food bag & antifungal medications at night while she plays on her laptop computer. She has a lot of energy & is doing great, as I know that you will do.The main thing that cured her was the prayers that were prayed about her from people that we have never heard of. She went to childrens medical center in Dallas, & they are wonderful.
If there is any thing I can do to help you, please let me know. The main thing that I would recommend, is to believe strongly in Jesus Christ & pray to him daily, and ask you freinds & families to do the same thing. The other thing, that Macy has done, is keep a good attitude.
Do any thing you can to get your mind off of it. Watch cartoons, play computer games, try & learn new things, and again, do a lot of praying.
If you can, write me back at martind28@thenett.com & tell me what kind of aml that you have. She had AML M2 with an 8:21 crhomosome swap. (In other words, part of chromosome 8 broke off & attached itself to chromosome #21, & part of chromosome 21 broke off and attached itself to #8.)
Please ask me any thing you want to & I will do my best to try & find the most recent research.
Just remember to HANG IN THERE.
I don't know you but I love you as a Christian & will pray for you.
Hope to find out more about you.
See you later
Jeff Dickerson - Martind28@thenett.com

mr8cl
Posts: 9
Joined: May 2003

Hi Bobby! I hope you're doing well. I am an AML survivor as well. Please feel free to contact me if you need a friend. I'm in Columbus, OH.
ksbrown1@aep.com

TopFlight
Posts: 1
Joined: Sep 2003

Hello there. I am a 25 year old newly diagnosed AML patient from San Antonio, I am presently in my induction therapy process. Any words of encouragement from you would be appreciated. I am scared but my faith and trust is in God.

surrah_09
Posts: 2
Joined: Dec 2009

Hey Bobby,
I was diagnosed with AML June 3 2007 and have been in remission for 2 years. Sorry, I'm not from San Antonio. I'm from San Diego.

Linda Cooper
Posts: 1
Joined: Jul 2010

July 24,2010,My daughter, Heather, is 39 and has had AML since Jan of 09. She had her transplant in June of09. She stayed in remission for 80 days. Then we had to go home. She was at Vandie Hospital in Nashville, Tenn. We live in Townsend, Tenn. So this was a long and sad trip home. Since then she has been taking Vidasha,chemo. We came back to Vandi, July 18. They had to take her port out because of an infection in it. She is still running some fever though. She is thinking about taking the chemo, flag. She wants to get back in remission to have another transplant. We pray all the time that God will see fit to heal her here I know she will be healed if he takes her to Heaven. Her 2 boys need,and her family and friends do too. Please pray for her. Her Mom and Caregiver MY e-mail is grankayc@att.net

Lolly29
Posts: 1
Joined: May 2011

My brother was diagnosed with AML on March 28, 2011 . His first round of chemo brought him close BUT not in remission. He is undergoing stronger chemo now. Does he have a shot at remission this time around? He had so many side effects last time...i shudder to think what this might bring ( almost operated on bowel, fungal infection, hallucinations from anti-fungal medicine, etc.) Are there people out there who went in to remission the 2nd time around? He was given the news that there is a "donor" for bone marrow with 10/10 markers.

Cancerfather
Posts: 4
Joined: Jul 2011

My 48 year old daughter just had a failure of first induction for AML. She will start a second in a week or so. I, too, would like to know if anyone has survived after a course like this. I feel horrible

xuelan
Posts: 23
Joined: Jul 2012

I hope all went well.

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