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supraglottic laryngectomy

zetta
Posts: 1
Joined: Oct 2001

Hi my husband is 52 years old and on March 13,2001 he had a surgery called a supraglottic laryngectomy and 2 inches of the base of his tongue was removed. He also completed 30 radiation treatments on both sides of his throat and the front of hid neck. His epiglottis was removed completely. This has created a problem for him to swallow. He needed to go through speech therapy and was given many exercises to learn to swallow a different way. This has been very difficult for him. He is on a peg tube to for feedings. He is just starting to take thickened liquids. If anyone has had the same surgery or problems He needs to know he will be able to eat and swallow again. Any advise would be appreciated.

jleider
Posts: 4
Joined: Oct 2001

I had a partial laryngectomy on August 9th during which all the cartilige in my larynx was removed. I still have my PEG tube, but I have learned to eat and drink just about everything in my normal diet. I learned a technique where I take a mouthful of food or drink, take a breath and hold it, swallow hard, and then cough. It works for me and I'm learning to do it with out annlying everyone with the cough. I feel I was lucky to find a speech therpist with experience with this type of problem. If you have questions about the therapist, shop around. I did and I'm glad I changed from the first person I met with. You might try a rehabilitation hospital in your area. My therapist actually coached me through meas with progressively more difficult foods. Now that I'm finishing with speech therapy for swallowing, I'm starting physical therapy to build strength in the muscles used for swallowing and to regain lost range of motion. This may be contributing factor to your husbands difficulty since is sounds like he lost considerable muscle tissue. My doctor told me that it would be a difficult thing to do and certainly everyone's situation is slightly different, but it can be done. If you wish to discuss further, feel free to contact me directly at jleider@ptd.net. Take care and good luck.

sue5749
Posts: 170
Joined: Dec 2010

Hi, I know that it has been a long time that you posted this, but I just read it. I was just wondering how your husband has done since then? My husband is 59 and has just find out 4 months ago that he has the same thing supraglottic cancer of the larynx. He has had 23 rad treatments and 10 cemo treatments. Only 1 more cemo treatment left to do next week and 4 more rad treatments. He has had a track put in also a port and a feeding tube. Just wondering what is next after all treatments are done. Guess nobody knows the answer, but wait for the ex-ways. Just wondering how your husband has been doing? Thank you Sue

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