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AML Leukemia



Total items found: 19

ballen3
Posts: 1
Joined: Oct 2001
October 6, 2001 - 2:08pm

Would like to talk to some one with aml, especially if in the San antonio, TX area. I was diagnosed with aml 1 Dec 00 and had 3 chemo treatments. Presently am in remission.
Bobby Sllen

suzykg's picture
suzykg
Posts: 1
Joined: Feb 2001
October 14, 2001 - 11:40am

Hey Bobby,
My name is Suzy. I don't live in San Antonio, but I was diagnosed with AML back in January of 2000. I also had 3 chemo treatments and am currently in remmission. I hope you are feeling well, and have a positive frame of mind. That's what kept me going....PMA, as I like to call it. Positive Mental Atitude! If you have any questions for me, ask and I'll try to answer. I had M3, Acute Promyelocetic Leukemia. I took ATRA along with the chemos ARA C and Idorubisin. I stayed on the ATRA for 1 year and have been cancer free since March of 2000. I have been volunteering to speak with other AML people at my hospital when they are newly diagnosed, that's what helped me out in the beginning. I hope that we can become e-friends!
Let me know how you're feeling and doing!
God Bless
Suzy

pmtpa
Posts: 4
Joined: Sep 2000
October 16, 2001 - 7:48am

Dear Suzy,
I am glad to hear that you are doing well. Same goes for Bobby. I was diagnosed in Dec 1997 with AML, well actually APL like you. I also had the ATRA pills and was put in remission with those, and then had the three rounds of the same chemo as you. I went into remission in January 1998, and am still in remission! It is good to hear of other people doing well.
Take care.
pmtpa

rita54636
Posts: 6
Joined: Mar 2002
March 6, 2002 - 4:12pm

Hello i just read your message to Bobby. My name is Rita and i just found out on Christmas that i had AML. I have M2 i really have no one to talk to and have been looking for people to talk to and help me through the tough times that i am going through. I would really like to hear from you. Thank you

cbertus
Posts: 1
Joined: Oct 2003
October 16, 2003 - 8:07pm

Hi Rita,
I just got started on this web cite. My husband was diagnosed with AML M2 in 7/01 and has been in remission since 11/01. His blood counts have never come back up to normal. He has not had a transfusion since 8/02. He now has myelodysplasia. How are you doing?

tayjokids
Posts: 3
Joined: Nov 2009
November 3, 2009 - 10:04pm

i was wondering how many rounds of chemo you had and if you are in remisson my husband was dx the begining of oct he is recieving his 2 nd round of chemo the 1 st one did not put him in remisson the doctors tell me m2 is not that bad

farahi
Posts: 4
Joined: Oct 2009
November 19, 2009 - 11:43pm

I was dx on 7/17/2009 with AML m5 and have induccion therapy 2 because the 1st one didnt work 2nd put me in remission, and my dr said i will recive 4 more rounds of chemo.

I hope your husband get better soon.
Good Luck!

sonja844
Posts: 4
Joined: Jan 2010
January 12, 2010 - 2:21pm

I had the induction chemo, and only 1 follow up chemo before I told me Doctor no more. I felt like I couldn't live through any more chemo. It was a great decision because I'm still alive and it has been 1 year.
My doctor told me that if I could stay cancer free for 2 years that I would be concidered cured. Because AML is so fast acting that if it didn't return within 2 years that there was only a 5% chance of a retutrn.
I want you to know I feel for what you are going through. God is with you and He knows everything you and your husband are going through. God Bless You!

sonja844
Posts: 4
Joined: Jan 2010
January 12, 2010 - 2:35pm

I have had no one to talk to either who knows what I'm going through. I'm sure you are scared. I know how I felt when I was told and if you feel like I felt, you are shocked. Shake the shock off and get ready to fight. Girl you are IMPORTANT and LOVED and you need to hear that. So get that fighters spirit in check because you are needed here on earth. I had to fight for my life and when I was unable to fight any longer...loved ones fought for me. I AM praying for you. God is with you, and believe it or not he is will you. He has walked with you through all your life silently, but is the one who is with us when are hospital room is empty and we need someone to cry to. Don't forget to call out to him. I don't want to be preaching to you or anyone, but I'm here on earth this day because of Jesus. If I offend you I apologize but I'm not sorry for believeing in him.
GOD IS WITH YOU DEAR!

sonja844
Posts: 4
Joined: Jan 2010
January 12, 2010 - 2:14pm

My name is Sonja. I'm 34 with 4 kids and have been married for just about 15 years. Last year (12/21/08) I was diagoised with AML. I was pregnant and had to give up the pregnancy, (which I still cry about) to start chemo. I started chemo January the 1, 2009. I have been in remission since the first chemo, but had more. I'm very emotional still and wonder if that will ever go away? I really need people who know what I have gone through to help me heal. I have chronic pain and can't work now, but I'm seriously so greatful I'm here today. I know there is only one who made me well! The Lord Jesus Christ.
Even though he has healed me of the cancer, I still am emotionally in pain.
If anyone knows how I can get healing help for the pain I am left with...please e-mail me at sonjamarie844@aol.com.
It may take me awhile to get back to you. Please be patient. I appreciate it...Thank you!

jerri28
Posts: 2
Joined: Apr 2002
April 3, 2002 - 8:09am

I'm not in San Antonio area but, I'm in Texas (east Texas) and I have or had AML. I', in remission -- I would love to talk to you -- e-mail address is madamejeri@aol.com

cheryl58
Posts: 1
Joined: Apr 2002
April 22, 2002 - 9:17pm

I'm a 7 year survivor of AML. I'm interesting in knowing others who survived and what the future holds for us.

Books
Posts: 2
Joined: Apr 2003
April 23, 2003 - 12:10pm

Hello Chery158
My son is a AML survivor of 4 years now. He is however, suffering from Avasculian necrosis in the worse form. He is in constant pain and is so angry that his personal life is suffering badly from it. He is in college and trying to function. He feels that he is leading a double life and is going crazy doing it. Can you offer any suggestions or words of wisdom for my son. He was so happy before and now is so angry and sad.
Thanks,
Books

cola403
Posts: 1
Joined: Mar 2003
March 11, 2003 - 9:20pm

My name is Angelica and I was diagnosed with AMLm3 on March 19th, 2002. I spent a total of ten weeks in the hospital but I am doing well!!! I received 4 treatments of Idarubicin and cytaribine and am now currently on maintenance with a combination of ATRA, methotrexate, and mercaptopurine. I hope everyone is doing ok. I have a three year old daughter and I am 24. I am glad to hear such positive attitudes from those on this site!! God Bless You. Angelica

easttexaspines
Posts: 1
Joined: Mar 2003
March 17, 2003 - 1:07am

hang in there. My 4 year old granddaughter was Diagosed with it last year. She could only have 3 treatments due to a fungus that grew in her lungs
while she was neutropenic. I saw her go through some bad times, as I am sure that you did. The sores in the mouth, the pain, the throwing up of blood, and the operation that they did on her lungs, to remove 2 golf ball size funguses.
She is presently doing very well. Her mother is a nurse & is able to give her her food bag & antifungal medications at night while she plays on her laptop computer. She has a lot of energy & is doing great, as I know that you will do.The main thing that cured her was the prayers that were prayed about her from people that we have never heard of. She went to childrens medical center in Dallas, & they are wonderful.
If there is any thing I can do to help you, please let me know. The main thing that I would recommend, is to believe strongly in Jesus Christ & pray to him daily, and ask you freinds & families to do the same thing. The other thing, that Macy has done, is keep a good attitude.
Do any thing you can to get your mind off of it. Watch cartoons, play computer games, try & learn new things, and again, do a lot of praying.
If you can, write me back at martind28@thenett.com & tell me what kind of aml that you have. She had AML M2 with an 8:21 crhomosome swap. (In other words, part of chromosome 8 broke off & attached itself to chromosome #21, & part of chromosome 21 broke off and attached itself to #8.)
Please ask me any thing you want to & I will do my best to try & find the most recent research.
Just remember to HANG IN THERE.
I don't know you but I love you as a Christian & will pray for you.
Hope to find out more about you.
See you later
Jeff Dickerson - Martind28@thenett.com

mr8cl
Posts: 10
Joined: May 2003
May 7, 2003 - 10:48am

Hi Bobby! I hope you're doing well. I am an AML survivor as well. Please feel free to contact me if you need a friend. I'm in Columbus, OH.
ksbrown1@aep.com

TopFlight
Posts: 2
Joined: Sep 2003
September 24, 2003 - 5:33pm

Hello there. I am a 25 year old newly diagnosed AML patient from San Antonio, I am presently in my induction therapy process. Any words of encouragement from you would be appreciated. I am scared but my faith and trust is in God.

surrah_09
Posts: 2
Joined: Dec 2009
December 31, 2009 - 12:47am

Hey Bobby,
I was diagnosed with AML June 3 2007 and have been in remission for 2 years. Sorry, I'm not from San Antonio. I'm from San Diego.